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Cluster Headache Help and Support >> Medications, Treatments, Therapies >> O2 25-40lpm http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1318181541 Message started by LasVegas on Oct 9th, 2011 at 1:32pm |
Title: O2 25-40lpm Post by LasVegas on Oct 9th, 2011 at 1:32pm
I can not hyperventilate o2 unless I am at 40 lpm.
Sometimes I use 25 lpm in middle of the night when I am too tired to hyperventilate, but takes longer as compared to 40 lpm hyperventilating. I'm not 100% effective at complete abort with o2, but certainly helps reduce pain level to KIP 1/2. Does anybody have suggestions of how to effectively abort using o2? i.e. inhale nose, exhale mouth? inhale/exhale nose only? inhale/exhale mouth only? sitting, standing, laying down? fast inhale, fast exhale? Any suggestions? I'm halfway thru an M tank in less than 5 days getting hit every 3 to 4 hours, at "peak" f cycle and hopefully ending NOW! :( |
Title: Re: O2 25-40lpm Post by vietvet2tours on Oct 9th, 2011 at 2:35pm LasVegas wrote on Oct 9th, 2011 at 1:32pm:
Relax, sit on a upside down five gallon bucket. The upside down part is important or you'll get a ring-around-the bottom. Breathe In and out and In and out and In and out and In and out. Potter |
Title: Re: O2 25-40lpm Post by LasVegas on Oct 9th, 2011 at 3:25pm
All I have are the orange Homer buckets from Home Depot will that suffice? Sarcasm really not appreciated when sincerely seeking help! >:(
Anybody with serious advice on aborting attacks with high flow o2? :-[ |
Title: Re: O2 25-40lpm Post by Brew on Oct 9th, 2011 at 3:33pm
I failed to see the sarcasm, LV. He was being funny. There's a difference.
Sitting on something that doesn't allow you to lean back forces you sit up straight, giving your lungs the proper position for maximum efficiency. Lighten up, dude. |
Title: Re: O2 25-40lpm Post by LasVegas on Oct 9th, 2011 at 3:42pm
That makes sense Brew, thanks.
Extremely impatient at peak cycle with no tolerance for anything but cut to the chase-bottom line, no offense Potter. |
Title: Re: O2 25-40lpm Post by Racer1_NC on Oct 9th, 2011 at 5:51pm
When limited to 25lpm I tend to full the lungs as full as possible and exhale until I can do no more. I try to match as closely as possible, the above method to the filling of the bag so I do not feel starved for air. It's not as effective as hyperventilating on my demand valve, but it does work and beats hell out of many other options.
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Title: Re: O2 25-40lpm Post by LasVegas on Oct 9th, 2011 at 5:54pm
Thanks Racer, I appreciate your reply
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Title: Re: O2 25-40lpm Post by wimsey1 on Oct 10th, 2011 at 8:05am
I think you need to experiment until you find what works for you, but you do raise a good question about how to inhale and exhale. Not too long ago we had various threads on using ice cold water as a means of moisturizing the O2. I didn't do that, but I did find that using the demand flow valve, or the 25lpm regulator, did after awhile make the O2 rather cold. And I began to wonder if that was also helpful. It seems so. I try to breathe in through both my mouth and nose at the same time, and the cold O2 seems more effective than the warmer O2 I get at first. It might just be me, though. And if I'm not in a desperate panic, I exhale with the mask off. If I am in panic, I breathe as rapidly as I can and the pain sets the pace until I'm in a better position to breathe more deeply and deliberately. The Monster drink also seems to help cut abort times. When I began using O2 I was amazed at how it mitigated the pain, and cut abort times to 15-20 minutes. Then, using a demand flow valve, I found abort times dropping to 3-5 minutes. Getting on the O2 as soon as I think the hit is coming seems also to be critical to abort times. Good luck and God bless. lance
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Title: Re: O2 25-40lpm Post by DennisM1045 on Oct 10th, 2011 at 8:28am
1st I use a mouth piece instead of a mask. Facial hair ya know. Tough to get a good seal. So I'm always breathing in and out of my mouth.
With my m-tank I use 40lpm and sit on the stairs or edge of the bed and rocks back and forth. The guys up top are right, it keeps the rib cage open and allows you to get the lungs completely full. If I'm out and using my e-tanks, the max rate is 25lpm. That is tougher to use and takes longer. Like Bill says, breath slow and deep. Match your breathing rate to the rate of flow. Tough to do in a panic but it works eventually. Lance is also right. Cold O2 works better than warm O2. I Keep my tanks in a cool place. Back it up with an energy dring and you should be good to go. -Dennis- |
Title: Re: O2 25-40lpm Post by Brew on Oct 10th, 2011 at 1:23pm
Keep in mind, too, that the physical process of a compressed gas expanding is a natural cooling process. The O2 exiting a tank that was kept in the hot car will be cooler than the hot car was (by how much, I'm not sure, but it could be calculated).
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Title: Re: O2 25-40lpm Post by LasVegas on Oct 10th, 2011 at 5:38pm
This is all really great wisdom from each of you, thank you all sincerely. ;)
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Title: Re: O2 25-40lpm Post by B.Baer on Oct 10th, 2011 at 9:39pm
I too found it difficult at first and almost gave up on Oxygen, Batch's informative posts and help from some of the folks here made me a believer.
I do think you have to try several methods, mouthpiece, facemask, posture etc. to find what works best for you. Good luck and do keep us posted. Baer |
Title: Re: O2 25-40lpm Post by LasVegas on Oct 11th, 2011 at 12:56am
Glad i'm not the only one impatient, thanks for sharing Baer.
