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Daily Chat >> General Posts >> "Thoughts on Suicide?" http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1350443311 Message started by LasVegas on Oct 16th, 2012 at 11:08pm |
Title: Re: "Thoughts on Suicide?" Post by LasVegas on Oct 16th, 2012 at 11:11pm
Seen below is my only reply to this thread....
---------------------------------------------------- Suicide is a common thought with no real statistics published regarding CH's. I personally did not care for Carter Lee's speech and was quite surprised he was selected as the keynote speaker for our conference last month. Over the past 13 years I have met 17 CH'ers here in Las Vegas and as of last month an estimate of 100 CH'ers after attending my 1st conference/convention Wink Since 1999 I have been on clusterheadaches.com and have read/replied/posted thousands of very personal messages from others afflicted by our disease. Never once have I met someone nor read about someone that can casually do a live radio interview and not have to interrupt while experiencing a high KIP CH. Or another comment he vomited stating he could have alcoholic drinks and not let the beast interrupt his good time at the bar. When Carter Lee spoke of his "mind over matter abilities" to do these things, he lost me as a compassionate fellow CH'er and lost my interest in anything further he would have to say about CH's, as I found it unbelievable. We discussed how important it would be to create public awareness. Carter boasted and bragged about how wonderful he is and how easy it is for him to get interviews with the rich and the famous. Somebody from our audience asked Carter while he was still bragging at the podium if he could get an interview with Harry Potter who suffers from CH's. He stated he just achieved and interview with Donald Trump, so Harry Potter should be a piece of cake. After his speech later that day, I asked him if he was anxious to contact Daniel Radcliffe (Harry Potter) to hopefully gain an interview resulting in better public CH awareness. Carter gave a very vague reply of "we'll see what happens." This was not too encouraging while he turned his head and attention to the person beside me who was awaiting to purchase his book. Carter's comments on this FaceBook page (seen in the post above) about suicide honestly do not surprise me at all, as he truly comes across in person and in his writings as a non-compassionate arrogant narcissist. Just about every CH'er i've ever encountered with the discussion of suicide ALL have admitted they have at least thought about it once while in a bad cycle. I have found one inspirational reason to prevent me from suicide, my 12 year old son that I am a single parent to. Some CH'ers do not have an inspirational reason to stay alive and I find it very understandable why somebody would commit suicide during a bad cycle. I don't agree with it, but I understand. We Ch'ers are very strong individuals, as we have survived and will continue to fight and remain alive with this living nightmare we suffer from. However, to publicly make disparaging remarks on a FaceBook page where family, friends and co-workers, etc will read what Carter recklessly wrote was vulgar, rude and disrespectful. Carter Lee's FaceBook reply exemplified nothing but "motivational speaker" pessimism and selfishness. >:( "Together, we fight!" ;) -Gregg in Las Vegas Episodic CH since 11 yrs old, now 44. --------------------------------------------- go to clusterbusters.com to read the many replies to this thread titled "Thoughts on Suicide?"... |
Title: Re: "Thoughts on Suicide?" Post by Lobster on Oct 17th, 2012 at 8:42am
One thing became clear to me and several others during Carter's presentation....
He absolutely does not have CH, IMO. |
Title: Re: "Thoughts on Suicide?" Post by Lenny on Oct 17th, 2012 at 12:02pm LasVegas wrote on Oct 16th, 2012 at 11:11pm:
Please don't ever forget that...you are a very good man Gregg.....Lenny |
Title: Re: "Thoughts on Suicide?" Post by Clusterman59 on Oct 18th, 2012 at 1:17pm
Wow!!
