Yes there is now a permanent a cure it is simple, painless, and absolutely risk free!

My15 year old son was sent to detention at school for sleeping in class, this was because he would wake up with me 3 to 4 times a night and help me load my injection, fill my hot water bottle, microwave my heat pack, crush ice for inside my mouth, pour me a glass of ice water, I'll never forget that frightened panic stricken look on his face as he watched me been attacked.... That’s when I knew I had to do something about this headache it was impinge on my loved ones and that was not going to happen anymore.

I had tried acupuncture, physiotherapy, homeopathy, anti-epileptic pills that make your fingers tingle, impotent, and walking up a flight of stairs feels you've just run a marathon, I used to inject the maximum daily dose of Imagran, I sucked 25 litres of pure oxygen per minute I used hot water bottles, ice packs I even used to stand in a bucket of ice if nothing else but to distract my mind away from focusing on the pain, crying pacing swearing shouting grunting rubbing running nothing kept this headache at bay. I learnt that breathing slowly and trying to relax as a mind over matter effort helped.

I had them on both sides of my face for 7yrs the cause is an dilating artery in your upper jaw that runs alongside the trigeminal nerve (under your gum in your jaw) and when that artery dilates it exerts pressure on the trigeminal nerve. An arterial ligation is all that is needed and I'm now permanently cured thanks to Dr. Shevel, at the  headache clinic  who performed the arterial ligation. it was  safe, painless (much like going to the dentist but without a drill) and risk-free as the ligation is done nowhere near the nerve and it is done outside the scull and away from your brain. (I would never trust deep brain stimulation.) All the ligation does is restrict the blood flow in that artery preventing the artery from expanding out of peroration and irritating the trigeminal nerve. It was quick and simple. Dr shevel has been performing this procedure since 1995 and he has been published in 30 medical journals.
FYI: Dr.Shevel can also cure Migraines as well by also conducting an arterial ligation to another artery that is situated in the temple.

The relief i feel post the operation is indescribably good, I feel fantastic and i can now live my life again, even drink beer hahaha, i can eat a full slab of chocolate and engulf my popcorn with MSG at the movies without having that demon headache hovering over me, this headache is evil  because it comes in the dead of night, and at any time, you never know for how long it will last or how painful the attack will get.

The attacks occur when this artery dilate this happens during rapid eye movement or when the brain goes into delta brain wave, and or when we over indulge in sugar, yeast, carbonated drinks, MSG, Preservatives, smoking. even high and low altitude can trigger it.

When this artery in our upper jaw dilates a pressure is exerted on the trigeminal nerve, this should not usually be a problem but, eventually the myelin sheath is damaged or irritated so it short circuits the nerve and sends a signal back to the brain telling the brain that your face is been slowly crushed and peeled off. Its at that stage that you'll do/say/try anything at to stop the pain. So put crushed ice in your mouth and cool your upper jaw, I also used the oxygen to cool my upper gum as well, you can try putting your finger in your mouth and applying pressure to the gum at the upper jaw right at the back (above and behind your back teeth) this, if you can locate the artery under your gum may give you relief. this is a lot easier said than done as it is very difficult to keep still long enough to get it right when you been attacked.

I also think that the link to smokers plays a big part as nicotine causes inflammation on the gums, inflammation breaks down bone and in turn altering the bone formation under the gums, in combination with the vacuum that is created when pulling the smoke into ones mouth causes the artery to over elongate work and squeeze the trigeminal nerve...

Good luck get cured and take your life back
Ryan

Good luck to you too.

This is interesting. While I'm happy that you found something that helped you, we're really careful with the word "cure" around here. I find it somewhat hard to believe that all of us CH'ers can be cured by somehting as simple as cauterizing a single vessel in our jaw.

Glad you are pain free, I remain skeptical at best as to this being the final "cure" for CH. Thank you for sharing your unique experience.

Joe

Cluster cured wrote on Nov 17^th, 2012 at 7:23am:

Dr shevel has been performing this procedure since 1995 and he has been published in 30 medical journals.

Very interesting claims. Can you provide details of these papers which show how this procedure cures cluster headaches?

I'm also interested in how this work compares to the work done by Goadsby et al around the hypothalamus being involved in CHs (START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE).

The illustration (from Wikipedia) shows how the trigeminal nerve has multiple branches. I am curious how restricting the blood flow near one branch would impact all the branches. There is a strong correlation between each branch and either a pain location or where symptoms are seen, e.g. ipsilateral conjunctival injection and/or lacrimation, ipsilateral nasal congestion and/or rhinorrhoea, ipsilateral eyelid oedema, ipsilateral forehead and facial sweating, ipsilateral miosis and/or ptosis (from the IHS diagnostic criteria).

Please tell us more.

---

whats every ones take on this? because ive been told my tmj aggravates my cluster cycles. i see an oral surgeon to see if injecting botox in to those muscles might make the headaches less severe.

Mike NZ above has given the best answer so far.......I don't understand how addressing a minute portion of the trigeminal nerve complex could stop the entire thing from generating pain.

Joe

Is Dannyboy back again?

Some of the oldtimers will remember him, his Dad runs this clinic in SA:
headclin.com

If it's not Danny, my apologies.

You got it Doug, although it doesn't appear to be Dannyboy.  Cluster cured signed off on a post:


Quote:

all the way from Africa. Ryan

Dr. Shevel goes back to the old string board around here.  Always the promoting tone.

dougW wrote on Nov 17^th, 2012 at 7:36pm:

Is Dannyboy back again? Some of the oldtimers will remember him, his Dad runs this clinic in SA: headclin.com If it's not Danny, my apologies.

There seems to be a strong connection between Dr Shevel and http://www.headclin.co.za:

• START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE - Dr Shevel linked and a YouTube video
  
• START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE - His publications, although all seem to be migraine / tension headache related, not CH
  

However I'd still like to see the answers to the questions in my first post.

Cluster cured has been driven to the point of undergoing surgery in the hope of beating this beast. He's getting fantastic results and is happy to post his experience in the hope it may help others.

I for one look forward to hearing much more from him, cos just right now I could handle a bit of good news.

Bring it on, CC. I can promise you I'm all ears!

Mike NZ wrote on Nov 17^th, 2012 at 11:24pm:

His publications, although all seem to be migraine / tension headache related, not CH

NZMike makes a point.  There might be a little to overcome if we also take into account a couple of replies from the past:



Quote:

Dr Elliot Shevel is the daddy of our good friend Dannyboy. For years Dannyboy tried to muddle the issue and was mixing up clusters and migraines, in an attempt to lure some desperate clusterheads to his daddy's clinic. Dr Shevel himself wrote on this message board that his treatment was not proven for clusterheadaches. But even that did not impress junior, he continued with his scam until he was fired from the public relations department.

Ol' Ali made reference also:


Quote:

Here's the real funny part.  The last video Ali lists is the doctor who stole his proceedure.  It's Dr. Shevel, who some of you will remember as Danny's dad who runs the clinic in So. Africa.

I'd guess with this in rememberance, and a new ten post promotion venue plastered to assorted recent threads, a stigma may be attached that might not change views so quickly.

Cure paired with cluster kind of makes me flip the switch, mentally. I can handle the word remission, though.

Yeah.....I think it was a fly by.

My old friend Danny Boy!  Way back when, his Pop was curing CH with some kind of bite apperatus.

I miss Danny.

Here ya go.

        Potter

---

My perspective is from someone relatively new to the site. 

Let's see, it took almost 10 years for anyone to figure out what I was going through was cluster headaches.  Another 4 years for me to find this site as a support option.  I am embarrassed to admit that when I'm in remission, I rarely think about coming to the site as I generally come to the site for advice and support, which I generally only need when I'm suffering.  I personally find it difficult to believe that someone who has never been to the site before seeks out the site only to tell us all that they are cured.  I'm going to continue to be skeptical until I'm seeing "cures" from the "regulars" on the site.

I remain hopeful that that day comes soon.

Hi all
sorry for the late reply I didn’t see this page, All I had from CH.com was negativity, all from Potter’s private messages, he was sending me including some fowl language from him????

