New CH.com Forum
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl
Cluster Headache Help and Support >> Getting to Know Ya >> New poster here
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1321386062

Message started by Stamperben on Nov 15th, 2011 at 2:41pm

Title: New poster here
Post by Stamperben on Nov 15th, 2011 at 2:41pm
Granted, that's not too great an opening, but truth is wiser than fiction.

My name is Ben. I'm chronic and I have suffered the beast since at least 2002 when I was 48. Finally went to the PCP about five years ago after diagnosing myself and arming myself with info from this site regarding oxygen, verapimil, lithium and imatrex. I think he saw that I knew better than he did and that I wasn't a junkie looking for a medical high. (One of the reasons why I will NOT go to the ER in the midst of an attack.)

To say that this place is a Godsend is understatement. Like I said, I found this place years ago and looked around some, finding what I needed to know. A few days ago I registered and finally made my first post. Even though I'm chronic the intensity will fluctuate and I just went through a horrible few days. Every once in a while the O2 and imatrex will not knock the beast back and I will basically loose it, physically beating myself up and screaming and crying. Y'all know the routine. I try not to do that because of my wife and grand daughter who we are raising, it has freaked them out in the past. but sometimes you just can't help it. Anyway, back to what I'm wanting to say... My wife got on here since I now had it bookmarked and in her searching for answers she has come away with a much fuller realization of what it is we go through when we are hit by this devil. She now knows more fully what it is I go through, and that I, and she and our girl, are not alone. the wealth of knowledge and the personal experiences of us ClusterHeads is to be found nowhere else.

I am grateful and thankful for first finding this place long ago, and for now belonging to a community of folks who care so deeply for one another. My dear wife's name is Lynn and her handle is Camperlynne if you want to give her a shoutout.

May we all be blessed with pain free days, weeks, months and years. (Yes, I can dream can't I? ;))

Title: Re: New poster here
Post by QnHeartMM on Nov 15th, 2011 at 2:51pm
Ben, so glad you and your wife found this site and that it's been helpful. As you can see in this forum, we get new people every day that think they've tried it all...and then they find out there are things that help! Sorry you're having a rough patch, hope it settles down.

In the meds section search on the  "123 days painfree and I think I know why" thread. Perhaps adding daily supplements will help you too. We're hopeful it's knocked CH out of my  hubby's system!

Title: Re: New poster here
Post by Stamperben on Nov 15th, 2011 at 3:43pm

QnHeartMM wrote on Nov 15th, 2011 at 2:51pm:
Ben, so glad you and your wife found this site and that it's been helpful. As you can see in this forum, we get new people every day that think they've tried it all...and then they find out there are things that help! Sorry you're having a rough patch, hope it settles down.

In the meds section search on the  "123 days painfree and I think I know why" thread. Perhaps adding daily supplements will help you too. We're hopeful it's knocked CH out of my  hubby's system!

Batch(?) PMed both she and I with the info. Hoping to go by the health store this evening. There is hope with the help of y'all. Thank you.

Title: Re: New poster here
Post by Guiseppi on Nov 15th, 2011 at 4:48pm
Glad you stuck your head in Ben! Batch's posts and his e-mails tend to be long and technical. Read them anyways! ;) He knoweth of what he speaketh.

Joe

Title: Re: New poster here
Post by wimsey1 on Nov 16th, 2011 at 8:07am
Yes, welcome, and thanks for all the kind words. I pray you have the same experience of relief that so many others have found with Batch's regimen. Also, I would add that while it is not terribly popular as an abortive, I have found Migranal nasal spray to be effective. It is slower than triptans (which I also use) but longer lasting. I am chronic, and sometimes I just need a few days without a hit. That's when Migranal comes in handy. I can usually count on 36-48 hours without a recurrence. Not everyone has found this to be true, and doctors may not like to prescribe both at the same time. You have to build up a trust level with your doc so they know you won't take both in the same 24 hour period. Let us know how you get on. God bless. lance

New CH.com Forum » Powered by YaBB 2.4!
YaBB © 2000-2009. All Rights Reserved.