When my husband is in the middle of a full blown cluster attack sometime we need to visit the ER. I am wondering if anyone else has experienced the nightmares of ER??? "It's a headache, other people are sick" or "follow the blue line" which turns into two miles of terror. I am doing an awarness campaign about Clusters and other people's experiences would help me a great deal.

Sorry to read your husband is suffering. :-[ 

You are commended for being so supportive by posting your concern and interest in helping him.  Not all of us are so lucky to have a supporter and under the circumstances, he is lucky to have YOU ;)

You have come to the best resource available worldwide and we will offer all the assistance we can to help your husband AND YOU get through this.

Years ago, on many occasions, what I have experienced with going to the ER for CH's is that I have to tell them what I need and how to administer, after long torturous wait times, just to be frowned upon because I shattered their ego because of their ignorance on CH's of my educating the "medical professionals"....that was then.

This is now....anything that can be offered in ER, I can do it better myself at home!

Hope for the best and prepare for the worst!

Considering this is your 1st posting, please share your husband's CH background...
where you live,

if he has been properly diagnosed with CH's, 
does he have medical insurance,

is he currently under care from a headache specialist/neurologist,

what preventative and abortive treatments he is currently using that obviously are not effective, etc., etc.

We are all here to help support one another and understand the pain and frustration of CH's.

Sorry you are here, but Welcome to Clusterville ;)

As the one with the CH, I can tell you that ER's are pure unadulterated hell and I dont go until I absolutely cant stand it anymore....and even then 95% of the time it ends up being a lost cause.....

Unless you know exactly what you are going there to get and know they have it, an ER visit can be a total waste of time. By the time you are even seen the attack may be over or untreatable at that point.

Don

ER can be a nightmare. A few years ago I fell in a ditch and got a concussion and had to be taken to ER in an ambulance. On the way I got hit with a CH. I demanded O2 which the nice ambulance man gave me and I was doing better by the time we reached ER.

Then they took the O2 away (my head was strapped down - not good). I told the damn ER nurse I needed the O2 and my meds which were in my purse (out of my reach) and he said he needed to ask a "few" questions first.. "Are you pregnant?" HELL, I'm 65 years old! Do I look pregnant?

By this time I had my hands around his neck shaking the living daylights out of him and "explaining" what CH was in a very loud voice. A doctor (who actually knew what CH was) happened by and asked WHERE my meds were and told the nurse to unstrap me (and explained to me that I MUST let go of his throat before he could unstrap me).

I haven't been back to ER since then (don't think I'd be welcome), but most ER's don't have a f'n clue what to do for CH -

Let us know about your husband and we'll help all we can. There's not a one of us who haven't been there - done that and we do understand what he's going thru.

And he IS lucky to have a supporter in you. some of us have to go thru this alone. :-*