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Dear headache afflicted people and those who know someone afflicted with sever head pain.

I`m sorry for posting my remedy for this affliction as people have indicated to me , there is no cure, and maby i do have my head up my butt, so i am retracting my posting due to the thoughtless nature of these responces.

Hello Again due to recent posts left by several people and an email to me I was prompted to reassess my retraction of my story, I feel that maby I was a little selfish in my retraction of my post for there are many more people reading this and maby considering what I have to convey than to poor responses I received I think I am much better than that so I will offer my posting once again.

As for the word “Cure” Please replace this with (in complete control of my CH), I do not know how to change the introductory heading but it seems to attract readers to my posting and this may be a positive thing.

Dear headache afflicted people and those who know someone afflicted with sever head pain.

My name is Falco

In the early day of my life I was afflicted by this pain I was in grade 7 when this horrible pain developed in the right side of my head, face eye and shoulder, It is difficult to describe for there was nothing worse than this pain I could compare it to ma-by burning in a fire is somewhat akin, as best I can describe it is a steady pain starting in the right side of the face, the right eye starts to tear and a dull pain starts in the right shoulder as the pain progresses to the point of utter sobbing, screaming and wanting for death until 45 or so min later it abruptly stops and all is good except for a sense of personal violation perhaps. All can be good for several hours ma-by up to a day, it can come back at any time day or night waking up from a sound sleep in sever pain, I have had days where I was afflicted up to 14 times in the day with a duration of approximately 45 long each.
Doctors could not help me, they described my affliction as Migraine headaches , Migronus neuralgia and cluster headaches, and for 13 years they tried to help by providing me with a large and numerous amount of pharmaceuticals with no positive results, pain killer type of med like Tylenol 3 made absolutely no difference Evan at overdose levels of 8 T3s at one time.
Anyway any one afflicted with this need no more details than what I described and I will get on with why I am writing this letter.
I have cured myself at the age of 24 years and lived without this pain for 10 years, at the age of 35 I started to get this pain back, I knew how to cure it but I wanted to approach a doctor so that I could help illuminate the cause I had the proof in my body and I wanted them to find and verify the cause. well in short order the doctors I approached wanted my medical credentials for they we unwilling to listen to me and made there displeasure known to me that I was not qualified to give my opinion or advice.
I gave up and cured my self again I am now 52 years old and as of 2 weeks ago I started getting the pane again but I found that there was a precursor to the on-slot and that is what doctors describe as restless leg syndrome (a feeling like your feet are hot soon after bedtime and a shaking or vibration motion or actually cooling the feet and legs alleviates the discomfort)
So now down to the nity grity , I am writing this now because I have the reminder so long forgotten
and the knowledge that so many people are afflicted from this horrible pain and I want to help.
you want to know how to cure yourself and this is what I found.

I found that I had a small piece of feces stuck in my rectum area just inside the sphincter and would not come out during normal bowl movements, forcing hard to evacuate this caused it to block and if forced at hard enough would partially come out then as I relax from exhaustion it creep back inside so I purchased and enema device and some surgical rubber gloves and stubbornly proceeded to dig, push this out of me all the wile giving myself small amounts of fluid up my rectum so I had something to force against internally with, also it seemed to help cleanup fragments and so on I found that the piece was very offensive in Oder so if you smell something offensive it is probably what you are looking to get rid of. I just completed this for the 3rd time in my life and it still works and now for me no more restless leg or head pain.

