New CH.com Forum
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl
Cluster Headache Help and Support >> Cluster Headache Specific >> Need some help and support for a friend...
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1321082964

Message started by OrlaneBBB on Nov 12th, 2011 at 2:29am

Title: Need some help and support for a friend...
Post by OrlaneBBB on Nov 12th, 2011 at 2:29am
Hi everybody,

I'm new on this site and has registered not for me but for someone I met on FB a few weeks ago.
He suffers from CH and was diagnozised two months ago.

He told me about it but... because I was a stranger, behind a screen, and he was feeling the need to tell someone about all this. Maybe I was there at the good time, even if sometimes he tells me he is regretting to have told someone.
Cause he hates himself when suffering like that.

He has no one in his daily life.
He is German and I live in France, so that I'm just useless behind my screen (almost when he needs to keep away from screens because of a crisis).

I try to understand him, reading, talking with him.
But I'm not the person he wanted to be understood by...

So I thought of you.
Cause yesterday, as I was fearing because he had daily serious crisis since a week, he was so exhausted he had really bad thoughts.
You could see it on his blog but apparently I can't give you it...
(alright, I give you the adress in different parts)
http
:
//
cursedmem0ries.
tumblr.
com/


He needs support.
He needs to feel he is not alone.
He needs to share with people passing through this too.

I love him. He is my friend cause he really is one of the best guys I have never met.
Life is unfair, making people suffering the way you do!
But I still wanna show him that life is important and can offer him great moments to live again.

So...
PLEASE, could someone (from Germany or not) just have a look at his blog and try to contact him ???

I gave him your link, but I don't know if he would do the first step. Not this week I guess :(

Thank you in advance for him.
Thank you and wishing the best for all of you!






Title: Re: Need some help and support for a friend...
Post by emmett24 on Nov 12th, 2011 at 4:45am
I tried to post a question to him on that website but it keeps saying not to post links and there is no link. I have suffered with Cluster Headaches 4 1/2 years and I am Chronic so I would be of help to him and I want to help, so either ask him to contact me at emmett24@hotmail or START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

Alternatively if he doesnt want to make the first move then give me his contact details and I will contact him

Title: Re: Need some help and support for a friend...
Post by OrlaneBBB on Nov 12th, 2011 at 5:44am
Oh thank you!
I'm letting him know your response.

Keep in touch!
Thanks for him.

Title: Re: Need some help and support for a friend...
Post by Lenny on Nov 12th, 2011 at 11:59am

OrlaneBBB wrote on Nov 12th, 2011 at 2:29am:
I gave him your link, but I don't know if he would do the first step. Not this week I guess :(

Thank you in advance for him.
Thank you and wishing the best for all of you!


That is very kind of you of trying to get help for your friend,especially someone that you only know from the Internet...YOU are a special person for that alone...

You can force the horse to the water,but you CANNOT force the horse to drink the water

You did your part...if he really wants help (he has the link...thanks to you) that can change his life 360 degrees (as far as living and dealing with this disorder)

only time will tell,to see how thirsty he is  ;) ;) ;).....Lenny



Title: Re: Need some help and support for a friend...
Post by Bob Johnson on Nov 12th, 2011 at 2:40pm
Links to two German support groups:

Clusterkopfschmerz-Selbsthilfe-Gruppen (CSG) e.V.

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

====
OUCH Germany

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE


Title: Re: Need some help and support for a friend...
Post by OrlaneBBB on Nov 12th, 2011 at 3:12pm
Thank you Lenny... for him.
I just want him to feel better so... it is nothing special, just human I guess ;)

And as he is wilder than a horse (private joke with him), I totally understand what your citation means !!

Let's the time doing its job...

Have a nice day/week/month/year/... life!

Title: Re: Need some help and support for a friend...
Post by OrlaneBBB on Nov 12th, 2011 at 3:14pm
Oh!! Thank You Bob Johnson for those links!!!

It would be so much easier for him to speak in his native language... great!

Wish the best for you!! :)

Title: Re: Need some help and support for a friend...
Post by Brew on Nov 12th, 2011 at 8:36pm

Quote:
...change his life 360 degrees...

Or 180 degrees. ;)

New CH.com Forum » Powered by YaBB 2.4!
YaBB © 2000-2009. All Rights Reserved.