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http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Daily Chat >> General Posts >> Amounts of Cluster research vs. Tourett's research http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1318872745 Message started by writer on Oct 17^th, 2011 at 1:32pm

Title: Amounts of Cluster research vs. Tourett's research
Post by writer on Oct 17^th, 2011 at 1:32pm

A cluster sufferer of 40 years, I find it interesting but sad that an estimated 200,000 Americans suffer from Tourette's syndrome, for which there is extensive, funded, ongoing government research-- while an estimated 1 million Americans suffer from cluster, for which there is little to no ongoing government research.

When will we gather our strength and mobilize to get the cluster research that is needed?

Writer

Title: Re: Amounts of Cluster research vs. Tourett's research
Post by Linda_Howell on Oct 17^th, 2011 at 5:39pm

Quote:

Tourette's syndrome, for which there is extensive, funded, ongoing government research-

Can you produce a link to that effect so I (we) can read that?

We here, have always known that research and funding for CH will never take a high priority with scientists because of it's rarity and the absence of money for them to make on it. I don't know a lot about Tourettes sydrome so I would really like to read that ongoing Gov. research and funding for it.

Linda

Title: Re: Amounts of Cluster research vs. Tourett's research
Post by writer on Oct 18^th, 2011 at 12:40am

Hi, Linda--I don't have the link handy, but if you Google Tourette's Syndrome, you'll get the info with no problem-- Writer

Title: Re: Amounts of Cluster research vs. Tourett's research
Post by seaworthy on Oct 18^th, 2011 at 7:12am

Quote:

while an estimated 1 million Americans suffer from cluster

Where did that estimate come from?

Title: Re: Amounts of Cluster research vs. Tourett's research
Post by deltadarlin on Oct 18^th, 2011 at 8:01am

I googled Tourettes' syndrome and the only thing I found was an $800,000.00 grant awarded in 2010.

Title: Re: Amounts of Cluster research vs. Tourett's research
Post by writer on Oct 18^th, 2011 at 1:22pm

Linda et al,

For Tourette info, see the Natl. Institute of Neurologic Disorders and Stroke, at
START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

END PRINTPAGE;

Click on "What Research Is Being Done."

Writer

Title: Re: Amounts of Cluster research vs. Tourett's research
Post by vietvet2tours on Oct 18^th, 2011 at 1:25pm

I DISAGREE my son-in-law has Tourettes and I wouldn't trade him ever. Ya shoulda picked the clap.

Potter

Title: Re: Amounts of Cluster research vs. Tourett's research
Post by Kevin_M on Oct 18^th, 2011 at 3:21pm

seaworthy wrote on Oct 18^th, 2011 at 7:12am:

Quote:

while an estimated 1 million Americans suffer from cluster

Where did that estimate come from?

U.S. 312,447,583 (population)
19:13 UTC (EST+5) Oct 18, 2011

Yeah, 1 in 312 seems high.