Firstly I don’t know who Danny is But my Name is Ryan, I own a roofing company called the Roofproofers in Johannesburg South Africa. I have made a video on you tube for you all, search (“cluster headache cure by Dr. Shevel”) I was like you sceptical at first too, it was a girlfriend of mine that eventually forced me to go see him, why I never went to see him earlier was, firstly that it never saw the pain I was feeling during an assault as a normal or type of general headache (in my mind, why would I go to a headache clinic (Hine sight, probably because English is not my first language). I assumed that a headache was inside the brain, or inside the skull to position it, that plus secondly the fact that it cost almost US $400 to see him on the first consultation. At a risk like... I’m sure all of you have had difficulty trying to describe what we feel as headache to people... what pissed me off most was the typical “Joe public” who knows-it-all (like potter) would give me some bullshit advice on how he or she deals with their vanilla headaches like, “take Aspirin and milk” or “acupuncture is the safest, oldest and most trusted treatment” or “physiotherapy is the way”, “chiropractors help relax the nerve in the neck and spine” etc. YAWN! and then imigran and then oxygen and then Topamax (that made me impotent...) no one got it and they still don’t!
My first appointment at the Headache clinic was like I was put on a production line to be processed in “The Headache clinic” as I entered the place I thought to myself that if I was wasting my time and money that if they sent me home with an aspirin I’d punch the shit out of the place. (now that’s more like potter’s attitude), from first tests conducted by a neurologist, then I had a brain scan to rule out tumours, then I had x-rays done to my neck to check the muscle flexibility, then I had probes stuck to the muscles in my face, neck and head (to check their rest tension) then I had the tension headache test/talk (that was like. “relax your tongue and take it off the roof of your mouth because that forces an underbite and applies tension to your jaw muscles and that has a ripple effect to the muscles in your temple, and intern tenses up your neck and muscles and with all these tensed muscles unnecessary stress is exerted to ones sinuses”. aka as a tension headache and that’s where the pain comes from. There are over a dozen caring specialized nurses, that really understand your pain and suffering because they seen so many of us. I but when I arrived a Dr. Shevel’s clinic I was gob smacked by the amount of thank you and testimonial letters, on the waiting room tables, and the waiting room had THOUSANDS of thank you letters filed in arch leaver files that littered the waiting room tables plus all the letters that were stuck on the walls by all kinds of patents he has helped, from migraines, clusters, tension, tinnitus headaches plus. He has a state of the art medical/surgical facility, and cures headaches for people that come especially to see him from all around the world. Please do yourself a favour and watch some of the testimonial videos on his web site. Watch my video on you tube. The cluster cure was born from his migraine cure,... it’s the same cause (a dilating artery except it’s in the temple near the optical nerve)

So why am I, as a random person making such a fuss.... Well it’s simple... What he did to me was take away the shadow hovering over my head and gave me back my life of beer instantly... My outlook on life has done a 180 degree turn, I’m chilled, I’m relaxed (the stress is gone) and everyone around me has noticed and commented, the Butterfly effect from the smallest movements of his hands has had a ripple effect on you. So there must be something there. To the people that commented above my pledge to you that if you want to be free from the demon that ruins your life come to sunny South Africa, or find a day clinic that can do a n arterial ligation for you there but if you cant and if you need you can stay in my home for free while you here, and I’ll even take you walking with lions.
As a final note there are many ways to look at skinning this cluster cat... do we fight the cause but how, we are all get triggered by different things like beer the smell or cigarette  smoke, or curry, carbonated drinks, sugar, MSG, modified starch or do we stimulate the brain as in DBS, or do we fight symptoms with painkillers thats a joke, or do we fight the nerve... that’s risky because no one wants to lose the feeling on the one side of our face.... no all we need to do is reduce the flow of the artery that squeezes the nerve. I know the intelligence here is saying, "reduce blood flow..." no way, you’d think, not prepared to stop any blood flowing, but our blood vessel and artery system is so integrated it’s like saying roads. The answer is similar to saying if block the motorway... could you still get home, yup id just take the back roads!

Seriously @ Potter you need a safari (with Beer&fishing in Africa, as my guest, you will always be welcome in my home, you sad sack of shit.
@Joe i feel you that you don’t want to be let down, I went from 7 attacks a day to zero in 1 day. I was not let down.
@Mike NZ I will get the ifo you need Just give me time, Inflammation is a painful bitch though.
@Chefchris.. what is CFM.. I believe Botox relaxes the muscles the artery supplies, will never receve the message and will not work as hard but botox its temporary!
@Dougw: sorry as i said my name is Ryan, I own the Roofproofers email me to prove  info2@herooofproofers.co.za 
@AussieBrian  : Thank you, my brother in beer. I really do want to help you. 

Regards
Ryan. Use the info I’ve shared with you or don’t use it, it’s your all your call my brothers in pain.

Quote:

I had tried...

Quote:

I was like you sceptical at first too, it was a girlfriend of mine that eventually forced me to go see him, instantly... My outlook on life has done a 180 degree turn,

Why is this such a familiar patented form.

1. I tried everything      

2. Then a friend told me about...

3. Of course I was sceptical like you

4. My life has been transformed









Quote:

@Mike NZ I will get the ifo you need Just give me time, Inflammation is a painful bitch though.

This wouldn't be from a painless procedure I hope.

Sorry DougW The correct email address to my company is info@theroofproofers.co.za sorry about the type error

Quote:

Seriously @ Potter you need a safari (with Beer&fishing in Africa, as my guest, you will always be welcome in my home, you sad sack of shit.

I will "seriously" remind YOU that our web-master won't tolerate name-calling on this site.  I don't know what he said to you in a PM and I don't care.  That is between the two of you...but unless I missed something in all of your many posts about the same exact thing in all the forums here..the only thing Potter said to you here... was "stop" 

We haven't had any nastiness around here in a very long time and we'd all like to keep it that way. 

Cluster cured wrote on Nov 19^th, 2012 at 3:38pm:

Hi all sorry for the late reply I didn’t see this page, All I had from CH.com was negativity, all from Potter’s private messages, he was sending me including some fowl language from him???? Firstly I don’t know who Danny is But my Name is Ryan, I own a roofing company called the Roofproofers in Johannesburg South Africa. I have made a video on you tube for you all, search (“cluster headache cure by Dr. Shevel”) I was like you sceptical at first too, it was a girlfriend of mine that eventually forced me to go see him, why I never went to see him earlier was, firstly that it never saw the pain I was feeling during an assault as a normal or type of general headache (in my mind, why would I go to a headache clinic (Hine sight, probably because English is not my first language). I assumed that a headache was inside the brain, or inside the skull to position it, that plus secondly the fact that it cost almost US $400 to see him on the first consultation. At a risk like... I’m sure all of you have had difficulty trying to describe what we feel as headache to people... what pissed me off most was the typical “Joe public” who knows-it-all (like potter) would give me some bullshit advice on how he or she deals with their vanilla headaches like, “take Aspirin and milk” or “acupuncture is the safest, oldest and most trusted treatment” or “physiotherapy is the way”, “chiropractors help relax the nerve in the neck and spine” etc. YAWN! and then imigran and then oxygen and then Topamax (that made me impotent...) no one got it and they still don’t! My first appointment at the Headache clinic was like I was put on a production line to be processed in “The Headache clinic” as I entered the place I thought to myself that if I was wasting my time and money that if they sent me home with an aspirin I’d punch the shit out of the place. (now that’s more like potter’s attitude), from first tests conducted by a neurologist, then I had a brain scan to rule out tumours, then I had x-rays done to my neck to check the muscle flexibility, then I had probes stuck to the muscles in my face, neck and head (to check their rest tension) then I had the tension headache test/talk (that was like. “relax your tongue and take it off the roof of your mouth because that forces an underbite and applies tension to your jaw muscles and that has a ripple effect to the muscles in your temple, and intern tenses up your neck and muscles and with all these tensed muscles unnecessary stress is exerted to ones sinuses”. aka as a tension headache and that’s where the pain comes from. There are over a dozen caring specialized nurses, that really understand your pain and suffering because they seen so many of us. I but when I arrived a Dr. Shevel’s clinic I was gob smacked by the amount of thank you and testimonial letters, on the waiting room tables, and the waiting room had THOUSANDS of thank you letters filed in arch leaver files that littered the waiting room tables plus all the letters that were stuck on the walls by all kinds of patents he has helped, from migraines, clusters, tension, tinnitus headaches plus. He has a state of the art medical/surgical facility, and cures headaches for people that come especially to see him from all around the world. Please do yourself a favour and watch some of the testimonial videos on his web site. Watch my video on you tube. The cluster cure was born from his migraine cure,... it’s the same cause (a dilating artery except it’s in the temple near the optical nerve) So why am I, as a random person making such a fuss.... Well it’s simple... What he did to me was take away the shadow hovering over my head and gave me back my life of beer instantly... My outlook on life has done a 180 degree turn, I’m chilled, I’m relaxed (the stress is gone) and everyone around me has noticed and commented, the Butterfly effect from the smallest movements of his hands has had a ripple effect on you. So there must be something there. To the people that commented above my pledge to you that if you want to be free from the demon that ruins your life come to sunny South Africa, or find a day clinic that can do a n arterial ligation for you there but if you cant and if you need you can stay in my home for free while you here, and I’ll even take you walking with lions. As a final note there are many ways to look at skinning this cluster cat... do we fight the cause but how, we are all get triggered by different things like beer the smell or cigarette  smoke, or curry, carbonated drinks, sugar, MSG, modified starch or do we stimulate the brain as in DBS, or do we fight symptoms with painkillers thats a joke, or do we fight the nerve... that’s risky because no one wants to lose the feeling on the one side of our face.... no all we need to do is reduce the flow of the artery that squeezes the nerve. I know the intelligence here is saying, "reduce blood flow..." no way, you’d think, not prepared to stop any blood flowing, but our blood vessel and artery system is so integrated it’s like saying roads. The answer is similar to saying if block the motorway... could you still get home, yup id just take the back roads! Seriously @ Potter you need a safari (with Beer&fishing in Africa, as my guest, you will always be welcome in my home, you sad sack of shit. @Joe i feel you that you don’t want to be let down, I went from 7 attacks a day to zero in 1 day. I was not let down. @Mike NZ I will get the ifo you need Just give me time, Inflammation is a painful bitch though. @Chefchris.. what is CFM.. I believe Botox relaxes the muscles the artery supplies, will never receve the message and will not work as hard but botox its temporary! @Dougw: sorry as i said my name is Ryan, I own the Roofproofers email me to prove  info2@herooofproofers.co.za  @AussieBrian  : Thank you, my brother in beer. I really do want to help you.  Regards Ryan. Use the info I’ve shared with you or don’t use it, it’s your all your call my brothers in pain.