Question that probably all of you will know who use o2 to abort attacks... ...Have you noticed PF time btw attacks are minimal w/ o2 use as compared to Imitrex injections or nasal sprays? I've found Imitrex gives me at least 5 hours of PF time after I inject or use the spray, whereas I often leave the o2 with a KIP 1-2 (tolerable) and then find myself getting hit again anywhere btw 30 minutes and 3 hours maximum. Perhaps it is the fact I have not been using it properly, perhaps there is some truth to minimal PF time btw attacks using o2 as compared to trex. I realize we all want to avoid meds if something natural such as o2 is available, just sharing my personal observation and seeking input from those experienced. Thoughts? |
Title: Re: O2 25-40lpm Post by Guiseppi on Oct 11th, 2011 at 9:21am
I have the same problem, I would re attack within 10-20 minutes of shutting off the 02. For many years, I was popping an oral cafergot when I started the oxygen. The 02 would abort the attack, the cafergot would buy me up to 12 hours pain free time. Cafergot is an old school CH med.
A couple cycles ago, at the suggestion of some on the board, I replaced the cafergot with a sugar free red bull. When my wifey hears me fire off the oxygen tank, she pours me one "on the rocks!" I take swallows of the red bull between breaths on the oxygen. It seems to speed the abort, and pushes off the re attack by several hours. Might be worth a shot. Still hoping the pred burst kills the cycle for you, hang in there, high cycle sucks. Joe |
Title: Re: O2 25-40lpm Post by LasVegas on Oct 12th, 2011 at 12:07am
Wow, yes Batch, that helped tremendously, thanks for sharing...now go write a book ;)
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Title: Re: O2 25-40lpm Post by helplessnow on Oct 13th, 2011 at 6:58pm
Yep, I agree...go write. I would get a few copies. Lay 'em out and round hoping that "someone" might pick one up and take a look inside! :)
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Title: Re: O2 25-40lpm Post by Guiseppi on Oct 13th, 2011 at 8:37pm
There's a reason we call him our "Oxygen Guru!" [smiley=bow.gif] [smiley=bow.gif]
Joe |
Title: Re: O2 25-40lpm Post by Mike NZ on Oct 13th, 2011 at 10:01pm Beth E wrote on Oct 13th, 2011 at 6:58pm:
Try the reverse psychology approach. Let him see you reading them, but always clear them away. He won't be able to help himself in wanting to read them! This method works great with cats. |
Title: Re: O2 25-40lpm Post by Chad on Oct 13th, 2011 at 10:30pm
All I can say is absorb everything Batch says. He has been my savior through the years. I've been in remission for roughly 1.5 years and when the beast comes back, I have no worries because Batches techniques using O2 gives me my life back while in cycle. Otherwise, I bust and exercise to keep the beast at bay. All the best!
Chad |
Title: Re: O2 25-40lpm Post by Batch on Oct 14th, 2011 at 12:44am
Thank all of you for the kind words... Now I need to go down in the basement, pry open my cruise box, dust off my flight helmet that I haven't worn for over 30 years, and strap it on real tight to prevent my head from swelling...
All kidding aside, the E-Book - A Fighter Pilot's Experience With Cluster Headaches and How to Treat Them with Oxygen Therapy at Flow Rates That Support Hyperventilation... (not its real title) with photos and video links illustrating how to use it properly was almost complete... until the unexpected happened... and I stumbled onto the anti-inflammatory regimen... The anti-inflammatory regimen has taken off and it's gaining speed as a very promising cluster headache preventative... Not only have I gone pain free on this regimen, and remained that way for over a year, but so have many other CH'ers here at CH.com and even ClusterBusters... I have CH'ers contacting me from all over the world sharing their experience with this regimen... Talk about a head trip... and none of this would have been possible without this site and support from all of you. The potential for this regimen to become a game changer in the standards of care in treating cluster headaches is becoming so real, it deserves the same disciplined approach we gave to oxygen therapy at flow rates that support hyperventilation. In short, we need to gather the medical evidence to substantiate proof of its effectiveness. This includes a treatment protocol with lab tests, optimum dosing, possible comorbidities and what to expect. If you follow where I'm going... you'll recognize a clinical study is the only way to gather the required medical evidence with respect to proof of safety and effectiveness needed to keep the Nay-Sayers away and attract the attention of key neurologists and headache specialists experienced in treating patients with cluster headache. All that takes time and funding... At this point... the ball is already rolling... Once we have the evidence in hand, the E-Book will go on line so you can download or send the link to other CH'ers in need. In the mean time, you'll continue to see my posts on this topic encouraging CH'ers to see their doctors and neurologists and to ask for the 25-Hydroxyvitamin D, a.k.a. 25(OH)D lab test for this serum level metabolite of vitamin D3... and when this lab test comes back deficient at ≤100 nmol/L, (40 ng/mL)... to start the anti-inflammatory regimen with vitamin D3 therapy. All for now... and thank you again for the kind words... I'll keep you posted. Take care, V/R, Batch |
Title: Re: O2 25-40lpm Post by ttnolan on Oct 14th, 2011 at 12:53pm
Since my attacks are longer than most, I have seen the re-attack phenomenon well. The rush I get before each attack feels like a chemical releasing in my body... then smack! As long as that mechanism is active, I can only blow a hole in the pain with O2...till the mechanism starts to sputter, then I end it completely. I was gonna say stay on the O2 a little longer to open up that PF window.
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