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Cluster Headache Help and Support >> Cluster Headache Specific >> loss of vision http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1322509803 Message started by bm7680 on Nov 28th, 2011 at 2:50pm |
Title: loss of vision Post by bm7680 on Nov 28th, 2011 at 2:50pm
does anyone know if the pain in your eye can result in any permanent eye damage...Had it so bad last night that I couldnt see and I worry that one day it will stay that way....man these things suck
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Title: Re: loss of vision Post by vietvet2tours on Nov 28th, 2011 at 2:57pm
What prevents and abortives are you using. You really haven't given us much to go on.
Potter |
Title: Re: loss of vision Post by bm7680 on Nov 28th, 2011 at 2:59pm
none..other that Excedrin migraine which doesnt last long..I lost my job and dont have health insurance right now so I am on my own
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Title: Re: loss of vision Post by Guiseppi on Nov 28th, 2011 at 3:42pm
I've had them 33 years and haven't gone blind yet. I hear you though, at times it seems like your eye should explode from the pain. :'(
Have you taken a look at welders oxygen? Very cheap, a great abortive. For low cost, long term preventatives, please consider taking a look at Clusterbusters.com A lot of middle class, middle aged, law abiding types have gone that route and never looked back as a result of the successes they've enjoyed. Joe |
Title: Re: loss of vision Post by markca on Nov 28th, 2011 at 5:22pm
All the medical literature says that CHs cause no physical side effects. Once the pain is gone, it's gone (until the next time, of course).
I've been episodic for over 30 years. Never went blind. Sometimes after a really bad hit my eyelid will stay drooped a little and my eye will be red for longer. But no blindness. And yes, they suck. |
Title: Re: loss of vision Post by Linda_Howell on Nov 28th, 2011 at 6:16pm
Despite what one would think there is NO...repeat NO indication that CH does ANY damage. Unless you are a headbanger like I am and bash your head into the drywall.
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Title: Re: loss of vision Post by vietvet2tours on Nov 28th, 2011 at 6:32pm Linda_Howell wrote on Nov 28th, 2011 at 6:16pm:
Avoid the studs. Potter |
Title: Re: loss of vision Post by spiny on Nov 28th, 2011 at 7:36pm
Welders O2: What I use as my 'Dr' says O2 is too expensive and won't Rx for it. Works great. But, around here, you 'buy' the tank - read 'rent' because you just trade it in for another. That is about $200.00-$250.00. Mine holds 60lbs O2, about 36" tall by 8" around. Refill is $22.50. Mask, bought from this lovely site. 0-25LPM regulator, $55.00. I have two tanks, so I don't have to dash 50 miles for a refill. But, the 'script' is only $22.50!!
A lot up front, considering the situation, but perhaps the 'Fat Man' might help early. I would certainly put the word out to family as to what you REALLY NEED for the Holiday! Blind: No, but the vision on the CH side is slipping a bit each year. Old age? Probably. But, the 'droop' can be permanent or just for 2 years, as mine was. Now. that lid and brow are both elevated 1/8 to 1/4" permanently it seems. They have been up there for 3 years now. :-[ Guess I just like to read too much, as with the droop I couldn't do that very well and practiced with the muscles and mirror till the sucker moved! Neuro doesn't believe me, but eye Dr saw it several times and sees it now. She believes me! :) Good luck. If mine holds, tonight will be the 2nd with no O2 or pain! May you have several PF days ahead. spiny |
Title: Re: loss of vision Post by Linda_Howell on Nov 28th, 2011 at 8:30pm Quote:
Your Dr. is an idiot. Nothing new around here though. Most Drs. are, when it comes to rx-ing 02 or anything else. I pay cash. An e-tank costs me 10.00 Too expensive? I don't think so. |
Title: Re: loss of vision Post by spiny on Nov 29th, 2011 at 7:55am
Yes, I know he is an idiot. >:( But, starting over right now is not an option.
You are lucky. Here, ya gotta BUY the tank. Then the fill is cheap. How much odes your tank hold? |
Title: Re: loss of vision Post by Bob Johnson on Nov 29th, 2011 at 8:29am
There is a cluster of nerves which run around our head which are involved in a Cluster attack. The "eye" pain is a major symptom but, especially with severe attacks, some people feel pain in their teeth. In both situations, there is no disease/pathology in eye or jaw/teeth. Regard as a kind of phantom pain.
Not to worry. |
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