   Not really if I wanted to kill something I'd go out my back door. 

                Potter

"Potter’s private messages, he was sending me including some fowl language from him????"

Potter - you talking chicken again? ;D

Cluster cured bears an unfortunate resemblance to a bad guy from the past, but does  anyone know they're one and the same person?

Will we bash newbies again because their thoughts differ from what we've carved in stone?

This sort of conduct saddens me.

Quote:

I will "seriously" remind YOU... We haven't had any nastiness around here in a very long time and we'd all like to keep it that way.

The personal bashing done was appropriately warned.

I’ve sent my details to prove that I’m not Danny, I am sorry I did not know who or about Danny until you all brought him to my attention, I do know now who he is and some of you may be right about him. I’m no fly boy though I’ve walked the cluster mile plenty... read on and you will see. I must say that It saddens me that most of you have to be so negative, I really do understand that, I too was like that, arrogant and even losing my temper at times until my jugular vein swelled and the vein on my forehead protruded trough my skin. Perhaps having a bad attitude is a cluster headache syndrome and in this case is a inhibiting symptom, but otherwise you have to be strong and hard to cope with CH. I had the anger too, for me a time was when I was in a cycle.. (I will never refer to it as my-headache) I acted like any pacing caged wild animal, ready and willing to bash, snap and bite at anything in the hope it might lead to an escape. And that was when I wasn’t having an attack. I suppose my reasoning for my anger was that; if I had to live with this CH shadow over my head and have no choice but to let the pain come and have its way with me and steal my freedom. I felt I had a self acclaimed right to scrutinise, control all things new and old as well as approach people without compassion (compassion: that’s a word you all haven’t heard in a while) you have reminded me of the old me. But that was restricting me, It was killing me from the inside out and never stopped there, it just carried on infiltrating itself into all aspects of my life. I turn people down if I knew an attack was imminent, they felt bad, because if you tell them about your private CH life, then... so I just keept quiet.
However I was willing to learn about and really get to know my enemy and to commit to beating this beast even at its own game if I had to, whatever that was, and even if I had to change to do it.
Looking back I remember getting angry with a very religious friend of mine for something he said after he witnessed me being attacked by the CH demon once while we were out on bike riding, he literally thought I was being possessed by the devil and that at first pissed me off, but I only realized what he saw a few weeks later when I watched a youtube for video for myself of someone having an cluster attack. I looks like a scene in a horror movie complete with all the swearing, grunting, shaking and hitting. It still takes an emotional toll when is see a video, even now. Even more so when I see it through my son’s eyes.
Ridding myself of these CH’s was the only option I saw, I couldn’t carry on living with this CH black cloud hovering above my head, and that’s why I have to help others like me who are actually the very same people reading this, AKA you, us living with this disease every day.  Except this site is run by a select few that cant/won’t accept that an arterial ligation may just be the cure and that the end of CH shadow over all of your heads could be gone, as it was THE END to my “type” of cluster attacks. At least looking forward to the way considering the way ch.com is run... misery likes company.
@ the commentators: It’s come to my reasoning that you all will never find the CURE because you all not open for it and you won’t accept anything outside your tight loop perception, THE CURE is going to be something NEW because that what happens when a new cure to any disease is found, its generally going to be nothing you all have never tried nor seen before. But trust me with the crushed ice though, humour me just one attack, when you all have your next attack, do it as fast as you can and before your temperature rises, as your mood changes, coz Ice is not as effective once your temperature has risen, aim for brain freeze, eat ice cream (I screamed for Ice cream), place the crushed ice as far back into your upper jaw cavity. When that works then you all will realize that the ice is cooling down your mouth and constricting your artery. You can also put a hot water bottle on your face, head and neck, because heat lowers the viscosity of our blood and helps the blood move away from the affected area easier and faster. I’m selling nothing I Just owe Dr. Shevel a debt of gratitude, so I called him today, with some of your concerns and he asked me to give you all his personal email address and you may request the details of the cluster patients that he has helped DrShevel@headclin.co.za he said I shouldn’t help people that don’t want help, asked me not to bother with the people that give trouble I must “just help where I can and with the ones who want help, because that’s all we can do even in life anyway”.  And help is really all I set out to initially do.
@kevin m still treading the same old ground rules hey
@ ch Kieth I been to this site before years ago but it told me nothing I did not Know, so I moved on... now I’m here again,  (maybe also briefly, that’s if I still get the arrogant input from people who are not even facing CH on a day to day basis) I came back to see that you all still in the same place so I thought I’d help... but sad sack of S  t for me.
@ch Kieth more worried at what the older members repeat then stick with what the old timers say... even if they keep saying the same thing over and over and block any new input that they have NOT come up with, I wasn’t looking for a web site that only gave comfort ...I wanted results, end of chat.
@Newbie and newbie Be careful you don’t get sucked into a web doctrine type pattern of thought!
@charlotte Thats because you don’t have all the facts...yet.
@ Mike NZ the answers to your question I will NOT answer in ANY detail, the bottom line to your silly question, (that was made to look complicated) is that; if one part of the trigeminal nerve is irritated the entire nerve gets inflamed, irritated  and reacts, (like CH.com per say) In other words it’s EXACTLY like if I prick you with a blunt pin in your toe,... your body and eyes will be the first to react first by sight then later by tears, your ENTIRE body will jump up and your mood will change in a slit second, your heart beat will increase,  your breathing becomes defined, your eyes will cry... as you look for the Injection or the oxygen or the ICE!

Your condescension and arrogance are breathtaking.

You have no idea about the difference between the word "cure" and and the word "treatment." The word "cure" is not taken lightly around here.

You also do not seem to appreciate that a successful treatment for one person can be a complete waste of time for another.

Until you do a little soul searching and a LOT of apologizing, I, for one, am done with you. May your days and nights be pain-free.

Breathtaking was not the first word that came to me . :)

I was trying my hardest not to get banned.

Quote:

including some fowl language from him????

Hey Potter! Can you teach me to talk Rooster. This Rosetta Stone shit just aint working.

seaworthy wrote on Nov 20^th, 2012 at 8:53pm:

Quote: including some fowl language from him???? Hey Potter! Can you teach me to talk Rooster. This Rosetta Stone shit just aint working.

Mooooooooooooooooo.

     Potter

Potter wrote on Nov 21^st, 2012 at 9:20am:

seaworthy wrote on Nov 20th, 2012 at 8:53pm: Quote: including some fowl language from him???? Hey Potter! Can you teach me to talk Rooster. This Rosetta Stone shit just aint working. Mooooooooooooooooo.      Potter

Didn't you know Potter was multi-lingual?

seaworthy wrote on Nov 20^th, 2012 at 8:53pm:

Quote: including some fowl language from him???? Hey Potter! Can you teach me to talk Rooster.

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGESTART PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE



START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGESTART PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE
Hey, whatcha making there boy? ... "Nice kid but doesn't listen to a word you say.  I say there boy, have ya gone off the farm.

Kevin_M wrote on Nov 21^st, 2012 at 10:16am:

seaworthy wrote on Nov 20th, 2012 at 8:53pm: Quote: including some fowl language from him???? Hey Potter! Can you teach me to talk Rooster. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGESTART PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGESTART PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE Hey, whatcha making there boy? ... "Nice kid but doesn't listen to a word you say.  I say there boy, have ya gone off the farm.

  Not often but I did spend the night at the Rio.

                    Potter

Boy! I say boy! That ain't no chicken. Thats a dawg with a rubber glove on his head.

I apologize. I am too jaded to be of help to anyone here.

Hmmm, bare, I say bare as a cooch dancers midriff

I'm too tough, son. No white meat, just gristle. Feel my wing. I used to be young and tender once - Feel my wing like I toldya, boy! - but that was a long time ago. Now if you - I say, if you want something tender, nothing beats a good old pheasant. Pheasant under glass, that's good eatin'! Any of this getting through, son?

Nice...I say nice kid. About as sharp as a bowling ball.

Do you all have to type like you acting a scene from a movie?

Is the word fowl so funy, or is it just all the intellegance that you all can cope with at one time... Yawn,

Is this pace a big fat pitty party? harry

@ brew...?!?!  are you drnuk? or you still stoend? tyipng like you think we are ALL in your head, sober up and cmoe jion the caht, how abuot that? and lerns smome fcats, or msut I spoon feed you?

@ charlotte... dont be, these guys have to be tough or morons to still be alive.

@potter how is that emotional maturity coming on at 64? thanks for sending me that picture of yourself with a pretty little bow in your hair,... I see you had some difficulty figuring out what felt better in your ear the gun or your finger.

