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Daily Chat >> General Posts >> You might think i went away....... http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1318461779 Message started by Bonnie lee on Oct 12th, 2011 at 7:22pm |
Title: You might think i went away....... Post by Bonnie lee on Oct 12th, 2011 at 7:22pm
i have been lucky enough not to have a headache for a month. But, it seems that the devil wants me to make sure i know he is still here. I get pain behind my right eye that last from 30 seconds to a minute and then goes away. This is what has been happening for the past week. It hasnt gone into a full blown headache. I keep dreading and thinking its going to come but it doesnt. Has anybody ever had this happen?
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Title: Re: You might think i went away....... Post by Barry_T_Coles on Oct 12th, 2011 at 7:30pm
Hi Bonnie
Yep; i,ll get one of those a couple of times a week, not always in the same place, jaw, top of the left side, above the ear, anywhere it feels like it wants to just let me know its still around. Cheers Barry |
Title: Re: You might think i went away....... Post by seaworthy on Oct 12th, 2011 at 7:31pm
Constantly. Sometimes it develops into a cycle, sometimes it just goes away.
Go figure. |
Title: Re: You might think i went away....... Post by Bonnie lee on Oct 12th, 2011 at 7:38pm
I thought maybe i was going nuts. But i am not alone in this. That helps. okay have another one. has anybody ever have one come on after having sex.? That has happened to me twice. Bad, Bad pain!!!!!! Lasted for about a half an hour after.
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Title: Re: You might think i went away....... Post by robert51 on Oct 12th, 2011 at 8:56pm
i often get signs that it is comming,like mild pressure builds on the side of my head, my ears start ringing louder and my eye starts to close....then it fades. scares me to death.
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Title: Re: You might think i went away....... Post by Mike NZ on Oct 12th, 2011 at 10:53pm
I get these too, it's almost as if the beast is teasing with what is like the start of a CH but it never quite happens.
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Title: Re: You might think i went away....... Post by Bonnie lee on Oct 14th, 2011 at 10:24am
Well it finally went into a full blown headache yesterday. Hurt so bad I was hyperventilating and throwing up. Oxygen and sumatriptan nasal spray and ice packs helped but it lasted for and hour and a half. Then i slept the rest of the day. Hated calling into work. Am back at work today but I am so tired and I still haven pain behind my right eye. It's tolerable. Just wanna go home and sleep but I can't. Have a car payment to make.
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Title: Re: You might think i went away....... Post by Jeannie on Oct 14th, 2011 at 11:02am
Sorry you got hit so badly. How are you using your oxygen?
I've been having those "mini" CH's too. They last sometimes for 3 minutes or so, just long enough for me to think that I should head to my tank.... then it just goes away. Strange. Hope you get some relief soon. |
Title: Re: You might think i went away....... Post by Bonnie lee on Oct 14th, 2011 at 1:17pm
Thanks Jeannie. Still at work but want so badly to go home. Head is still hurting. 3 more hours to go........
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Title: Re: You might think i went away....... Post by Bonnie lee on Oct 14th, 2011 at 1:18pm
Oh, 10 liters nonrebreather. For 20 minutes.
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Title: Re: You might think i went away....... Post by Jeannie on Oct 14th, 2011 at 2:14pm
Please look into getting a higher flow rate and and O2ptimask. It will likely make a world of difference in how effective your oxygen is. I can be PF in around 5 minutes using my high flow welder's regulator.
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Title: Re: You might think i went away....... Post by Guiseppi on Oct 14th, 2011 at 2:14pm
If it's possible, triple that flow rate. Most have found a direct co-relationship between rate of flow, and speed of abort. My aborts run 6-8 minutes using a demand valve. Many who said oxygen didn't work at all at 10-15 LPM, found aborts in less then 10 minutes by ratcheting the flow up into the 25-40 LPM rate.
