I have finally received a prescription for 02 but have been told by the medical supply provider that Medicare will not cover 02 for Cluster headaches. Is this true ? Since I am am military retired, they are now checking "Tricare for Life" which is our secondary.

If all else fails, would VA help in this area ?

I'd appreciate any info.

oldred82
raymondd938@gmail.com

I have found out that my secondary insurer "Tricare For Life" (retired military senior citizen) will cover the 02. Unfortunately, the supply company tells me that the prescription allows for a regulator with a 6 LPM limit. I can't see the Doc 'till 3 May so I'm going to try what they bring me. In the meantime, maybe someone can tell me if I can by my own regulator from you guys ???????????? I think I read this was possible in the wonderful dissertation I read on "0xygen info".

oldred82

Hi oldred82

  Go to ebay and get a medical oxygen regulator . . . 15 or 25 lpm (I'm slim and the 15 works for me . . . but if I ever get another, will go for the 25 lpm) . . . it will look like the 8 lpm reg that you probably have now and fit on a standard "E" tank.

  Then, get yourself a non-rebreather mask (the one with the bag), preferably and O2Ptomask with the big green 3-litre bag.  We need 100% 02 at a rate high enough to allow hyperventilation with same for fastest abort.

  Medicare does have a "Letter of Medical Necessity" form which can be filled out by your doc.  I only know of one person (a few years back) that got Medicare to pay for the 02.  I had my current doc fill out same several months ago . .. but don't believe it was approved . . .  haven't checked back as I have been painfree since mid-November, after 11 years chronic . . . giving credit for this to the D3 regimen you will read much about here.

  Glad you found us.

    Be Safe,   PFDANs

      Richard

Hi RichardN,

Where do I find out about D3 ? I've been on 2000 iu all winter and am weeding myself off. Should I be going the other way ?

I also walk outside whenever I can but I have to use sun screen in the summer for skin problems !!!!!!!!!!

oldred82

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

  Go to the "Meds, Treatments, Therapies" board and read the "123 Days PF and I think I know why" thread started by Batch.  It's a long read . .  . more and more are trying this and it's working for many . . . it's actually a bit strange NOT having to avoid formerly guaranteed triggers like alcohol, exhaust fumes, certain chemicals.

  Re your skin problems.  I've been meaning to post this in the appropriate place . . . and will . . . but I want to pass along a product that may help.  Go to alwyncream.com and find the "one-time offer"  They will send you two jars of cream (normal price $30 ea) for $10 and they pay the shipping. 

  I and my daughter and grandson suffer an often crippling skin condition called EB (short for Epidermolysis-bulosa, simplex, Weber/Cockayne type).  It's a blistering condition  . . . mostly hands and feet, but anywhere where there's repeated friction.  In 1999, we as a family were part of a "medical evaluation" of this product for several months and we have never found anything that came close to it for skin healing.  It's great for sunburns or any type skin damage.  A couple years ago, my daughter and grandson attended an EB event/mini convention at Disneyworld in Fla, sponsored by DEBRA (dystrophic epidermolysis-bulosa research association) and Glaxo was there with their version of this cream in a tube which contained the active ingredient allantoin (developed by Alwyn) which they provided samples to all the participants.

  How good is it?  If you order, get your two jars and if it doesn't work for you . . .  keep one jar, let me know and I'll send you $12.50 to cover your cost and shipping if you'll send me the other jar . . . that's how good it is.  It is non-greasy, absorbs very quickly, great for dry skin, instantly soothing on a sunburn (and you probably won't blister).  Also works wonders on folks with cracking/bleeding skin (within 24 hours) . . . we call it our miracle cream.  It doesn't contain steroids or cortizone, doesn't have anti-bacterial properties . . . so for a wound, make sure you use an antibiotic ointment for infection or the skin will heal over the infection.

  No, I don't own stock (wish I did) in the company or get any kind of commission.  I do however try and promote this product when/where I can as it's truly helped my family . . . just as I promote this site whenever I hear of anyone that might have or know someone that might have CH.

   Be Safe,   PFDANs


      Richard

 

Quote:

Go to the "Meds, Treatments, Therapies" board and read the "123 Days PF and I think I know why" thread started by Batch.

(That's the link I posted above.)