"You're doing a lot of choppin', but no chips are flyin'."


"That boy couldn't hit the side of a barn with the side of a barn!"

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Cluster cured wrote on Nov 21^st, 2012 at 5:11pm:

Do you all have to type like you acting a scene from a movie? Is the word fowl so funy, or is it just all the intellegance that you all can cope with at one time...

At this point we are all just enjoying each others company.  Join in.  Google 'foghorn leghorn'. 

That dog's as subtle as a hand grenade in a barrel of oatmeal.

Quote:

potter how is that emotional maturity coming on at 64? thanks for sending me that picture of yourself with a pretty little bow in your hair

Could someone, and I mean anyone, please forward me that pic.

Cluster cured wrote on Nov 21^st, 2012 at 5:11pm:

@ brew...?!?!  are you drnuk? or you still stoend? tyipng like you think we are ALL in your head, sober up and cmoe jion the caht, how abuot that? and lerns smome fcats, or msut I spoon feed you?

Dude. Buy a clue and stop embarrassing yourself.

seaworthy wrote on Nov 21^st, 2012 at 9:16pm:

Quote: potter how is that emotional maturity coming on at 64? thanks for sending me that picture of yourself with a pretty little bow in your hair Could someone, and I mean anyone, please forward me that pic.

Page one Rosie the riveter.

        Potter

Cluster cured wrote on Nov 20^th, 2012 at 3:32pm:

@ Mike NZ the answers to your question I will NOT answer in ANY detail, the bottom line to your silly question, (that was made to look complicated) is that; if one part of the trigeminal nerve is irritated the entire nerve gets inflamed, irritated  and reacts

I'm sorry you considered my question to be silly. However it is only by asking questions that I can understand things.

Hopefully my other question (below) is not a silly question. Could you also answer this? Or at least explain why this is a silly question?

[quote]I'm also interested in how this work compares to the work done by Goadsby et al around the hypothalamus being involved in CHs (START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

Hi Mike NZ : I’m sorry for calling your question silly. I should have said that the way you asked was a complicated way of asking, “to interpret you question correctly was... “Why is it that if a small part or section of the TG nerve is irritated why does the entire nerve react?” in other words he was asking why is it that just by putting a restriction around a blood vessel in my upper jaw stop my entire trigeminal nerve from reacting?!!? And to answer nicely, “the trigeminal nerve is more than very sensitive and delicate, So when the trigeminal nerve is irritated or over stimulated, (even by blood pressure) the entire branch of the nerve reacts, It is similar to that of a tree in that, if the trunk of a tree is damaged all the leaves on the tree will be affected.  And that is why the arterial ligation is so effective; it prevents pressure and inflammation around the TG nerve or the trunk of the tree in this analogy. And as far as procedures goes, its much safer and, risk free when compared to Deep Brain Stimulation (DBS). The arterial ligation restricts the blood flow around the TG nerve and to make things worse this artery is tiny, only 1mm in diameter. Keep your eye open for the release of a document soon to be public from The American Journal of Maxillo Facial Surgery re: cluster headaches.

The answer to your second question regarding the Deep Brain Stimulation DBS is just another type/method to aborting, treating or coping with an attack by installing a pace maker probe into a part of the brain called the Hypothalamus region.
The aim in this is to stop/prevent an attack and ultimately Cure the cluster headache. (sorry Brew for using those two words together), they do this by stimulating or treating the area of the brain that reacts when we have an attack that results in the arteries to dilate of arteries . To put it simply, it’s a way of approaching the issue in the part of the brain that demonstrates an unrecognized activity when we are been assaulted by CH itself). It is currently the accepted view that when a Ch attack occurs, an abnormal brain function within a normal brain structure is evident Cluster headaches are idiopathic type headaches with many similarities to migraine, (doctors don’t know why the brain functions abnormally in normal structured brain tissue called the hypothalamic grey matter. all they know is it does. ( on a spiritual level The place in the brain where the activity happens is next to the penile gland AKA the third eye)

They figured this out by  identifying and observing brain function of CH patients of a range of sexes and ages,  using a magnetic resonance imaging (MRI) Using a radiographic technique (called a positron emission tomography) they were able to measure and replica the frequency of energy in the Hypothalamus, obviously when we were not having an attack. Then by installing a probe into that region of our brain that can imitate the frequency Hypothalamus area in rest state using a device that is similar in nature to a (heart) pace maker except it is installed into the centre of our brain, just like a pace maker maintains the rhythm of someone with heart problems, a “Cluster-headache-Pacemaker” maintains and even brainwave rhythm. But they have to drill a hole 3/4 “ inch diameter hole through your scull in the top of your fore head to get the probe in, then they run a wire under your scull towards the back of your neck, then under your neck skin into your chest where the pace maker is installed in you forever. The DBS pacemaker monitors the energy in your brain, and emulates a stable frequency through its probe into the Hypothalamus region of the brain, It comes with risk of infection and disabilities of its own like sensitivity to magnetic machines, arc welders and has been known to set off security equipment like when leaving a shop, get ready with your story as they cavity search you and as a suspected shop lifter. Plus the batteries need changing every once in a while.

@brew maybe there isn’t 1 pill that cures all... but what if 10 pills has cured 10 headaches!?! for me that was a good enough start. Especially when I was willing to try anything. And all Ligation surgery happed just under my skin and most importantly outside my scull. So I did I took a chance, and here I am eating lots of chocolate (not apologies) and drinking loads beer, I’m completely cluster free nearly five months later. And I don’t have to worry about a machine implanted in my chest nor the batteries, or a ¾ inch hole drilled in my scull. That’s why Dr. Shevel’s course of action called an arterial ligation was the safest bet to getting cured.  Watch my video on you tube.... You guessed it the title is... “Cluster headache cure by Dr. Shevel” watch it and weep tears of joy!  My Chickens. Bwahahaha.

Thank you for the interesting response that gave a lot more detail that enabled me to better understand what is happening.

I'd not class this as being a cure as the person will still have the underlying CH mechanism which seems to start in the hypothalamus. Instead it is a mechanism by which the CH pain can be avoided by removing or minimising the stimulation of the trigeminal nerve. I suspect that when the appropriate trigger for a CH, e.g. alchohol, is present a CH will happen but no pain will be felt.

Has there been any research where there is a double blind procedure where people undergo a process, so get the treatment and some have a placebo? This is the normal gold standard for medical treatments to determine if the results are statistically significant.

Is there any difference between treating someone with left or right sided pain? Similarly for their CH pain location which can be in the temple or around the eye? How long is the treatment effective for (i.e. does the process need to be redone every few years)?

Good questions, Mike.

I confess I'm one who is put off by the word "Cure" also.  I don't believe it is a cure, as Mike pointed out.  I will be interested in seeing if there is anything that shows up in medical literature other than that put out by the Dr himself.  Forgive me if I'm a skeptic, but I've been around this beast for to long to be overwhelmed by a one post wonder.  Where were you before this miracle occurred? In the interests of full disclosure, what is your relationship to the clinic other than as a patient?  (Don't take offense.  That is not an attack, just a request for information on which to base a decision.)

Jerry

@ Mike NZ Well what did come first the chicken or the egg. (none it was the rooster) So Is the abnormal function that is happening in our normal hypothalamus while we are been attacked, is it a result or a cause...? Doctors don’t know whether the hyperactivity in the hypothalamus is a reaction from the irritated trigeminal nerve or if the reaction or the irritation of the nerve causing the abnormal brain function well you decide... here are some facts....

the hypothalamus has the highest density of receptors, is actually a cluster of brain cells that acts as a go-between the brain and the pituitary gland in that it receives and transmits messages to and from the pituitary gland, and the Brain, the pituitary gland is the main hub that receives all the stimuli from our Trigeminal Nerve it is basically a main connection hub including (in fact all nerves in our body originate from our pituitary gland.) The pituitary gland has two main sections to it a top and a bottom opening that secret hormones, feed our glands, and regulate activity of our nervous system which includes the trigeminal nerve. So in a normal process; when a nerve is stimulated the information is received in the pituitary gland, the information from there is then sorted, like if you feel cold the pituitary gland will release the chemical to the gland that will make you get goose bumps as well as other things like reduce blood flow in that areas to prevent heat loss, without you being aware of it. But when a nerve stimulation that is received from a nerve let’s say Your stomach; for instance like been sea sick, your stomach nerves are telling your brain that you are been thrown around but your eyes are telling your brain everything is fine on brain’s side so the stimuli is ignored by the brain and stopped in the hypothalamus area, and therefore the hypothalamus cant cope and so it sends a message back to the pituitary gland for an automated solution required for the stomach to deal with it itself because the brain has over ridden the stimuli received from the stomach, so the stomach nerve is set into a hyperactivity mode for the stomach to deal with and so the stomach thinks it must be something inside the stomach so you keep vomiting even when there is nothing left in your stomach. The brain has our five main senses to rely on, like sight sound touch and smell, and makes a decision on that. So the same happens when our Trigeminal nerve is irritated by blood pressure due to the dilation of an artery, pain is thought to be result from a process called neurovascular compression and in turn hyperactivity of the trigeminal nerve is experienced AKA A CLUSTER HEADACHE ATTACK.

