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Cluster Headache Help and Support >> Cluster Headache Specific >> Started a blog
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Message started by bbqmannc on Sep 8th, 2011 at 11:07am

Title: Started a blog
Post by bbqmannc on Sep 8th, 2011 at 11:07am
I have been a clusterhead since 1983 and thought I was through them - not so. I am in the middle of a bad cycle right now and decided to document my battles in a blog - has anyone else done this?

Title: Re: Started a blog
Post by vietvet2tours on Sep 8th, 2011 at 12:38pm

bbqmannc wrote on Sep 8th, 2011 at 11:07am:
I have been a clusterhead since 1983 and thought I was through them - not so. I am in the middle of a bad cycle right now and decided to document my battles in a blog - has anyone else done this?

        Nope,  but I do have an M-tank waiting for the next cycle.

           Potter

Title: Re: Started a blog
Post by Guiseppi on Sep 8th, 2011 at 12:53pm
Welcome to the board BBQ! Do you have an effective treatment regimen for your CH? Oxygen? Like Potter, on or off cycle, I have at least an E-Tank rigged up in the garage ready at a moments notice.

I've never blogged but keep a journal in my calendar of attack times, lengths, effects of abortives and prevents. I do it because my memory sucks and I have trouble answering even basic questions from my neuro without the notes!

Let us know what you're currently using, what works and what hasn't. The strength of this board is it's collective knowledge. Maybe we can give you something to take back to your neuro, maybe you'll throw a new tool out to us.

Joe

Title: Re: Started a blog
Post by Melissa on Sep 8th, 2011 at 9:03pm
I've never blogged but kept a journal of my attacks like Guiseppi.  I figure I'm tortured enough when in cycle that I don't need to relive it again writing it out.

But if it helps you, more power to you!


Title: Re: Started a blog
Post by Guiseppi on Sep 9th, 2011 at 8:59am
But if it helps you, more power to you

Yeah...that sums it up best! ;)

Joe

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