To hear this from a motivational speaker astounds me! Weak?? Selfish?? m*th*rf**k*r!! Excuse my language but I am enraged!! Those of us who deal with Cluster headaches as"Chronic" and I have been for over 33+ years are battling with thoughts of suicide. For that matter anyone who has Cluster headaches. To have an affliction that is WORSE than being tortured on a daily basis say's it all because the human mind can only take so much pain for so long before you just have to say,Is this suffering worth it? It takes away all enjoyment of life and leaves you exhausted constantly with little to no "Quality" of life and living. Your loved ones have to understand your pain and suffering and give you support when needed which is a big part of this issue here. Would they think you are selfish and weak if all your life 10 or 20 times a day as with my case of being in such incredible, horrific pain that suicide has not crossed our minds? I AM NOT CONDONING SUICIDE! LIFE IS BEAUTIFUL!! NEVER STOP FIGHTING MY FRIENDS!! Cluster headaches have been given that name for a reason(Suicide Headaches) it is because of the fact that it is the most painful condition a human being can suffer. More painful than childbirth without anesthetic, shattered or broken bones, having a limb amputated without anesthetic. That considered how do you say someone who suffers this affliction is weak and selfish to have not at least thought of suicide. Suicide thoughts are something I have to fight with . I also in the last 14 years have had 17 operations that have left me living with severe nerve damage and living at a constant 5 on the kip pain scale with medication to help, without medication I go strait up to a 7+ and also ended my 30+ year career as a captain, fisherman, diver and mariner and forced me to retire young as disabled. The Cluster headaches that I suffer are all over an 8 on the kip pain scale and 80% of the time they are a 10+. which leaves me on the floor screaming and rolling around in so much pain that I have actually passed out. Unless it has happened to you comprehension of this much pain is futile to describe and can't be understood. I love life and have a 21 year old son to live for so he will have a father and I found Jewelry making for something to help me also to keep my self busy. It is what keeps me fighting the thoughts of suicide and ALWAYS WINNING!!! TO ALL CLUSTER HEADACHE SUFFERERS!! NEVER STOP FIGHTING THE GOOD FIGHT!! IF YOU HAVE THOUGHTS OF SUICIDE SEEK HELP IMMEDIATELY!! IT IS AVAILABLE 24 HOURS A DAY THROUGH YOUR LOCAL HOSPITAL. NEVER BE AFRAID TO CALL 911 IF NECESSARY!! Be sympathetic and understanding for those who suffer from this incredibly painful disorder. If someone has taken there own life because of Cluster headaches NEVER TEAR DOWN THERE MEMORY AND HUMILIATE THEM Mr. Carter!!!!! Those of us who battle and fight so hard daily have to have the understanding, sympathy and love from our loved ones as we fight the "Good Fight" and never and I mean NEVER!!!! Call a lost loved one to this horrific affliction weak and selfish!!!........Johnny |
Title: Re: "Thoughts on Suicide?" Post by ttnolan on Oct 18th, 2012 at 3:25pm
Amen, Johnny!
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Title: Re: "Thoughts on Suicide?" Post by Beth E on Oct 18th, 2012 at 5:06pm
My CHer often says "just end it"... I believe at times he is waiting for it to take him, or for someone else to put him out of his misery during a bad hit. There are nights he has said "I've had enough of this". All this does scare me, it is real. And don't we many times say after someone's death; "at least they aren't in pain any longer"? I don't feel suicide is the best answer at all...but it is understandable at times. It hurts those who love them, as does all forms of death. Give them the dignity that they touched lives, they loved and were loved, there must be positive memories floating around in the world of them. It is sad, true...but how many "mistakes" have we each made in our lifetimes. There will be many more also. This was just one bad decision or mistake that can't be taken back or made up for. It is not unforgivable! He makes it sound like the unpardonable sin.
I'm not impressed with him, I've never heard of him before this and don't care if I hear anything more. A motivational speaker uplifts the positive and doesn't dwell on the negative. God bless him.... |
Title: Re: "Thoughts on Suicide?" Post by Clusterman59 on Oct 18th, 2012 at 7:07pm
Beth, I totally agree with you and all forms of death so hurt the loved ones that remain. To have a motivational speaker insult the memories of loved ones lost to this horrible affliction was just to much for me to not speak out. I just could not believe this was done in a public forum and is so incredibly arrogant and hurtful to all that have lost loved ones to CH or for that matter any other affliction where the person that took there own life so as not to be a burden on loved ones or suffer horrifically. Suicide is not the answer but is understandable in some severe cases.
. I just believe that to tear down and insult the memory of a loved one was not his place PERIOD! It also should have never been spoken of with such hurtful disregard to to the living!.....Johnny |
Title: Re: "Thoughts on Suicide?" Post by Kevin_M on Oct 19th, 2012 at 1:08am
There was a movie and now DVD from 2002 called " The Hours", set in three eras. The writer Virginia Woolf (Nicole Kidman) in 1923 who is writing a book, a housewife (Julianne Moore) in 1951 who reads her book Mrs. Dalloway, and in 2001 when an editor (Meryl Streep) works with the housewife's son now grown and a poet/writer (Ed Harris). It is about suicidal feelings.
A special part is the acting Julianne Moore does when you can see behind her eyes the strange detachment of the decision as she goes through her expected last day. Her affected small son experiences his mother's methodical behavior and can only knowingly feel something is terribly wrong while he's with her, and what it does to a child through what is not said by the less easily expressed awareness in the times of 1951. Virginia Woolf, thought to be manic-depressive who took her own life, was known to have terrible, incapacitating headaches. Not the most entertaining in some parts, but it lends insight. |
Title: Re: "Thoughts on Suicide?" Post by LasVegas on Oct 19th, 2012 at 10:59am
My ECH's began at age 11 and am now 44 years old.