Your Question on the placebo is experimental surgery and it involves putting a gene pill inside your brain. No thanks.
another couple of reasons why I accepted that an artery was responsible was when I first noticed my Cluster headaches when I was training for a motor cycle race in the mountains of Lesotho, where I was travelling through high and low altitude and an attack would always happen when I reached high altitudes. I live 5500Ft (-+ 1700meters) above sea level. I had once been on my way out of a cycle and I went to Cape town at sea level and my headaches stopped for a week while I was there but started back when I returned home. I have also had an attack while boarding a aeroplane and as soon as the plane was pressurised the attack aborted. Another time when I went to South America to a place called Puno, next to lake Titicaca in Peru, where the it is 4000 meters above sea level, and I had attacks every night for a week while I was there. Has anyone else experienced these altitude triggers ?
Ryan 

Hi Jerry Well as you can see I was doing research that’s where I was. Like I said; I have come across this site before but it only offered advice and compassion in dealing or living with CH and wanted results. End of chat.

In the interest of disclosure I am and always will be in a debt of gratitude to Dr. Shevel and my loyalty is to you, I know how you feel and live and try hide from the beast, I Absolutely have no affiliation to the headache clinic except been a patient. I have not received anything from the headache clinic except a some phone calls to hear how I am feeling post my op. Watch my video on you tube.... You guessed it the title is... “Cluster headache cure by Dr. Shevel” watch it and weep tears of joy! 
Ryan

Ryan meet Sam.  Sam meet Ryan.  You two got alot in common.

        Potter

Thank you for the reply. Could you answer my other questions:

Quote:

Is there any difference between treating someone with left or right sided pain? Similarly for their CH pain location which can be in the temple or around the eye? How long is the treatment effective for (i.e. does the process need to be redone every few years)?

Cluster cured wrote on Nov 23^rd, 2012 at 2:54am:

Your Question on the placebo is experimental surgery and it involves putting a gene pill inside your brain. No thanks.

No, this is not correct. For it to be an effective placebo the process must be as close to the "real" process as possible but for the artery not to be touched. The result would be that the patient would not know if they had the real or placebo process done. This would be done for say 40 patients with half getting the real and half getting the placebo. Then the patients would be monitored for a period to see how many CH they get, how severe, etc. If the process is effective then there should be clear differences between the two groups to a level that is statistically significant.

It is also possible to do a crossover where at a later point the patients undergo a second process. For this patients who had the placebo process are given the real one. Again CHs are monitored.

Cluster cured wrote on Nov 23^rd, 2012 at 2:54am:

@ Mike NZ Well what did come first the chicken or the egg. (none it was the rooster) So Is the abnormal function that is happening in our normal hypothalamus while we are been attacked, is it a result or a cause...? Doctors don’t know whether the hyperactivity in the hypothalamus is a reaction from the irritated trigeminal nerve or if the reaction or the irritation of the nerve causing the abnormal brain function well you decide...

Thinking further, it should be possible to determine this scientifically. For most people with CH a CH can be triggered by various chemicals including alcohol. This could be verified pre-surgey whilst undergoing a PET scan to observe the hypothalamus activity. Then the surgical procedure is carried out and the person can be exposed to the trigger whilst being PET scanned. If the blood vessel / nerve is the cause then there should be no hypothalamus activity of the kind associated with a CH. If so, this could be classed as a cure. However if there is CH like hypothalamus activity then it is not a cure but a way to stop the CH pain.

I would say you are correct.
Alternative thought: Is the hypothalamus activity in the brain a result of over stimulation of a nerve that the brain cannot accept or override, (like being sea sick) or is the hyperactivity in the Hypothalamus causing our trigeminal nerve on only one side of our head to become hyperactive, if so then why aren’t any other nerves our body being affected and get hyperactive? 
The trigger like alcohol may be the problem, as far as my research goes the dilating arteries are natural and a common every day action that happens to all of us including non cluster head people, (why is it that we get pain from it and the other 98% of the world do not!?) Like when our brains go into Theta brain wave state when rapid eye movement occurs? Like when we exercises our arteries dilate, when our body runs low on oxygen our arteries dilate, The neurons that control vascular vasodilatation originate in the hypothalamus. So is it a double edged sward. A Cluster attack could be a vicious cycle, a hyperactive nerve can irritate the Hypothalamus and the neurons in the hypothalamus controls vascular dilation.      
When the CH pain is left sided the ligation is done on the left, I guess I had the arteries on both sides of my face ligated because I was in the early stages of developing CH on the right side of my face/head after 6 years of only having them on my left side only, It would make sense to have both sides ligated I would. My ligation is done to the internal maxillary; access to this artery was gained from inside my mouth. (It’s kind of like going to the dentist after the first prick of the injection nothing else is felt, I must say though I had swollen jaws for few days after but otherwise relatively painless especially when you compare it to the Ch pain) there is a ligation that is performed in the temple area, this is for Migraines. However I do remember Dr.Shevel saying to me originally that the CH pain could be caused by any one of our four main facial arteries on the one side of our face (total 8 on both sides), and that he would do the Internal Maxillaries first he did also mention that when people come from overseas to have their ligation done that he ligates all four to make sure. I suppose because I live here it would be possible to could go back for more ligations if necessary. 
No the treatment never needs to be redone and as far as Dr. Shevel told me, the ligation lasts forever. 

If This is a bullshit story then DAM YOU!! If it is not then we will see because i'm going to find out if your telling the truth!! If it is true then that's great it will be a wonderful day for CH and all that suffer but again if its not and this is a bullshit story you will burn in hell 10 fold.......Johnny

Its not shit Jonny, I dont know how else I can prove it to you all... Ive opened my home to you all.. Its pretty disheartening for me to be so happy that Im cured and the people I most want to tell think that I am a fake, I dont know what more you want from me. but I feel your anger, everything Ive said is true. My contact number is +27813567961 call me any time to chat, I do care.

Ryan

Why don't we here this strait from the clinic?? If this was a "Cure" then the cluster headache community would know by the person that created that cure and not from a patient.
I am going to talk directly to Dr. Shevel and see what he says about this and my guess is this may only help some patients and is not "The Cure" but we will see. You have to be dam careful how you throw around the word CURE here as you will be scrutinized to the max so don't feel that this was unexpected..... :-?

Clusterman59 wrote on Nov 26^th, 2012 at 11:29am:

You have to be dam careful how you throw around the word CURE here as you will be scrutinized to the max so don't feel that this was unexpected.....

Well said.

Clusterman59 wrote on Nov 26^th, 2012 at 11:29am:

Why don't we here this strait from the clinic?? If this was a "Cure" then the cluster headache community would know by the person that created that cure and not from a patient. I am going to talk directly to Dr. Shevel and see what he says about this... You have to be dam careful how you throw around the word CURE here as you will be scrutinized to the max so don't feel that this was unexpected..... :-?

Go for it, Funny yesterday morning they were talking about Dr. Shevel the clinic on the radio. The topic arose when a University student wrote into the radio station asking for help with her migraines... a few people called in with their ‘Vanilla’ advise but a few other people called in and suggested she goes and sees Dr. Shevel, And one guy called in saying he had Clusters and was cured by Dr. Shevel almost ten years ago his name was Quinton or Clinton. Dr. Shevel said I must give you his direct email address if you require info about the people he has helped cure in the past, he will oblige, however I doubt if he will put up with any abuse, as I have. He is a respected elder in our community, and a pioneer in this field. He has dedicated his life to help people like us. So watch your attitude dude!

Are you seriously asking “That Question” on why you haven’t heard straight from the clinic, I YOU HAVE...... blinker boy, It was Danny who told you about it, but you all rejected his statements, because you wanted to hear it from someone who had CH’s and has been cured. How many more people are going to tell you how to get cured via Dr. Shevel's Arterial ligation before you stop, shut up and listen?

Been sceptical and reject all and any new information that you all haven’t carved in stone or documented at OUCH. It’s like you all waiting for the CURE to come from something or someone familiar. Trying the same thing over and over expecting a different result.

Do you honestly think that a cure will NEVER EVER be found ?! That CH is here to stay forever? Or is it simply impossible for you to grasp the fact that someone at the tip of Africa knows more than you?  Bring on your arrogance, scrutinized me to the max if you must, I will still assist you as and where I can.

