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Cluster Headache Help and Support >> Cluster Headache Specific >> Heat-trigger for cycle?
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Message started by LasVegas on Aug 26th, 2011 at 10:27pm

Title: Heat-trigger for cycle?
Post by LasVegas on Aug 26th, 2011 at 10:27pm
Record breaking heat in Las Vegas this week...110+ F temp

No A/C in my car...+10F

Am businessman/outside sales driving at least 5 hrs/day.
Long sleeved shirt, tie, long pants, etc...+10F
= Hot & Sweaty!

Feel stiff neck all week and am getting hit as I type.
Just slammed a RedBull, hyperventilated w/ face against my turbo speed house fan.  Helped abit, but OUCH! :(

Left side pain-temple, jaw, eye, stiff neck, no drooping yet, runny nostril.

Haven't been able to afford a regulator for welders o2.  No $ til 9/5th to order which will take at least 2 weeks to deliver once ordered.

No medical insurance. 

I do have Imitrex injections & nasal sprays but not wanting to use them if I don't have to.  Also have Pred and Verapamil but don't want to start if I don't have to.

Tough waiting game to determine how near future plans may be altered...

Really hope this is not the beginning of a cycle.  This is the 3rd hit (KIP 1 - 4) in last 2 weeks for 1st time in 5 yrs.

Started "123 days regimen" yesterday. 

Single parent here 24/7/365 w/ 11 yr old to care for who starts middle school this Monday.

Need to make most use of my time while PF and always productive, never a lazy moment, well overdue but not with the beast again. 

Pain is subsiding abit...feel exhausted and these past 20 minutes was only a KIP 3.  Thought my pain tolerance was higher, this better not happen again!  :-/

Wonder if there are studies on how heat may act as a trigger to cycle!?

Title: Re: Heat-trigger for cycle?
Post by Bob Johnson on Aug 27th, 2011 at 8:53am
What's the reason for not using Verap ? Preventing attacks seems more attractive than treating one--and cheaper.
====
Lancet. 1999 Sep 18;354(9183):1001-2.
Comment in:
Lancet. 2000 Jan 8;355(9198):147.

A new cluster headache precipitant: increased body heat.

Blau JN, Engel HO.

Exercise, a hot bath, or elevated environmental temperature provoked cluster headaches, within 1 h, in 75 out of 200 patients. This new observation accords with recognised precipitants--alcohol, histamine, and gyceryl trinitrate--perhaps via generalised vasodilatation or hypothalamic activation.

Publication Types:
Letter

PMID: 10501368 [PubMed]

Title: Re: Heat-trigger for cycle?
Post by LasVegas on Aug 27th, 2011 at 12:35pm
Thanks for sharing about the heat Bob.  Hopefully others have more info to share on heat as a trigger to cycle??

BobJ....You ask what's wrong w/ Verap?

I am already taking Clonidine which is also a BP med used for Opiate withdrawals.  Can not take 2 BP meds.

Clonidine is the only med my dr prescribes for opiate withdrawals.  I'm stuck not taking Verap until I no longer have withdrawals and am only in the beginning stages of tapering down opiates/begin withdrawals. 

Can't imagine how I would cope w/ a CH cycle and withdrawals at the same time.

Title: Re: Heat-trigger for cycle?
Post by Bob Johnson on Aug 27th, 2011 at 1:15pm
Should have mentioned: an old preventive for heat induced attacks is 1mg SL tab of ergotamine. Take about one-hour before the activity which raises your body temp.

Question is whether it's available or not. Keeps cycling on and off the market.

Title: Re: Heat-trigger for cycle?
Post by Marc on Aug 27th, 2011 at 2:14pm
I truly understand broke, but I also know what K8's and K10's are. Those are the one's that I "would do anything" to reduce the pain - like somehow, some way find $35. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

There is a Harbor Freight on Decatur between Flamingo and Tropicana. If they don't have it in stock, they will get it for you quickly.

Just a thought.

Marc

Title: Re: Heat-trigger for cycle?
Post by anthony g on Aug 28th, 2011 at 9:38am

Bob Johnson wrote on Aug 27th, 2011 at 1:15pm:
Should have mentioned: an old preventive for heat induced attacks is 1mg SL tab of ergotamine. Take about one-hour before the activity which raises your body temp.

Question is whether it's available or not. Keeps cycling on and off the market.


Hey bob
very interesting I never heard of the ergotamine before excersising. I have been avoiding excercise ans getting some sun at the beach cause I find that heat is a trigger for me. Do you think it would be a good choice to try before going to the beach as a prevent?
thanks
Anthony

Title: Re: Heat-trigger for cycle?
Post by Bob Johnson on Aug 28th, 2011 at 1:22pm
If you can get it, yes. But this is one med where you have to be attentive to the maximum weekly use. Too much can lead to a circulatory problem. Beyond that caution, it was used for decades in the era before triptans.

Title: Re: Heat-trigger for cycle?
Post by LasVegas on Aug 28th, 2011 at 1:27pm
Thanks Marc, good research! ;)

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