Hello Barbara
I red your post this morning, i might need to clarify my self somewhat, i am usually quite regular my self but what i found did not seem to be affected by roughage, x lax, or prune juice for i have tried this, it was the best way i can explain it is akin to a pocket of skin where feces is deposited forcing bowl movements seem like filling the pocket the harder i tried the deeper into the pocket it is forced, now i`m not cretin if there is actually a pocket in there or not.
the only way i could get it out was to insert my finger feel around inside most of it felt very soft and supple at the same time i started to push as tho i was have a bowl movement as i did so i felt a hard nodular like small mass touching my finger i had to move it around pushing it, moving it side to side and so on all the wile keeping a steady force like having a movement for if relax it pulls back up inside me out of reach of my finger, this is where the enema comes into play, it is not so much the flushing i used it for but something for me to push with, i did not use a large amount of liquid maby a liter or so but it made it much easier to apply and hold the abdominal pressure i required to hold the nodule at a location i could reach with my finger so i could manipulate it, it took quite a bit of effort to remove this the first time when i discovered this 30 or so years ago this time it was a bit easier, i would like to be clear i do not personalty use the enigma as a daily weekly monthly or even yearly cleansing i used it as a tool to help me apply the pressure i required, I felt that trying to do this may have caused an annurisum for it required a lot of effort without it.

I hope this clears things up for you a bit and i`m not certain this will help you all i can say is it made a world of difference to me and a way better quality of life.

I understand the reluctance of people to consider what I have described, believe me I’m not found of doing this to myself ether but at the time I only had 4 choices, the first of which is to just live with it as my last doctor suggested to me I will describe the other 2 choices that I did not relay to you for it is a treatment of the symptoms instead of solving the problem
The first one is a visit to and old chines man that provided acupuncture treatments out of an old house in downtown Vancouver, He inserted needles in my right hand,forearm,shoulder area, upper and middle back. This is the first time any treatments had an effect on the pain, I was driving home and I started to get the pain back, I looked for a Quiet place to pull over for I could not drive when afflicted with this pain as the pain progressed into a full blown episode to my surprise the pain kept increasing to a point of disbelief it got so much worse than I could ever believe or imagine and all the rest of the day and night it was so, I immediately contacted this man for another appointment for the morning, I described what had happened and proceeded to tell him about the ever nagging lower back pain that is constantly associated but brushed of as a back problem and requested him to insert needles a bit lower on my back if he thinks that is OK, he once again inserted needles as before but included 2 more, on in the lower back and one at the top of the gluteous (i`m sorry I don’t know what to call it but you get the idea)
This time on the way home the headache started again but I could not find a place to pull over and decided to push on for as long as I could, this time the pain was different and in a very positive manner, I managed to get home and from that point on for almost 8 months I no longer had headaches, what a wonderful thing to happen.
During this time I managed to obtain work and I had to relocate to a small town in B.C. Called Kitimat all was excellent for many month’s but as it goes all good things come to an end eventually and I started to get them again but as irony is acupuncture was not a medical option in those days so the only option presented by the doctor in Terrace was to try low level electric shock therapy, he placed a wet cloth electrode at the top of my neck and the other one on the right gloot then started a pulsating electrical current for about 15 min, this helped very much but the results were short lived but good enough to complete the job I had.
To finalize my post through the time I had relief of pain I realized that the way I was having bowl movements was not natural and I might have just considered this to be the way it was suppose to be and not an issue (when you live with something long enough it becomes a moot point and the way it is suppose to be and feel) now I know this feeling was wrong which led me to pursue actions on my first posting and now I know what it is suppose to be like and feel like.

Thank you all for your consideration and I hope that this helps you make your decision what ever it might be.

Let me be clear every time I underwent as I described there was immediate gratification, within minuets the CH was gone and for a considerable duration in time as you read, there was not even a hint that I have CH or ever have had it

Good luck and Best wishes to you all Falco

Falco, my sincere thanks. You've made my day.

Going out to get an enema bag as soon as I finish typing this. Falco...does it have to be a non-rebreather enema bag or will any kind do? 8-)

Jimi wrote on Apr 7^th, 2013 at 8:38am:

Going out to get an enema bag as soon as I finish typing this. Falco...does it have to be a non-rebreather enema bag or will any kind do? 8-)

Jimi...make sure you get a regulator with high lpm for you bag. [smiley=rolleyes.gif]

Quote:

I gave up and cured my self again I am now 52 years old and as of 2 weeks ago I started getting the pane again

I guess it wasn't so much a cure then, was it?