Ryan

Cluster cured wrote on Nov 27^th, 2012 at 1:34am:

Clusterman59 wrote on Nov 26th, 2012 at 11:29am: Why don't we here this strait from the clinic?? If this was a "Cure" then the cluster headache community would know by the person that created that cure and not from a patient. I am going to talk directly to Dr. Shevel and see what he says about this... You have to be dam careful how you throw around the word CURE here as you will be scrutinized to the max so don't feel that this was unexpected..... :-? Go for it, Funny yesterday morning they were talking about Dr. Shevel the clinic on the radio. The topic arose when a University student wrote into the radio station asking for help with her migraines... a few people called in with their ‘Vanilla’ advise but a few other people called in and suggested she goes and sees Dr. Shevel, And one guy called in saying he had Clusters and was cured by Dr. Shevel almost ten years ago his name was Quinton or Clinton. Dr. Shevel said I must give you his direct email address if you require info about the people he has helped cure in the past, he will oblige, however I doubt if he will put up with any abuse, as I have. He is a respected elder in our community, and a pioneer in this field. He has dedicated his life to help people like us. So watch your attitude dude! Are you seriously asking “That Question” on why you haven’t heard straight from the clinic, I YOU HAVE...... blinker boy, It was Danny who told you about it, but you all rejected his statements, because you wanted to hear it from someone who had CH’s and has been cured. How many more people are going to tell you how to get cured via Dr. Shevel's Arterial ligation before you stop, shut up and listen? Been sceptical and reject all and any new information that you all haven’t carved in stone or documented at OUCH. It’s like you all waiting for the CURE to come from something or someone familiar. Trying the same thing over and over expecting a different result. Do you honestly think that a cure will NEVER EVER be found ?! That CH is here to stay forever? Or is it simply impossible for you to grasp the fact that someone at the tip of Africa knows more than you?  Bring on your arrogance, scrutinized me to the max if you must, I will still assist you as and where I can. Ryan

Now that's arrogant.

        Potter

No NHL hockey this year. Bummer.

seaworthy wrote on Nov 27^th, 2012 at 10:31am:

No NHL hockey this year. Bummer.

None whatsoever?

Good God, is nothing sacred anymore?

Brew wrote on Nov 27^th, 2012 at 10:44am:

seaworthy wrote on Nov 27th, 2012 at 10:31am: No NHL hockey this year. Bummer. None whatsoever? Good God, is nothing sacred anymore?

  Who said no hockey?

    Potter

The Federal mediator already got fired. I said Go Bruins not Go Away Bruins

seaworthy wrote on Nov 27^th, 2012 at 10:49am:

The Federal mediator already got fired. I said Go Bruins not Go Away Bruins

Why would the Feds get involved in a hockey dispute?

     Potter

Here's the latest I could find:

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Do you think that just because you say that you were cured and that the "CURE" is now here that were just going to take your word for it??? Nobody knows who you are! We would all be fools if that were the case! So are you speaking for Dr. Shevel now???? Somehow i don't think he would appreciate it!! We haven't heard from the medical community or even a word from Dr. Shevel himself and NOBODY is knocking Dr. Shevel!!! So knock off the arrogant BS and take your medicine!.....  >:(

Quote:

Why would the Feds get involved in a hockey dispute?

Because they can and the league couldn't get it done. I've been enjoying the AHL Games at a fraction of the price.

Go Manchester Monarchs !

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Ryan....How would you know what Danny said????? ;D

The Patriots are doing well this year. Super Bowl caliber.

Quote:

I've been enjoying the AHL Games at a fraction of the price. Go Manchester Monarchs !

seaworthy wrote on Nov 27^th, 2012 at 6:29pm:

The Patriots are doing well this year. Super Bowl caliber.

The NFL's not on strike, why are you watching minor league football, too?


;)




Lions are on their way.   In my next life time.

Quote:

The NFL's not on strike, why are you watching minor league football, too?

Vince Wilfork has you address.

Cluster cured wrote on Nov 27^th, 2012 at 1:34am:

Clusterman59 wrote on Nov 26th, 2012 at 11:29am: Why don't we here this strait from the clinic?? If this was a "Cure" then the cluster headache community would know by the person that created that cure and not from a patient. I am going to talk directly to Dr. Shevel and see what he says about this... You have to be dam careful how you throw around the word CURE here as you will be scrutinized to the max so don't feel that this was unexpected..... :-? Go for it, Funny yesterday morning they were talking about Dr. Shevel the clinic on the radio. The topic arose when a University student wrote into the radio station asking for help with her migraines... a few people called in with their ‘Vanilla’ advise but a few other people called in and suggested she goes and sees Dr. Shevel, And one guy called in saying he had Clusters and was cured by Dr. Shevel almost ten years ago his name was Quinton or Clinton. Dr. Shevel said I must give you his direct email address if you require info about the people he has helped cure in the past, he will oblige, however I doubt if he will put up with any abuse, as I have. He is a respected elder in our community, and a pioneer in this field. He has dedicated his life to help people like us. So watch your attitude dude! Are you seriously asking “That Question” on why you haven’t heard straight from the clinic, I YOU HAVE...... blinker boy, It was Danny who told you about it, but you all rejected his statements, because you wanted to hear it from someone who had CH’s and has been cured. How many more people are going to tell you how to get cured via Dr. Shevel's Arterial ligation before you stop, shut up and listen? Been sceptical and reject all and any new information that you all haven’t carved in stone or documented at OUCH. It’s like you all waiting for the CURE to come from something or someone familiar. Trying the same thing over and over expecting a different result. Do you honestly think that a cure will NEVER EVER be found ?! That CH is here to stay forever? Or is it simply impossible for you to grasp the fact that someone at the tip of Africa knows more than you?  Bring on your arrogance, scrutinized me to the max if you must, I will still assist you as and where I can. Ryan

   Only Danny would know that.  Hi Danny.

        Potter

---

Nope I’m not speaking for Dr. Shevel, I’m quoting him. As I recall him saying to me that, “I can give you meds but if we do the ligation to artery your cluster headache will be gone for good”
Just because you say I’m not cured does that means that I’m not cured?
What about the many other people that were cluster sufferers and oddly enough all of their attacks stopped after their arterial ligation was done.
If I’m Not CURED then please explain why I’m not being woken up at night with a feeling that the skin in my nose is been peeled out, and also explain why that when I was in the one of my cluster cycles of between 5 to 7 attacks a day, I Then one day, had my artery ligated and ever since then I am Living my life again? The correct saying in our case is “You don’t know what you have lost until you get everything back”
@ 10 short; You don’t need to know me, all you need to know is that for 7 years I was living with the cluster demon just like you are now, and now i DONT, I’m not on any meds, no oxygen no Imigran, Just living life drinking Ice cold beer under the hot African sun, Cured.
Why is it unable to conceive that just maybe there is a cure (for at least some of us, if not for all) and the cure is now here, waiting for you? Admittedly in the early stages but It is here none the less.
Perhaps you, clusterman59, haven’t heard from Dr. Shevel, the reason only he can answer, but seeing as you asked me all I can do is guess, and my guess would be, probably because he is too busy helping people who want help. And he can’t be asked to arguing with people who have an itch that they will never even want to know how to scratch.

@Seaworthy, I see all the Anchors are up in arms.

@10 short of a good time: I know what Danny was trying to tell you, because it’s an obvious guess. and I had a chat with him (I wasn’t sure if you were trying to ask me a trick question at first so I thought I’d answer it all the same.) he sure as hell wasn’t trying to make you dependant on oxygen or meds etc.

(this is directly from Danny to me: Aaah, my dear friends at Cluster Headaches .com. They're a tough bunch! Say Hi to Bob Phalow for me if he's still around. Some call him Boss, other's call him Boob. Haha.) thats @ old harry potter the resident side-kick.

Ryan

I hope your pain-free status continues.

If you choose no other treatment between now and the day you die, and it never comes back, then you will know you have been cured.

Well Said Brew!! See ya later Danny Boy!

I can safely say i never heard BobP called boob or boss.

                Potter

      

Hey Ryan you should remember what you already posted....

"Firstly I don’t know who Danny is But my Name is Ryan,"

If you don't know who danny is then why are you quoting him?????? ;D

Clusterman59 wrote on Nov 28^th, 2012 at 2:47pm:

Hey Ryan you should remember what you already posted.... "Firstly I don’t know who Danny is But my Name is Ryan," If you don't know who danny is then why are you quoting him?????? ;D

[smiley=bow.gif] [smiley=bow.gif] [smiley=bow.gif] [smiley=bow.gif] [smiley=bow.gif] [smiley=bow.gif] [smiley=bow.gif] [smiley=bow.gif] [smiley=bow.gif] [smiley=bow.gif]  Nicely done.  I've never given ten before much less a [smiley=cowboy.gif]

            Potter

TIME LINE:

This was posted on the 19th November:
"Firstly I don’t know who Danny is But my Name is Ryan,"

Then I contacted Dr.Shevel and asked about Danny... and then I got Danny's email address and conversed with him then I posted the following on the 20 november

Its called a time-line, It's not rocket science.


Cluster cured wrote on Nov 20^th, 2012 at 3:32pm:

I’ve sent my details to prove that I’m not Danny, I am sorry I did not know who or about Danny until you all brought him to my attention, I do know now who he is.

@Brew : I can go with that for now

I’ve uploaded a video on youTube as proof I am not Danny (cluster headache cure by Dr. Shevel)

I've heard enough! I know what your up to, you have made it to blatant and to easy to see Ryan or Danny or who ever you are. Your "PR" campaign to get people to spend there money in Dr. Shevel's clinic is transparent and if anything is hurting Dr. Shevel's reputation. Even if your not Danny your doing the same crap that got him fired so please just stop pushing Dr. Shevel on us. I will wait to hear from the medical community and Dr. Shevel himself and then I can make up my own mind..... ;)

So will everybody that gets cured by Dr. Shevel going to be Danny or just treated like Danny? What am I up to 59er?- (you ten short tho!) It’s not like I’m trying to sell something, or anything for that matter, by the way I like your jewellery business, have you got a polished healing stone/crystal that cures hangovers or even just one that will cure Beer breath?

