I was ready to go ahead and try the "Batch" cocktail, but wanted to check with my doctors just to make sure it was ok.  The 10,000 IU daily dose of D3 was making me wonder if that high dose could be harmful to me.  My neuro said to go ahead and take it.....she's prescribed higher doses of D3 to some of her patients for whatever reason.  My primary care doctor says, No No......Dont take any more that 5,000 IU per day.  So now I dont know who to listen too, and I still havent tried it yet.

So those of you that have tried it, how has it affected you, if it has at all?  Thanks as always.

Danny

I guess if it were me, I'd listen to the dozens of people on this board who have taken even more than that for months and months and report nothing but positive effects - not some doctor whose only interest is in limiting his liability.

I've been on it for several months, no negative effects.

Joe

  My former GP . . . who I just dumped because he wouldn't prescribe 02 because "insurance won't cover it" (and I know he has two other CH patients) DID prescribe 20,000 IU D3 for me some months ago . . . which did help some.

  I've been on Batch's regimen for a couple of weeks, but wasn't taking the right Omega 3 fish oil . . . or the Calcium Citrate.

  Three days ago started 10,000 IU D3, morning & evening, 1200 mg fish oil (morning), and Citracal Plus (morning & evening).  Last two days no attacks . . . last two nights no attacks.  I may taper back, but for now the PF time is wonderful . . . so I plan to keep on the higher dosages for a while before I do.

  Have a new doc who is open to CH info, impressed with the info I've provided, no problem with high-flow 02 and willing to work WITH me to keep this beast of ours under control.

  Be Safe,    PFDANs

    Richard

According to the Mayo clinic


Quote:

Safety research supports an upper limit of a dose of vitamin D to be more than or equal to 250 micrograms daily (10,000 IU of vitamin D3).

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

Many thanks for your input all of you.  I'm going to try it.  (as soon as September's soc. sec. money comes in on the 3rd...LOL)  Kinda broke right now.

I cant live on Imitrex 100mg tabs forever.....or at least thats what I'm told.  I've got the M-Tank with a non-rebreathe mask too, so I'm doing my best to keep things under control.  On low doses of Verap as well.  I'll keep you all posted.  Again, many thanks.  Batch has sent me emails with the exact dosages so I'll follow it.

  How low is your dosage of Verapamil?  Minimum effective dose for CH is 240 mg . . . I had my first PF day (in over a year) when I got to 240 mg (had 3 attacks that night, but had 02 to kill them before the "dance" stage).  I got as high as 480 mg, then back to 360 mg maintenance dose which reduced the frequency/intensity of attacks to a level I could easily abort with 02.

Deltadarlin:
  Thanks for posting the mayo clinic link.  I plan to stay on the higher dosage for a few more days, then reduce in stages back to Batch's recommended dosages.  Other med problems keep me on constant lookout for UTIs n such . . . so will be monitoring while on the high dose regimen which is working for me now.

  Be Safe,   PFDANs

    Richard

My rule of thumb: Take any doctor's advice about vitamins and nutrition as seriously as you would advice on vitamins and nutrition from your auto mechanic, because they've both likely had equivalent training on the subject. The mechanic will admit ignorance though, while the doctor won't hesitate to dish out misinformation.

We have to do our own research on this stuff I'm afraid. I'm currently on 15,000 IU D3.

I sure admire and respect doctors, can'tcha tell?  :D

i have been on 10 000 iu a day for over a year with no negative effects. I even take 25 000 iu sometimes once a week along with the 10 000 iu and have had great results

Fantastic Folks.  More superb answers.  Thanks again so much.  And Richard, I'm only on 80mg Verapamil twice a day. 

Danny,

How much vitamin D3 to take and what constitutes a normal level of serum 25-Hydroxyvitamin D [25(OH)D] are contentious issues in the world of vitamin and mineral supplements. 

The Food and Nutrition Board (FNB) at the Institute of Medicine of The National Academies (formerly National Academy of Sciences) recommends an RDA of 600 I.U. vitamin D3/day and that a serum level of 25(OH)D, the active metabolite of vitamin D3, of ≥50 nmol/L (≥20 ng/mL) is generally considered adequate for bone and overall health in healthy individuals.

The Vitamin D Council suggests US Government's (FNB) recommended Adequate Intake for vitamin D is too low to receive many of vitamin D's benefits.  The problem they see with the current recommendations is that vitamin D influences a much wider array of physiological processes other than simply maintaining bone health and normal calcium metabolism.

