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http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Cluster Headache Help and Support >> Getting to Know Ya >> they're back !! -After 7 years free I'm 2 weeks in http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1320277753 Message started by bangmyhead on Nov 2^nd, 2011 at 7:49pm

Title: they're back !! -After 7 years free I'm 2 weeks in
Post by bangmyhead on Nov 2^nd, 2011 at 7:49pm

Hi All,

Last cycle I signed up with the same or similar handle. Anyway....

What happened to Generics - Imitrex C0-pay used to be 8$ for the non-generic per refill and I was able to bundle 6m 2 dose Boxes.

My Wife picked up the script today and paid a 150$ copay under BC&BS?? That s**ks. Add 360 Veraparmil daily _ a medrol dose pack.

My Neurologist would not prescribe anything until he saw me and oh that will be 10 days after I called him. He got pissed at me for taking 7 year old scripts but I doubht he gets clusters.

4 hard knocks last night - got to look into the O2. Last time the flow rate and mask were all wrong.

I also just dragged out a florescent fixture with 2 full spectrum bulbs - Have not seem much about that approach.

Anyone have a Neuro recommendation in Mass that specializes in cluster?

More later -

Steve

Title: Re: they're back !! -After 7 years free I'm 2 weeks in
Post by LasVegas on Nov 2^nd, 2011 at 8:00pm

Steve,
7 yrs is nice remission. Sorry to read you are bac, but not alone. I was in a 6 yr remission and now i'm in high cycle week 12.

Many new treatments in the past 7 yrs, lots to read, and still a very supportive bunch of Clusterheads here in ClusterVille. ;)

Below is a list from OUCH website of recommended MASS doctors for CH's, hope this helps you:

Massachusetts
Boston:
Dr. Elizabeth W. Loder Brigham and Women's/Faulkner Neurology ␣
Dr. James Arthur Morrill (PCP) Massachusetts General Hospital
Lawrence:
Dr. Andreas P. Schoeck New England Neurological Associates
Lexington:
Dr. Peter J. Zuromskis Beth Israel Deaconess Healthcare- Medical Care Center
North Easton:
Dr. Albert Ackil
Norwood:
Dr. Bryan Lieberman
Weymouth:
Dr. Paul S. Blachman

Title: Re: they're back !! -After 7 years free I'm 2 weeks in
Post by Linda_Howell on Nov 2^nd, 2011 at 10:41pm

Quote:

Imitrex C0-pay used to be 8$ for the non-generic per refill and I was able to bundle 6m 2 dose Boxes.

How long ago was that? Times they are a-changing for sure. Imitrex is NOT cheap...if it ever was even with Ins. Even 7 yrs. ago it was almost over the top.

You have one post. Have you read around here at all? You will find a wealth of information and support here but you really need to start reading. Start with the links to the left of here. Read all about oxygen. Take the quiz. Go on to the different forums here and read what strikes you as important. When you're done with that read some more. ;)

We're here to support you as well as answer questions....but first you should familiarize yourself with everything here. In the times when your NOT getting hit of course.

Linda

Title: Re: they're back !! -After 7 years free I'm 2 weeks in
Post by bangmyhead on Nov 3^rd, 2011 at 6:00am

Hi -

I am going to try to get in to see Dr Loder. Dr Leiberman retired .
Thanks

Title: Re: they're back !! -After 7 years free I'm 2 weeks in
Post by wimsey1 on Nov 3^rd, 2011 at 7:45am

I hear Loder is good, and I think she's part of the John Graham headache clinic there at Faulkner. I see Dr Paul Rizzoli, the clinic head. They're all connected to the Harvard Medical School. I found their understanding and openness to just about anything I needed, and their knowledge of CHs, to be quite refreshing. Still, it would help if you went in with a list of meds you have and have not tried, along with a plea for O2, and the effects of the past interventions. The more you self promote for help, the better. Good luck, let us know how you do, and God bless. lance