You my 59er friend will probably never hear from Dr. Shevel, but what you can do (for you and your loved ones around you) is to stop seeing yourself as a victim, and keep your two eyes out for the "American Journal of Maxillo Facial Surgery" (for proof) that has just accepted as a study from Dr. Shevel that he has done on the procedure for cluster headaches, pending a few suggested changes. When the article is published, Danny will post it to Ch.com.
No doubt it will It'll have no effect except to generate a round of mudslinging, but he'll have done his duty by posting it. (another thing i chatted to Danny about.)
P.S. if you really have read enough from me, 69er minus 10 is,,,, click on ignore, it’s a little icon on the left hand side of the screen.
my reasoning is that if I can help just ONE person... I’ll be done. otherwise if you want to yawn at a cure... bye some EXPENSIVE hand polished stone (Not).. or keep chating to me... your call:) Fire me if you want, clown.

Hi Cluster Cured,
I've been reading this thread for days and have yet to comment until now...

As you are a Newbie with minimal posts, you must understand a few things about our family here in Clusterville...

for starters, thousands of us CH'ers that have been on this website for many years have read posts from those claiming they have a cure, a remedy to prevent and abort, etc that has been less than credible to say the least.

While your belief is that of a cure, we CH'ers here on this website known as Clusterville have more knowledge than any medical doctor or professional organization regarding CH's.  In fact, most headache specialists and neurologists have gained their education from us on this website.

With that stated, your hypothesis of a cure has obviously been shunned.  You have made your claim to fame here on this thread.  It is no doubt duly noted.  However to argue and personally attack (even in self defense of those attacking you) is at this point worthless and only creating further animosity.  In other words, give it a rest dude!

If and when Dr. Shevel's reports are published, we will review and consider what is stated and compare our notes for further evaluation.

Congratulations that you believe your CH's are cured by this ligation procedure.  Best of luck!

-Gregg in Las Vegas

PS  You misposted this thread as it belongs at the Medications, Treatments, Therapies board. :-X

Cluster cured wrote on Nov 29^th, 2012 at 3:35pm:

So will everybody that gets cured by Dr. Shevel going to be Danny or just treated like Danny? What am I up to 59er?- (you ten short tho!) It’s not like I’m trying to sell something, or anything for that matter, by the way I like your jewellery business, have you got a polished healing stone/crystal that cures hangovers or even just one that will cure Beer breath? You my 59er friend will probably never hear from Dr. Shevel, but what you can do (for you and your loved ones around you) is to stop seeing yourself as a victim, and keep your two eyes out for the "American Journal of Maxillo Facial Surgery" (for proof) that has just accepted as a study from Dr. Shevel that he has done on the procedure for cluster headaches, pending a few suggested changes. When the article is published, Danny will post it to Ch.com. No doubt it will It'll have no effect except to generate a round of mudslinging, but he'll have done his duty by posting it. (another thing i chatted to Danny about.) P.S. if you really have read enough from me, 69er minus 10 is,,,, click on ignore, it’s a little icon on the left hand side of the screen. my reasoning is that if I can help just ONE person... I’ll be done. otherwise if you want to yawn at a cure... bye some EXPENSIVE hand polished stone (Not).. or keep chating to me... your call:) Fire me if you want, clown.

   Isn't this unacceptable by the standards set forth?  Locked would work.

                 Potter

               

I agree with Gregg..... And Potter..... This mans actions speak louder than words.....

The Dr you are talking about his name is Elliott shevel of the headache clinic for migraine?

Just to add some balance.

From what has been described I can see that there is the potential for the treatment as descibed to possibly remove the mechanism by which CH pain is generated.

I'd like to see more, especially the paper(s) to be published in peer reviewed publications.

As to considering it for myself, at the moment I'm not in cycle and vitamin D seems to be working wonders. However in the future this may not be the case and I might re-evaluate things based on the evidence available.

dannyboy wrote on Mar 26^th, 2007 at 9:13am:

Hi Charlie, Interesting post about redirecting blood flow If you can change the blood pressure in the scalp, or the brain to a much lesser extent..... Obviously ligating a superficial artery has a similar effect on extra and intra cranial pressure I, of course, would never advocate that type of barbarism! Cheers Danny

   Do ya s'pose it's coincidence?

                    Potter

I'm with Mike.  This does seem to pose a possibility of some relief for some,  However, I will have to wait to see some peer reviewed articles or something much more substantial than an abusive 15 poster with a video claiming a cure.  I truly hope he is cured, but although I'm not from Missouri my Dad is, and you'll have to show me.

Jerry

If i had heard this treatment from a credible source in the beginning i too would be interested in learning more about it.
However until that source presents itself i would  have to take this treatment and add it to the list of many other possible treatments and treat it as if a  grain of salt..... :-?

Patriots play Miami tomorrow. Should be a good game.

Seaworthy, thanks for changing the subject.
91 replies spread over 4 pages is a bit much for a non-subject.

My grandson asked me yesterday if the Cowboys were about through for the year. I told him they were "about" through in Sept..  ::)  (he didn't get it) :-*

Maybe "Cured" will... ;)

Patriots=Division Champs !!!!


Quote:

Seaworthy, thanks for changing the subject.

Like Hi-Jacking a garbage truck.

Good one Barb.!!!!!!!!  Lmao.   Oops, i just bumped this which i sure didnt want.  Sorry.    :-X

Well there we all have it.

No problem Gregg, so even though I’m now cured, I will visit this site occasionally even if it is just to update you on how I am doing. I'm sorry for my arrogance I was once very jaded... Old habits die hard.

@Mike NZ: thank you for the asking your questions.

Go it, BarbB, I'm Laughing My Arteries Out!

Take care, may you all live pain free.

You don’t know what you have lost until you get it all back!

Ryan

Bye

[quote author=262930363120371A03372020450 link=1353155012/75#75 date=1354126637]Nope I’m not speaking for Dr. Shevel, I’m quoting him. As I recall him saying to me that, “I can give you meds but if we do the ligation to artery your cluster headache will be gone for good”

Although the previous threads here are relatively old, I have read them all with great interest. I am a newbie to the site but comment as my husband is a CH sufferer, we also live in SA and he has been to Shevel for the ligation treatment. I am very happy for Cluster Headache CURE that he found relief in the treatment he received (unfortunately in my husband's case, he was not so fortunate).
In retrospect, I would have done FAR more research than that which we did pre-treatment and even now would warn anyone considering the treatment, to SERIOUSLY not consider it.  Desperation can lead to silly decisions and that is the case with us.  Not only have we spent thousands of rands on having the treatment done - hence I have highlighted the sentence posted in Cluster Headache CURE's post above - my husband was told the precise same thing - seems to be a pitch in selling the procedure to possible candidates.
To cut a rather long story short, not only did the first ligation procedure not work (involved one cut on either side at the back of his head, cuts on each temple, cut above the right eyebrow, as well as cutting inside the mouth), he went back to Shevel as the CH did not cease. And he went back twice more after that - having two separate procedures done in one day. Botox injections did not work.
Needless to say, after all the thousands of rands spent on having the procedure done, he still suffers from CH and we are STILL spending wheelbarrows full of money on medication.
We don't live in the city Shevel is in and have to spend a fortune on transport getting to the clinic. Granted, he has footed the bill for two airplane trips to Johannesburg, but I don't feel in the least indebted to him for doing so.
So......what is the epilogue to this absolute nightmare story?  Shevel's advice is that my husband is to return to the clinic AGAIN as he is 'willing to operate'. But we have to pay our own way to Johannesburg and of course if the procedure doesn't work - fifth time around - well, what can Shevel do - at least he has loads of desperate people like us who are willing to do whatever it takes to perhaps have relief from this headache from hell.
My question is - cut our losses and have respite in the knowledge that by posting on forums such as these, we may warn others not to go the same route we did, approach a medical board to attempt to recoup some damages, return for a fifth procedure in the hope that this time around, something works and the CH is aborted for good?

bakedcluster wrote on Sep 3^rd, 2013 at 4:43pm:

[quote author=262930363120371A03372020450 link=1353155012/75#75 date=1354126637]Nope I’m not speaking for Dr. Shevel, I’m quoting him. As I recall him saying to me that, “I can give you meds but if we do the ligation to artery your cluster headache will be gone for good” Although the previous threads here are relatively old, I have read them all with great interest. I am a newbie to the site but comment as my husband is a CH sufferer, we also live in SA and he has been to Shevel for the ligation treatment. I am very happy for Cluster Headache CURE that he found relief in the treatment he received (unfortunately in my husband's case, he was not so fortunate). In retrospect, I would have done FAR more research than that which we did pre-treatment and even now would warn anyone considering the treatment, to SERIOUSLY not consider it.  Desperation can lead to silly decisions and that is the case with us.  Not only have we spent thousands of rands on having the treatment done - hence I have highlighted the sentence posted in Cluster Headache CURE's post above - my husband was told the precise same thing - seems to be a pitch in selling the procedure to possible candidates. To cut a rather long story short, not only did the first ligation procedure not work (involved one cut on either side at the back of his head, cuts on each temple, cut above the right eyebrow, as well as cutting inside the mouth), he went back to Shevel as the CH did not cease. And he went back twice more after that - having two separate procedures done in one day. Botox injections did not work. Needless to say, after all the thousands of rands spent on having the procedure done, he still suffers from CH and we are STILL spending wheelbarrows full of money on medication. We don't live in the city Shevel is in and have to spend a fortune on transport getting to the clinic. Granted, he has footed the bill for two airplane trips to Johannesburg, but I don't feel in the least indebted to him for doing so. So......what is the epilogue to this absolute nightmare story?  Shevel's advice is that my husband is to return to the clinic AGAIN as he is 'willing to operate'. But we have to pay our own way to Johannesburg and of course if the procedure doesn't work - fifth time around - well, what can Shevel do - at least he has loads of desperate people like us who are willing to do whatever it takes to perhaps have relief from this headache from hell. My question is - cut our losses and have respite in the knowledge that by posting on forums such as these, we may warn others not to go the same route we did, approach a medical board to attempt to recoup some damages, return for a fifth procedure in the hope that this time around, something works and the CH is aborted for good?

