hi there im paul, i have suffered from ch for about 14yrs but was only confirmed 5 yrs ago. i have never met or spoke to some one else with ch and some times feel that no one understand what im going through so feel a little isolated thats even with the medical profetionals! I have seen a specialist and seemed to be getting some were however when seeing my GP after they were not that helpful at all due to lack of education on the subject, they didnt know the condition and were confused by the medication. well after going back and forth quite q few times i now have 100% o2, veripamal and sumertriptan injections oh yeah and the steroids which i think the dr has mis read my notes as i have a coppy of them and i read them slightly different. so looks like i will be having another visit real soon just to make sure the dose is right. two weeks into a cluster so just a waiting game now.  :)

Welcome to the board Paul, what part of the world do you hail from? Just asking because a lot of the info needs to be area specific. Glad you found us.

Joe

Hi Joe, Im from England, Yorkshire just across the pond! Im new to all this stuff so just finding my feet so bare with me.
I have already found some stuff on here that will be very useful to me, I found the letter to employers which i have printed off, I hope this helps them unerstand and then i wont feel that they think im making a mountain out of a mole hill when it comes to what I/were dealing with.                                                                                       Paul

Do continue perusing this board, reading and asking any questions you have. But check out this board too:

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It has a lot of info more specific to obtaining the correct care on your side of the pond.

Joe

Cheers Joe, thanks for the info. I will be looking into it. thanks for your help.