I stole the following from a Batch Post...his posts are very long and sometimes technical, read them anyways, ;D He is our board guru in the oxygen world: I also prefer breathing straight from the green "T" manifold on the O2PTIMASK™ or the 22 mm coupler on the demand valve. This provides the least flow resistance and minimizes re-breathing the residual volume of exhaled breath in the "T" manifold that contains highest concentration of CO2... This is important as CO2 stimulates vasodilation and slight elevation in arterial CO2 levels can occur even when breathing 100% oxygen at 15 liters/minute due to inadequate lung ventilation. That will result in longer abort times as CO2 is a more powerful vasodilator than 100% oxygen is as a vasoconstrictor. The most effective method of pumping CO2 from the lungs is hyperventilation and the best way to do this is by using the breathing technique that starts with exhaling at forced vital capacity tidal volumes. You do this by exhaling forcefully with jaw dropped until it feels like the lungs are empty... They're not... Without hesitating, do an abdominal crunch like in doing sit-ups and squeeze the chest chest muscles then hold the squeeze until your exhaled breath makes a wheezing sound for a couple seconds. This will squeeze out another half to a full liter of exhaled breath. As this last volume of breath you exhale, the end tidal flow, contains the highest concentration of CO2, you'll be pumping CO2 from your lungs as effectively as possible. After a couple seconds of wheezing, inhale rapidly without any delay until it feels like your lungs can't possibly hold any more then repeat the forced exhalation without delay. Keep repeating this sequence as rapidly as possible until the abort. As you're ventilating the lungs more than needed with this procedure and breathing technique... you're hyperventilating. Try this with room air. If you're executing this procedure and breathing technique properly you should start feeling the symptoms of paresthesia after three to four complete breaths. The symptoms of paresthesia are an important indicator that you're hyperventilating effectively. They include a very slight tingling or prickling of the fingertips, lips, or back of the neck. You'll also experience a slight dizziness or feel a little woozy. As strange as this may sound these are good symptoms and the best indication you'll get the fastest abort possible. Remember what they feel like. If you don't experience them during oxygen therapy... you're not breathing correctly... and your abort will take longer. This method of oxygen therapy is hard work. You're forcing yourself to breathe at a faster rate and at a greater tidal volume of breath than your body's normal respiratory control mechanism is signaling. If you're doing it properly, you will get tired. Accordingly, a high-flow oxygen regulator good for flow rates up to 40 liters/minute or a demand valve make this method of oxygen therapy possible. Tips and Fine Tuning... I've found that exhaling away from the green "T" manifold on the O2PTIMASK™ in stead of through it and out the exhaust flapper valve eliminates re-breathing the small volume of exhaled breath in the "T" manifold highest in CO2. I press the open end of the "T" manifold lightly against my lower lip while exhaling to block any loss of oxygen while the reservoir bag fills. Starting oxygen therapy early at the first sign of an approaching attack is best... That includes shadows... A shadow is just another cluster headache. If the CH wakes you from sleep, get on the oxygen ASAP!... You're already behind the problem and any delay will only add more time to the abort. Data we collected during a study of this method of oxygen therapy we conducted 2007-2008 revealed a simple fact many of you already know... After analyzing the results of 366 aborts with this method of oxygen therapy, we found the higher the CH pain level, the longer the abort times. We also found the relationship between abort times and CH pain levels was linear up to pain level 6 on the 10-Point headache pain scale. In other words a KIP-3 took an average of 3 minutes to abort, a KIP-4, 4 minutes and so on up to KIP-6. At pain levels above KIP 6, the relationship between pain levels and abort times becomes exponential. For example, a KIP-7 took an average of 8 minutes to abort, a KIP-8 took 9.5 minutes, and a KIP-9 took an average of 12 minutes. Keeping the oxygen cylinders stored in a cool location helps as well. This is also an area where the demand valve has an advantage... The rapid expansion of compressed oxygen as it expands from 120 psi (8 BAR) to ambient that takes place within a demand valve cools the oxygen flow considerably. I've measured the temperature of the oxygen cylinder and then the temperature of the oxygen coming from the demand valve with the purge button pressed and came up with the following. The purge valve is rated at 40 liters/minute... The temperature of the oxygen cylinder was 70º F and the temperature of the oxygen coming from the demand valve was 42º F. I also measured the temperature of the oxygen coming from my O2PTIMASK™ at a flow rate of 40 liters/minute selected on the Flotec InGage™ oxygen regulator and it was 65º F. This resulting temperature is due to the regulator on the oxygen cylinder absorbing some of the chill from the expanding oxygen and thermal gain as the oxygen travels through the oxygen tubing. Clearly the shorter the tubing down to 3 meters, the better. I warned you it would be long, and that's only half his original post! But you begin to see how critical the higher flow rate is to speed the abort and help you dump the other treatments for aborts. Joe |
Title: Re: You might think i went away....... Post by Bonnie lee on Oct 14th, 2011 at 8:29pm
How do you get a welders regulator? i saw the mask they are selling here on the site. Is that a good one? Thanks for the extra info. At this point the oxygen the medical company is giving me only goes up to 15 liters. I will ask if they have anything that goes any higher but i know they have to go by what my doc prescribed.
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Title: Re: You might think i went away....... Post by Guiseppi on Oct 15th, 2011 at 12:03am
My wife found a medical regulator on E-Bay, fits my E-Tanks, goes up to 40 LPM, only $20. E-Bay, Amazon.Com etc.
For a welding outfit, just go to a welding shop, you have to pay out of pocket. Do NOT tell them it's for personal use, if they ask, tell them you raise live bait and need to oxygenate the bait wells! ;) Joe |
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