      Thank you.

         Potter

I will add my thanks to Mr. Potter's. Then, I will answer your question with my own anecdotal data, short and sweet.

- Been here since 1999 - some of the old timers know me
- I was chronic with CH's for 14 years, but I have my pain free life back
- I reached this point without bizarre surgeries, or dangerous drugs
- My biggest regret is that I didn't listen sooner

We are all different and some things work better than others for some people. Invest a modicum of research here and you will find answers that you never dreamed were possible.

Marc

I,  2nd. and 3rd. Marc's advice.

  There is so much information on this site.  Please read until you understand it all.  It may take several days.

what Marc said!  Not PF yet, but I have my life back.

Wow, what a thread. I don't know if Dr. Shevel is ligit or not.  I do see a lot of correlations to my belief system regarding CH.  I do believe there caused by the swelling of a artery pushing up against a nerve.  I suffered too, but no longer, remission / cured, call it what you want.  I guess my point is don't ever give up.  I did it, you can too.  Just my opinion, you can yell or swear at me if you want; I've been through hell and back, I can take it.  God bless ya all.

Now I'm really disappointed.  Danny Boy told me he was black but now I find he is as white as my sitting on part:
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Bob P wrote on Sep 11^th, 2013 at 8:14am:

Now I'm really disappointed.  Danny Boy told me he was black but now I find he is as white as my sitting on part: START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

That's funny.

    Potter

Hi Guys,

I'm Danny. Ryan is a patient of ours. Was :) Sometimes we succeed. Sometimes we fail :( Sometimes our successes are instant. Its not common but does happen. Ryan was one of them

There's a link on Clusterbusters that addresses much of this and I've just updated it

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My apologies for being tardy, I know how much I'm missed

Where's Dennis O? Is he still around? I still wanna be him. And sailpappy? is he still alive? He doesn't like me much but one day he caught Jonny. I wish I could catch Jonny.

Its better for us to treat chronics. Then there's no question of cycles ending

Hi Bob! I missed you too :) You still the boss around here?! Dude, please, I'm in cognito. That twitter pic is not really me. My fro is just not credible when it comes to science 

I wonder if the new York rangers have what it takes to beat either the Chicago blackhawks or the LA kings?

Interesting thread this. I was treated by Dr Shevel when I lived in South Africa. Quite an odd bloke actually, i went to see him for a second opinion when I was first diagnosed with CH and really didnt like what I was hearing about how the rest of my life was going to be. His team did a series of tests, confirmed the diagnosis of CH, put me on verapamil and told me all about oxygen as an abortive, 100% for that. Then they tried to sell be a massively expensive mouth piece (similar to a protector that you use for sport) that they swore would cure my CH by keeping my tongue off the pallet of my mouth. By that time I had found this site and was a little wiser so obviously declined the offer.
That mouth piece thing is the clinics main claim to fame and income generator and its used to treat tension headaches, with variable success I may add. The major medical aid groups there wont have anything to do with him.
He called me just before I left SA to tell me about the cauterization procedure. I never followed up as I put it in the same basket as the mouth piece.
I think he seriously believes in what he is doing but can be pretty unscrupulous wrt recommending things that will provide him with an income but not necessarily help the patient.

I had the exact same experience as Wayne, the mouth piece did absolutely nothing for the headaches, but from what I know almost every person who goes to the clinic gets one of those!!!!

Having read the entire thread from beginning to end today I cannot help but ask myself the question: How is it that Cluster Cured knows so much about the CH's and the hypothalamus and and and.... Is he getting his information from Shevel. I have had these demons visit me every year for the past 15 years, I have read so much information on them but if you had to ask me about them there would be no way that I could use the terminology that Cluster Cured uses. Or is he just copying from Wikipedia????

Cluster Cured, I am really happy for you that you have got rid of the pain caused by clusters but I don't think you have actually found the ROOT cause of a cluster, and until the root cause is found, with no doubt, there cannot be a cure.

Another question I have is regarding "triggers" why do these CH's only appear for a few months at a time if I do not change my diet or way of living for the rest of the year. Surely a trigger would "trigger" a cluster each time I take the "trigger" Like a migraine, a known trigger is chocolate (for some people) and every time they eat chocolate they will get a migraine. I change nothing but every year when it is high summer I suffer with them for about 2 months, but as I said I never change my eating habits or my lifestyle?? This is really confusing me.
Bless you all. ;)

Would seem to me he cares more about his bank balance
than his patients.

Hoppy

I'm from Johannesburg, South Africa. Dr Elliot's home town. I see some negativity on a few forums however he has also had resounding success with some individuals. I tracked a few patients down using their testimonials and made surprise calls. The treatment did not work for some and on the other hand I get laughter from those that are headache free for some 5 years. I will schedule in-person visits to see whats up. Works for some...others not. Guess that's just how the cookie crumbles. A family member (Mum) in need of treatment has seen Dr Shevel a few days ago. She felt instant relief when Dr Shevel placed a pressurized band around her head. Almost 100% pain relief. This is evidence to suggest that the arterial cauterization procedure may infact work... (head band pressing against arteries effectively simulating post-surgery results). I'm doing as much research as I can and over the next few days I will personally visit a few patients who have had success. I will report the results here. I'm not saying I'm sold on the idea of the surgery... its just that there are some people who are happy after the surgery and the pressurized head band seems to work. I'm just as skeptical as you guys are. I just hope there's a good chance that this is a good solution. Will let you know...

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HoustonP wrote on Aug 14^th, 2016 at 4:51pm:

I'm from Johannesburg, South Africa. Dr Elliot's home town. I see some negativity on a few forums however he has also had resounding success with some individuals. I tracked a few patients down using their testimonials and made surprise calls. The treatment did not work for some and on the other hand I get laughter from those that are headache free for some 5 years. I will schedule in-person visits to see whats up. Works for some...others not. Guess that's just how the cookie crumbles. A family member (Mum) in need of treatment has seen Dr Shevel a few days ago. She felt instant relief when Dr Shevel placed a pressurized band around her head. Almost 100% pain relief. This is evidence to suggest that the arterial cauterization procedure may infact work... (head band pressing against arteries effectively simulating post-surgery results). I'm doing as much research as I can and over the next few days I will personally visit a few patients who have had success. I will report the results here. I'm not saying I'm sold on the idea of the surgery... its just that there are some people who are happy after the surgery and the pressurized head band seems to work. I'm just as skeptical as you guys are. I just hope there's a good chance that this is a good solution. Will let you know...

   If yer Dannyboy fer sure go and get some cauterizing of yer brain,  if not don't waste your time.

               Potter

Good morning all

I am ew to this site and do not know of Danny or The doctor and I know there is no cure at this time. My cycle is hopefully ending and I'm getting nothing but shadows most of the day. After reading all the comment from cluster cure I put my finger in my mouth and pressed firmly on the outside of my upper gum at my back teeth. I don't know if it is in my mind but the shadow seemed to stop. I would like to know if anyone with a dancing headache would try this and if it would help. Just trying to help

Ilndguy

Ilndguy,

Sounds a bit weird, but then CH is weird. I'll give it a try and let you know.

Cheers,

Peter.

Oh, Danny boy, the pipes, the pipes are calling
From glen to glen, and down the mountain side.
The summer's gone, and all the roses falling,
It's you, it's you must go and I must bide.
But come ye back when summer's in the meadow,
Or when the valley's hushed and white with snow,
It's I'll be here in sunshine or in shadow,—
Oh, Danny boy, O Danny boy, I love you so!
But when ye come, and all the flowers are dying,
If I am dead, as dead I well may be,
Ye'll come and find the place where I am lying,
And kneel and say an Avè there for me.
And I shall hear, though soft you tread above me,
And all my grave will warmer, sweeter be,
For you will bend and tell me that you love me,
And I shall sleep in peace until you come to me!

Llndguy, I've long done something very similar. No idea how it works but I'm sure it does.