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Cluster Headache Help and Support >> Cluster Headache Specific >> Mini CH?
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Message started by Jeannie on Nov 7th, 2011 at 11:18am

Title: Mini CH?
Post by Jeannie on Nov 7th, 2011 at 11:18am
It's been since March that I've been in cycle.  It's not been too bad lately, though.  I can get a few weeks in PF.   I just can't seem to get to that 30 day mark.   

Lately, I've been  having very intense, but short, hits.  I guess that's what they are.  Out of the blue, I will have what feels like a full blown CH.  Sometimes just in my eye and nose, other times just my lower jaw and all of the teeth on my right side.  It comes on so fast and hard but then goes away within a few minutes.  They are different than the "ice pick" pains I sometimes have.  I usually use an energy drinks and they'll stop of a while. 

I was curious if anyone else has ever experienced this? 

PF wishes,

Jeannie

Title: Re: Mini CH?
Post by Barry_T_Coles on Nov 7th, 2011 at 6:29pm
Hi Jeannie

What you describe has a familiar ring; I get the same mini hits that usually only last a few seconds but are a reminder that its still there ready to give a bashing when ever it pleases.

If there's one consolation these mini hits have never turned into the biggie & I can live with that; this has been happening since I went chronic back in 2004, when I have gone into a high cycle these stop & don't come back until I'm back in the low.

Cheers
Barry

Title: Re: Mini CH?
Post by Batch on Nov 7th, 2011 at 6:44pm
SUNCT?

Title: Re: Mini CH?
Post by anthony g on Nov 7th, 2011 at 7:19pm

Barry_T_Coles wrote on Nov 7th, 2011 at 6:29pm:
Hi Jeannie


What you describe has a familiar ring; I get the same mini hits that usually only last a few seconds but are a reminder that its still there ready to give a bashing when ever it pleases.

If there's one consolation these mini hits have never turned into the biggie & I can live with that; this has been happening since I went chronic back in 2004, when I have gone into a high cycle these stop & don't come back until I'm back in the low.

Cheers
Barry


same thing with me. the ini hits shadows have been happening since my last cycle ended back the end of april 2010. I have not had a "clear head" since that cycle which was my second cycle ever in 11 yrs! It just never seemed o go away just a constant reminder to stay on guard! :-/
Drives me mad kinda like post traumatic stress disorder knowing what it "could be" if the shadows become full blown.
Anthony

Title: Re: Mini CH?
Post by anthony g on Nov 7th, 2011 at 7:21pm
Batch!
what is SUNCT my friend?

Title: Re: Mini CH?
Post by jon019 on Nov 7th, 2011 at 7:26pm
Hi Jeannie,

About 7 years ago...for about 3-4 cycles...my hits became 0-10-0 in less than 5 minutes. At first it was the scariest part of my ch career. I was sure a bursting aneuyrism.

Once I got "used" to them I actually "preferred" these short screamers to the typical 90-120 min dancers. Have never had similar since...

Best,

Jon

Title: Re: Mini CH?
Post by Brew on Nov 7th, 2011 at 8:44pm

anthony g wrote on Nov 7th, 2011 at 7:21pm:
Batch!
what is SUNCT my friend?

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Title: Re: Mini CH?
Post by Barry_T_Coles on Nov 7th, 2011 at 9:47pm

Brew wrote on Nov 7th, 2011 at 8:44pm:
[quote author=53585501015C4B51320 link=1320682719/4#4 date=1320711661]Batch!
what is SUNCT my friend?

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Thanks Brew
Just another to add to the list: CH,RLS,EHS,Insomnia & PLMD, what next, ingrown toenail of the nostril ? ::)

Cheers
Barry

Title: Re: Mini CH?
Post by Jeannie on Nov 8th, 2011 at 9:57am
Thanks for the responses.   Though I am never happy that others experience CH, it is comforting to know that I'm not the only one who experiences strange changes.  I definitely prefer brief daytime hits to the longer nighttime ones. 

Title: Re: Mini CH?
Post by Batch on Nov 8th, 2011 at 10:08am
Barry,

Sorry to be so slow in responding...  'Have been playing Paul Bunyan (a lumberjack/logger) for the last few days trying to get all the fire wood cut, split, and stacked in the woodshed I can before the weather turns.

Bill is spot on as usual with the answer to your question about SUNCT.

Jeannie,  I'm not a doctor, but I've every reason to suspect your headaches will respond to the anti-inflammatory regimen if you'll give it a try. 

If you decide you want to try this regimen, please see your primary care physician or neurologist first and ask for the 25-Hydroxyvitamin D, a.k.a. 25(OH)D lab test.  I suspect you are vitamin D3 deficient and your results will come back at or below 100 nmol/L, (40 ng/mL) as have all the other CH'ers who have gone in for this lab with active CH.

Take care and please keep us posted however you proceed.

V/R, Batch

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