They opine that for proper functioning, a healthy human body utilizes around 3,000-5,000 IU of vitamin D per day - indicating the current Government recommended intakes are not high enough to raise and/or maintain the vitamin D levels necessary for proper health.  They further suggest that 25(OH)D levels of 40 ng/mL to 80 ng/mL (100-200 nmol/L) is a safe normal range.

The American Board of Integrative Holistic Medicine claims most laboratories now consider a 25 hydroxy vitamin D level of < 30 ng/ml indicative of deficiency.  As physicians who treat patients with vitamin D3 and monitor their 25(OH)D levels offer that many of their vitamin D expert members consider a 25 hydroxy vitamin D [25(OH)D] level of 60-80 ng/ml (150-200 nmol/L) optimal; but this is expert opinion and not proven fact.

Finally, you've got other experts like Dr. Lewis, MD, an Integrative physician in Australia who treats vitamin D3 deficient patients on a routine basis, prescribing doses of vitamin D3 at 5,000 to 10,000 I.U./day and testing 25(OH)D levels looking for an optimum range of 40-80 ng/mL (100-200 nmol/L).

Given the above...  Who do you trust/believe?

It's no wonder that too many doctors are unfamiliar with adequate vitamin D3 dosing as recommended by the Vitamin D Council and expert physicians practicing in the field of Integrative and Holistic Medicine. 

It's also understandable that some physicians may be confused or caught in the cross-fire between the physician experts and the Food and Nutition Board.

It should be noted that the intake reference values for vitamin D and other nutrients are provided in the Dietary Reference Intakes (DRIs) developed by the Food and Nutrition Board at the Institute of Medicine of The National Academies.

DRI is the general term for a set of reference values used to plan and assess nutrient intakes of healthy people. These values, which vary by age and gender, include:

• Recommended Dietary Allowance (RDA): average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy people.

• Adequate Intake (AI): established when evidence is insufficient to develop an RDA and is set at a level assumed to ensure nutritional adequacy.

• Tolerable Upper Intake Level (UL): maximum daily intake unlikely to cause adverse health effects

The Vitamin D Council and several gold standard studies have determined that the skin of an average bathing suit clad human can produce the equivalent of 10,000 I.U. vitamin D3 in a matter of minutes exposure to direct sunlight and that supplemental dosing at a similar level would be essential to maintain normal levels.

As most of us don't get that kind of exposure to UVB, and most food types like milk fortified with vitamin D are insufficient, we're likely vitamin D3 deficient and need vitamin D3 supplements.

At issue is how much vitamin D3 to take as a normal maintenance dose and how much to take as a therapeutic dose to obtain symptomatic relief in the shortest time possible.

Again, who do you want to believe on this matter...  a group of four recognized experts in the field of nutrition and biochemistry who made up the Food and Nutrition Board (FNB) at the Institute of Medicine of The National Academies, (three of whom hail from tenured professor positions in academia and one from government) ... or the recommendations of the Vitamin D Council and the American Board of Integrative Holistic Medicine? 

Both of these organizations have memberships numbering in the thousands of practicing physicians who treat and test patients with vitamin D deficiencies on a routine basis.

Folks, I'm not a doctor so I suggest you see your primary care physician or neurologist and discuss the anti-inflammatory regimen along with contentious issue surrounding the RDA, AI and UL dosing with vitamin D3. Be sure to ask for the vitamin D3 test for 25(OH)D3.  This is a must particularly if you're dosing above 10,000 I.U./day.  Both the Vitamin D3 Council and the American Board of Integrative Holistic Medicine recommend this practice.  It's the only way you'll know your actual 25(OH)D3 levels and how they're being affected by your present level of dosing with vitamin D3.

Take care,

V/R, Batch

I've been splitting up my D3 dosage between morning and afternoon.  Would it be better if I took the whole 10,000 IU in one dose in the morning?

This is my current regimen:

Morning: 5,000 IU D3, 1000 mg Fish Oil, 300 mg Calcium Citrate (w/ 150 mg Mg, 7.5 mg Zn)

Afternoon: 5,000 IU D3, 1000 mg Fish Oil, 300 mg Calcium Citrate (w/ 150 mg Mg, 7.5 mg Zn)

Evening: 1000 mg Fish Oil

Does this look about right or am I missing something?