I remember when I was a teenager...going through horrific cycles and no meds to abort...no meds as a preventative...obviously no proper diagnosis of CH's...completely alone...completely alone in misery and agony...anti-social because all the other kids thought I was strange always with severe head pain...spontaneously leaving classrooms without permission...failing school grades...kicked off sports teams...kicked out of 2 middle schools...juvenile detention, etc., etc....needless to say...life was horrible as a teenage CH'er and I was often contemplating suicide although I never tried it. Yesterday I was cleaning out my garage as the Las Vegas weather has finally begun to cool off and I have some extra time to go though my hoarding of boxes that collect nothing but dust, spiders and dead cockroaches. I found my daily journal from those teenage years in a box marked "Personal", here is an excerpt from my journal of what I wrote about CH's at age 13... "Death is a gift when torture is involved!" I've never forgotten this quote of mine from me as a 13 year old, as it always comes to mind every day of every cycle; yet I have miraculously never attempted suicide. When I read this page yesterday for the 1st time in 31 years since I wrote it, it made me cry out of sadness and happiness...feeling sorry for myself as a teenager, empathizing why CH'ers would consider suicide and how proud I am of myself to have survived through those years without medical help. Thankfully I am still here ;) -Gregg in Las Vegas |
Title: Re: "Thoughts on Suicide?" Post by Clusterman59 on Oct 19th, 2012 at 2:18pm
Gregg!
So wonderful to hear of your winning the fight on suicide thoughts! You are POWERFUL and a strong man and I have so much respect for your pain and suffering as I understand how you feel. I started at age 15 and was Chronic right away . They never let up for another 16 years 10 to 20 CH's daily. Then I had a 3 year remission and then they came back with a vengeance! I also had no preventative medication for 25 years. I have been Chronic ever since and I am 53 now and I battle with thoughts on suicide all to often but I too have never taken that final step because of my CH. I believe I never will because I am so used to fighting and winning. Life is beautiful and well worth the extreme fight that we share. I have to say though that I completely understand how someone would take there own life because of how horrifically painful this affliction is. That is obviously something Mr. Carter Lee has not experienced and no one and I truly mean no one can understand this incredible Insane amount of pain as we do and all that truly suffer from Cluster Headaches. I have a deep feeling of your pain and suffering and am so proud of you to have made it through all those years!! I am here for you my friend. Keep Fightin the Good Fight You are in my thoughts and prayers Gregg!.....Johnny :) |
Title: Re: "Thoughts on Suicide?" Post by BarbaraD on Oct 20th, 2012 at 11:06am
Well that certainly got my BP up.
Having lost a 15 year old neice to suicide after she read a "nutcase's" book on suicide (this guy proclaimed himself a renowned suicideologist). She read the book (passed out at her school) and put a gun in her mouth and pulled the tigger. I think he shold have been arrested for MURDER! But that was just my opinion. I've also lost friends to suicide from CH and my only thought at the time was "he's not suffering any more." People who've not experienced this pain CANNOT understand our desperation during a cycle (esp if you're chronic). And, yes, we've ALL thought about it.. but to say the things he did.. well, the guy needs to be run out of town on a rail - tarred and feathered! |
Title: Re: "Thoughts on Suicide?" Post by deltadarlin on Oct 20th, 2012 at 11:44am
Most everybody here who *knows* me, knows how I feel about suicide. I have one response for Mr. Lee, "Kiss my ass you arrogant bastard".
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Title: Re: "Thoughts on Suicide?" Post by Clusterman59 on Oct 20th, 2012 at 11:49am
AMEN BARBARA!!
So sorry to hear about your niece,that's a terrible tragedy....Johnny |
Title: Re: "Thoughts on Suicide?" Post by LadyLuv on Oct 23rd, 2012 at 1:34pm
That arrogant Bastard.... I had two people at the Conference that made statements to me questioning his CH claim... because of things that he said... But I just hunched my shoulders and never thought about it again until today...
But had I known then, what I know now... .. I'm just saying... >:( [smiley=bash.gif] [smiley=angry.gif] |
Title: Re: "Thoughts on Suicide?" Post by Eric in Central NY on Oct 23rd, 2012 at 7:30pm
This will probably get me banned, but please keep an open mind.