Your approach is priceless.

Jackie wrote on Apr 7^th, 2013 at 8:48am:

Jimi...make sure you get a regulator with high lpm for you bag. [smiley=rolleyes.gif]

And make sure you get shoes to match it.

One enema device..........12.99
One pkg. latex gloves........4.99
One pkg. sterile solution....2.99

Big chuckle on a chilly spring morning..........priceless.

i`m not certain if your post is of a comical nature but if your wiling to continue life living in pain so be it, my post is no joke
the relief is almost e mediate and lasted me for 10 years or better

Where's that finger-drumming gif when I need it?

Best,

George

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and they walk among us and once in a while are known to breed. Heaven help us all! ;)

Quote:

they we unwilling to listen to me and made there displeasure known to me that I was not qualified to give my opinion or advice.

Maybe they detected an offensive odor.

A quiet biological danger made a big splash in 1980 when
it mysteriously emerged in the playful innocence of the pool
at the plush Bushwood country club.
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Children became terrified.
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A high priced expert with delicate specific skills was called in.
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He was known for fearlessly rooting out even the big
buggers with his bare hands.
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The hero was able to isolate the terrible hazard
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and dispose of it properly
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bit by bit.
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Bushwood was Bushwood again.
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Doodie diggers get all the girls.
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...there was this fella named Albert....had a theory about Energy....they're using Dr. Hubble's "scope" to
figure it all out....maybe they can point it "inward"?

...myself...there's another theory I already understand...called "Pat's Theorem"...it gets proven OVER and OVER again....

...perhaps a corollary is appropriate...something like:
(a)POS=SFB...dunno...more research needed.........I'll contemplate it over a Baby Ruth....

j

“There is a principle which is a bar against all information, which is proof against all arguments, and which cannot fail to keep a man in everlasting ignorance—that principle is contempt prior to investigation.”

It seems that yet another piece of the puzzle is being revealed... slowly.

I've been trying to keep my bowels clean for years, but I'm also very regular... enemas per'se aren't very helpful, but an imbalance in our biochemical physiology, at any age, is certainly a contributing factor.

Think about the production, purpose of, and cyclical/circadian nature of bile secretions and/or other hormones and you might see a point to all this crap... ;)

Peace Of Mind

Well, I've given this some thought this morning and as most of you know, I've tried about every thing that's been on this board over the years.... from tobacco sauce under the tongue to banana peels around my head to ... well you get the idea,...

SO, that having been said... I've thought this one thru but not having time to go shopping, I went thru the house to see what was available to try this new remedy... All I found was a 1/2 gallon of PRUNE JUICE...

So I says to myself, "Self, this should work as well as any old enema - RIGHT?"

So I'll sign off now -- will get back to you later this week with the results of my "research"... :-*

Chuh wrote on Apr 8^th, 2013 at 6:37am:

Excellent post....well thought out and presented....applicable, upon reflection, to many of the formerly derided treatments that have proven to be life/sanity/pain savers (e.g. Vit D, Psychoactives, even O2 in some respects, et al).

Bowel/gastroenteric health is of immense importance...both physiologically and mentally...with applications to all kinds of other bodily functions and conditions...mayhaps even CH.

But...proposing a ch cause/cure relationship with a piece of feces stuck/unstuck adjacent to the sphincter.... is beyond my ability to think outside the box. Upstream is another story...worth consideration. In the meantime...I'd get a gastro to fix that puppy pocket.

While I may pooh-pooh at my own peril....aint gonna lose any sleep over this one.

Best,

Jon

Call me crazy butt... I think you just happened to go out of cycle when that other event happened.

While in cycle, had to have a colonoscopy, which they clean you out for... and also had a barium enema study where they take and stick a hose up your butt, expand it so nothing leaks out, then they pump a HUGE IV bag of liquid into you, roll you around on the table and take 'pictures' for about 25 -35 minutes.
I thought I would bust open! The pressure of all of that liquid inside of me was horrendous.

