The last few HA's i've had i've noticed that they start at the edge of my eyebrow (closest to the bridge of my nose) then slowly but surely they move across my forehead to the temple, then to the bony area behind my ear, where they stay until they dissapate.  The further across my head they move the worse they hurt, until they reach my temple where the pain is the worst.  It's also unfortunately where they stay the longest.  Does anyone else have this?

Changes in the symptoms/experience of Cluster is rather common especially during the early period of a newly developed case. What that means in practice? Can range fromweeks to years before a rather stable picture emerges.

There appears to be no medical significance of these changes which you can count on as predicting future events.

Since the trigeminal nerve is involved in CHs, it isn't surprising you are feeling pain at any number of locations. I agree, the pain in the temple is the worst. I found this pain to be the first conquered by verapamil, with the "normal" CH behind the eyeball pain yielding next. While I don't think anything was moving at all, it did feel that way. You are not alone. Blessings. lance

My worst pain is when it settles in the upper jaw. I've mangled two top molars grinding my teeth in the early days. :(

Joe

For me...the worst part is in the eye  :'( :'( :'(

Mine start just above my eyebrow, move behind my eye then travel to my temple, teeth, right below my ear then jawbone.  The worst for me is if it settle behind my eye or in my temple >:(

Mine always start with a slight pain in my nose then the temple, sinus area, eye, area of my ear finally followed by upper/lower jaw in the most severe attacks. I most say i feel the greatest pain in my eye but the temple pain is a very close second.

Really interesting thread.

What I find really interesting about this whole board, actually, is how the 'experts' define certain things about cluster headaches, and then I come on here and find out that in reality, they are completely different. This is one example. I was told that, and/or read, that clusters DO NOT move during attacks, but different attacks can happen in different areas.

Perhaps this is more in that they don't move from side-to-side, I'll have to dig up the information again. And maybe that is because the attack comes from one side of the nerve, and not both sides, or doesn't switch sides, but can move along the nerve. Don't know.

But too do have the attack 'come in' as it were. I can feel it 'enter' me, is the best way to describe it. It is like a ping-pong ball slowly entering my temple and moving towards my eyeball, becoming smaller and more intense as it goes, until it is unbearable. And like mentioned before, when it gets to the bridge above my eyeball is the worst place, especially in my left eye socket. Even just thinking about it...

I think you probably read that CHs are "ipsilateral," or one sided. And they generally present only to one side. But there are exceptions to that rule, and some here have said their CHs have switched sides...although I'm not sure if they have done so in the same hit or even the same cycle. We are, though as you suggest, rule breakers. Naughty us. Blessings. lance

Renee, interesting description. It definitely feels like it is moving or crawling through there sometimes.

Mine don't switch sides but I sometimes also get hit on the left, and it may overlap with one on the right but is a separate heachache.

wimsey1 wrote on Nov 8^th, 2011 at 8:04am:

I think you probably read that CHs are "ipsilateral," or one sided. And they generally present only to one side. But there are exceptions to that rule, and some here have said their CHs have switched sides...although I'm not sure if they have done so in the same hit or even the same cycle. We are, though as you suggest, rule breakers. Naughty us. Blessings. lance

I mainly get hit on the left but every few headaches I'll get hit on the right. Usually the attacks on the right are slightly less painful and much less frequent. This is my 3rd cycle and the 1st I had them on right but it's also the first time they have lasted longer than two weeks. I'm approaching one month now.