It boils down to= If life is a living hell, Why keep it up. Each person has their own threshold. For me that threshold is verrrryyy damn high. I will put up with a lot. I could probably take seven or eight bullets before I fall. These headaches make puncture wound pain seem like a minor nuisance. But !!! There comes a point when a person has to make that decision. If the pain is so bad, ((Unbearable)) What is the point of going on if it is just going to lead to more hell. I think family and friends also need to realize that fact of suicide as well. Is there really any reason to mourne the death of a person that actively choses it to end his hell. Celebrate the happy moments that you had with them. I am an avowed atheist so the BS religious implications don't apply to my logic, But?? If death is less painful than life, Is it worth considering? Like I said folks. I have a pain threshold beyond belief and will almost certainly never consider that option. But, how can you speak for others that have to weigh that decision! :'( Life s a personal choice as is death. |
Title: Re: "Thoughts on Suicide?" Post by AussieBrian on Oct 23rd, 2012 at 8:19pm
I think I disagree with you entirely, Eric, but you've stated your case beautifully.
A good job well done. B. |
Title: Re: "Thoughts on Suicide?" Post by coach_bill on Oct 23rd, 2012 at 8:35pm
TOMORROW, TOMORROW... i LOVE YA, TOMORROW, YOUR ONLY A DAY AAAAAWAY!!!
COACH BILL |
Title: Re: "Thoughts on Suicide?" Post by deltadarlin on Oct 26th, 2012 at 7:33pm AussieBrian wrote on Oct 23rd, 2012 at 8:19pm:
Agree Brian. As the old CCR song says, *someday never comes*. |
Title: Re: "Thoughts on Suicide?" Post by jon019 on Oct 26th, 2012 at 8:29pm
this...one of those thought provoking discussions that remind me why I'm here....
my belief...personal reflection here....if you are a clusterhead and you have not, at least, contemplated suicide...you aint a clusterhead.... KEY word..."contemplated"....sometimes this incredible pain "seems" to leave no out...but a remarkable attribute of ch folks....DAMNED if we gonna let the beast win. For those who do...the sadness is beyond reckoning.... ..it's been said...and one of my core beliefs: "suicide-a permanent solution to a TEMPORARY problem" 30 year ch vet here...and I STILL consider it a TEMPORARY condition...where there's hope there's life......or what's a ch.com for? coach bill's post made me smile...and with a subject like this...that's somthin'.... Best, Jon |
Title: Re: "Thoughts on Suicide?" Post by AppleNutClusters on Oct 27th, 2012 at 6:10am
With CCH, I've found myself contemplating suicide on a disturbingly regular basis. What makes me feel okay is that, when I'm thinking about suicide, it's just in an academic, "what if" sort of way. As in, "if I killed myself, this would not hurt anymore." But that thought is consistently followed up by, "But Iris [my 4 y/o niece] would be so hurt. I can't do that."
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Title: Re: "Thoughts on Suicide?" Post by thbaker41 on Oct 27th, 2012 at 7:40am
I havent been on the site long enough to know anything about carter lee and really have not had ch for years and years like alot of you thank the Lord just went through my first cycle ever but I found out just a couple weeks ago I also have hemicranial continua I say just went through because I have had no attacks in two nights now and the other is a little better so yea for me, But back to the topic many nights I thought and most times after reading somethin on here this sucks no way can I handle this for the next 30 or so years the kids are grown wife will be ok alot better than haveing to deal with me going through this so yea I thought about it even tried it had me a handful of pills but belive it or not my dog saved me. so after that I really tried to find help and found that on here also. its good to know there are others that are going throuh this also and theres folks that will talk to you and understand
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Title: Re: "Thoughts on Suicide?" Post by Kevin_M on Oct 27th, 2012 at 10:44am
When I was five, I took a certain knife from the kitchen and put in on my dresser. I'm going to kill myself I thought. Kindergarten wasn't going well standin in the corner everyday and parents were too overbearing. It laid there a day or two until I went in to use it. Putting it to my chest and thinking, "They'll be sorry they treated me bad."
Stopping to think, no, nobody would miss me, I was five and a problem, that's how I'd be forgotten or shortly remembered, as trouble, their life would be unaffected. Having the knife to my chest I put it down, but left it there, maybe another time. My seven year old sister came into the room and asked what the kitchen knife was doing there. I said I was going to kill myself, but not now, I'm leaving it there. It seemed casual talk. Going back in my bedroom later I noticed the knife was gone. I went to the kitchen drawer and it wasn't there either. About two years later I found the knife hidden in the back of another kitchen drawer, my sister had hid it. I looked at it and thought and remembered. It was a small gesture, but there was someone didn't want me to kill myself. I assessed how I felt at that point and thought I might bear now. It never became a thought again. I cannot remember a time when I haven't been a problem to someone, somewhere, at any time my entire life. It's something to bear inside and at times heavy, but yet unrealizing. In the last 32 years my girlfriend has beared me to points of disfunctional, and as a voluntary burden when she's had much of her own. What an example. It keeps me enthralled, I can only aspire to be that resilient someday. Bearing self-feelings can be tough, but give yourself the time to learn from others who carry the same load or have more. |
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