Mind you, I had to prep for this by doing a liquid diet all day the day before the exam, then at 4pm start drinking a glass every 10-15 minutes of this 'flush out laxative' and, had to drink a whole gallon until it was gone, then give myself an enema early in the morning. That flushed me out, or so I thought.
Once the procedure was done, the machine began to suck the majority of the liquid back into the bag. They told me I might have to use the restroom afterwards... and boy did I ever!

I shat for a minimum of 30 minutes straight! Everything that had built up inside of me due to having intestinal issues and diverticulosis came out. I thought it would never end! When I was finished though, there wasn't anything left in me. I was (not kidding) EXHAUSTED from having go so much.

In the end, there was nothing left to be lodged. There was zero change in my CH though. However, on the upside, nobody could accuse me of being full of shit after that. I got it all out. ;)

Quote:

i cured my headache

Falco. There is no CURE for cluster headaches. There are treatments, but no cure. Period.

I caution you or anyone else that using a finger or any object to clear something from inside the rectum may result in a perferation of the lining that may result in serious problems up to and including Death.

Have you ever had a Colonoscopy? I have had 5 and never have been told there was something stuck. Had CH for 25 yrs.

I reckon this offers great hope as a treatment/cure for our dread disease.

It just depends where your head is at time of application.

AussieBrian wrote on Apr 10^th, 2013 at 5:22am:

I reckon this offers great hope as a treatment/cure for our dread disease.

It just depends where your head is at time of application.

Brian, you have the vision!

opticanalitis --- a condition resulting from having one's head implanted so firmly up one's a$$ that all one can see is $hit

deja-moo --- I've heard this bull$hit before.

:D

This thread brought back some memories from 25 yrs ago when my CH began. During an attack I felt the need to go immediately, and many times I was blocked. After forcing it out the attack would stop.

I told my Neuro who had done extended research with CH patients at Univ. of Mich. He told me one of his findings was "the digestive tract shuts down during CH attacks." A cause or because of, he didn't know.

The same thing doesn't happen to me now, but. Another theory?

There is no known cure for CH so using that word will anger many.

Don

Hey, Skyhawk5,

Thanks for your most recent post. A reasoned response to a clearly vulnerable target. At the risk of being pigeon-holed myself, I must say that I have felt as though I have been a bystander while an innocent has been taken down and kicked for no good reason. The kicking continues until the participants adequately show their allegiance to the group.

I feel really crummy inside, thinking about my own struggles with CH. My guess is that many sufferers have spent a significant time, pathologically alone, pondering the origins, exacerbating factors, mitigating circumstances, and even 'cures'...only to have the beast shove it up their collective butts with a "So, you think you can figure this out, do you?" retaliation that we most likely will never figure out.

I expect to be a target for my thoughts. Hell, I've lived through a fair share of grief in my trips around the sun. Still, I have some deep discouragement when I witness an obviously well intentioned person struggle to try to present an hypothesis only to be ridiculed.

So... thanks for being kind, and for helping him to perhaps regain some dignity through your suggestion that it was the word "cure" that riled up the natives. I, for one, appreciate it.

Life with CH is tough enough....

Take care.

Anyone that believes that cluster headaches can be cured by digging around in one's ass for stray fecal matter should expect a fair amount of negative responses when publicly proclaiming such a theory. No matter how well intentioned, such an hypothesis invites ridicule.

What the OP got in this thread is far better than he would have received here a just few short years ago.

The OP is invited and encouraged to stick around....read....learn and find things that will genuinely help his fight against clusters.

So the RX. is lots of roughage IE. fruits and vegetables and poke around in yer butt with your finger. And that folks is why monkeys don't get cluster headaches.

Potter

I'm not certain in your interpretation of my post as to how this could Relate to your post, you might want to study it a bit further, do you have daily occurrences of CH ?

