Title: Re: Song about Cluster Headaches?
Post by Batch on Feb 6th, 2012 at 12:20am
If you want to watch and listen to a great music video about cluster headache, watch the link below:
It's titled: "What's Wrong With Me" with music & lyrics and performance by Dr. Fred Sheftell, MD, Past President, American Headache Society...
Fred lost his battle with cancer last year... and that was a BIG LOSS for all of us and CHe'rs everywhere... He did more battle for CH'ers than most...
He brought good science to the complex task of helping CH'ers find effective ways of controlling this terribly disabling disorder, educating neurologists and CH'ers all over the world on best practice diagnosis & treatment standards of care, and support for continued cluster headache research...
I had the pleasure of working with Dr. Sheftell in early 2010, when AHS took on the liberal progressive Daschelite bureaucrats at the Centers for Medicare and Medicaid Services (CMS) over their incredibly stupid and politically motivated policy that old folks will just need to suffer more under their brand of socialized medicine. Their policy denies coverage for home oxygen therapy to Medicare beneficiaries who suffer from cluster headache...
These arrogant low-life Illuminati claimed there was insufficient proof that oxygen therapy was an effective abortive for cluster headache. They also cited a lack randomized double-blind placebo controlled crossover studies proving the effectiveness of oxygen therapy for CH'ers 65 and older and that it didn't improve the outcome...
HELLO... Earth to the hand full of morons at CMS who made this pitiful excuse to support your awful coverage determination ruling... (none of whom, I might add, have any clinical experience as a practicing neurologist so they've never seen a patient present with a CH let alone treat one... ) There is no cure for cluster headache so there is no improved outcome!... Moreover, the Gold Standard for inclusion in a clinical study by age is 17 to 65... so would exclude many CH'ers in this category.
Sorry about that... Here's the link... Enjoy...
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If there was ever to be an International anthem for cluster headache... this is an excellent candidate... Take care,
V/R, Batch
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