I wonder if a study has bin performed with respect to sexually permissive woman indulging in anal sex or the fem counter part of homo sexual couples instead of considering a primate species.

Falco wrote on Apr 15^th, 2013 at 6:41pm:

I'm not certain in your interpretation of my post as to how this could Relate to your post, you might want to study it a bit further, do you have daily occurrences of CH ?

Nope I'm pf for over 3000 days thru the real deal......busting. I do poop every day though..just sayin.

Potter

Falco wrote on Apr 15^th, 2013 at 6:48pm:

I wonder if a study has bin performed with respect to sexually permissive woman indulging in anal sex or the fem counter part of homo sexual couples instead of considering a primate species.

That's the second dumbest post ever. You got the top two though.

Potter

Busting Hmm had to check that, once again you have commented on my post but you did not seem to understand as to what exactly i am saying, I will Dumb it down for you, Through no external requirements i no longer get CH! my last recent on slot was imedeatly curtailed and i live free of CH.
Busting, i looked it up, O2 cost money, vitamin d3 cost money and the description of your busting regiment has many facets to it`s implantation and quite complicated and it also seems that the war goes on for you for you will half to continue busting were my war has ended for me.
You clam 3000 days, are you "busting" ? i am combined over over 8395 days and counting of complete remission of my CH.

The term busting :

Hey Christine,

I'm sorry the anti-inflammatory regimen isn't working to prevent your CH just yet... Do you still have oxygen therapy available to knock down/abort the CH attacks?

Yes, it's possible you're among the 20% who don't have a favorable response...

That said, we're beginning to understand there is usually a reason or reasons why some CH'ers don't respond to this regimen... so don't throw in the towel just yet... There are also a lot of benefits to vitamin D3 therapy beyond preventing CH...

The general approach at this point involves "tuning" the regimen. You've already elevated your 25(OH)D into the green zone so stick with your present dose of vitamin D3...

Now we need to look at ways to ensure the 25(OH)D that's not being metabolized by the kidneys to maintain calcium homeostasis has everything it needs to be metabolized extrarenal (outside the kidneys) at the cellular level throughout the body... and brain to 1,25(OH)2D3, calcitriol.

This path of vitamin D3 metabolism is called the autocrin/paracrine route that enables genetic expression. It requires vitamin A (retinol) to metabolize 25(OH)D into 1,25(OH)2D3 and more vitamin A in order to bind at a vitamin D3 receptor (VDR).

Viral and bacterial infections can also soak up available 1,25(OH)2D3 activating your immune system's T cells. Have you had a cold, the flu or an allergic reaction over the last few weeks?

I realize this is so much mubo jumbo and that you want to know the time, not how to build a Swiss watch... so here's what's worked for other CH'ers who elevated their 25(OH)D into the green zone, but didn't experience a significant therapeutic effect...

1. Quit the calcium supplements for a week or two.

2. Increase the magnesium intake to 1000 IU/day. Magnesium citrate or magnesium gluconate have much better bioavailability than magnesium oxide...

3. Make sure you're taking vitamin A (retinol) at RDA... ~ 700 mcg (2,333 IU) for women.

4. A low systemic/arterial pH (too much acid) can also interfere with just about any CH preventative. The steps you can take here include a change of diet to make your system more alkaline (less acid)...

Cut back on red meat, cut out sugars, gluten and peanuts... Eat a GOMBS diet with a handful of Greens, Onions, Mushrooms, Beans/Berries and seeds a day.

You can find more about the GOMBS diet at the following link:

Falco,

I refuse to copy and paste all the offensive posts of yours. Please understand that there are very young people who read this forum. (YES...kids get CH too and they come here often)

Please refrain from anymore references as in one of your most recent posts. Like Bill Mingus has said...please do some reading around here for information on the latest treatments so you can be informed and keep your offensive posts to private messages.

Thank you. Thank you very much. :P

Falco wrote on Apr 15^th, 2013 at 7:54pm:

That's not busting. You might want to check

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Charlie

Dear Linda_Howell

Offensive posts you say! then copy and PM throws and i will refrain

I challenge anyone to find the truth offensive and for PM i see that the prejudice comes out in people more so than a public posting and i believe that a public forum is a better venue than being one liner and responding privily all should see the conversation between postings, so far all i see in the postings is one liners equating my post with,now Monkeys and others regarding the posting and this is offensive, not only to me but others reading these posts i have placed, I seen your post regarding your in counter with a patron in a dinner and you needed to restrain your self from embarrassing your self or the other patron regarding the new ounces between Migraine and Cluster headaches, so what you did was bite your tong and let them go on in life ignorant that they have migraine instead of cluster, this may take them many more years of pain and you deprived them of your astonishing insight into your expertise in the field of Head pain.
May be you should bring more of your insights to my posting than the one liner Resistance you are portraying at this time, Do you have anything intelligent to post to me ?
My CH started when i was in grade 7 and i was young as well
but i watched bugs bunny and the road runner hour so i have a bit more insight. i never considered responding to postings with prejudiced comments all tho at the time there was no venue to do so and yet you allow ignorance in others and they now can not be helped.

Carl D wrote on Apr 8^th, 2013 at 8:55pm:

Call me crazy butt...

OK, crazy butt. ;) Well, this was fun and also not...some things never change I suppose. LOL

Falco wrote on Apr 15^th, 2013 at 9:54pm:

This post proves the theory of crap in crap out.

Potter

Falco wrote on Apr 15^th, 2013 at 9:54pm:

...copy and PM throws and i will refrain...

huh? :o

Ok

Linda_howell exclamed:

Falco,

I refuse to copy and paste all the offensive posts of yours. Please understand that there are very young people who read this forum. (YES...kids get CH too and they come here often)

Please refrain from anymore references as in one of your most recent posts. Like Bill Mingus has said...please do some reading around here for information on the latest treatments so you can be informed and keep your offensive posts to private messages.

Thank you. Thank you very much.

dos this clear things up ? or would you like me to read and explain it to you ?

Falco I see that you having been hanging around here for the last 2 hours on and off watching your thread and waiting for the next person to respond. I will give you a word of advice.

Do not attack a moderator on here or you will be deleted. Your post was humorous to start with. Now, not so much. This is not open for discussion.

This message is to Bob p, Aussie Brian, Jimi, Jacki, Brew, Seaworthy, Linda_Howell, brain_cramps

There are over 600 people that viewed my post, out of them you are few, your posts are short and uninformative (no INFO) your comments are not supportive as the web_sight suggest it is, with regards to "Support Group" for CH suffering.
So brain_cramps What is it you don`t understand about my post, another one liner like HUH, or is it DUH , or maybe DOGH in the famous words of Homer Simpson ?

Jimy i do not half to be on this forum i am on hear with the utmost kindness and respect i have no CH anymore.

Falco wrote on Apr 15^th, 2013 at 11:56pm:

Jimy i do not half to be on this forum i am on hear with the utmost kindness and respect i have no CH anymore.

..........and the horse goes around with his foot on the ground! ;)

Hmm. so if I interpret falcos' posts correctly, then I must assume that the biggest problem of ch'ers is that they are full of shit?

deltadarlin wrote on Apr 16^th, 2013 at 8:32am:

Hmm. so if I interpret falcos' posts correctly, then I must assume that the biggest problem of ch'ers is that they are full of shit?

Shit for brains might be apropos for some.

Potter

brain_cramps wrote on Apr 15^th, 2013 at 11:30pm:

Falco wrote on Apr 15^th, 2013 at 9:54pm:

...copy and PM throws and i will refrain...

huh? :o

Falco wrote on Apr 15^th, 2013 at 11:54pm:

...So brain_cramps What is it you don`t understand about my post...

Please explain what you meant by:

Falco wrote on Apr 15^th, 2013 at 9:54pm:

...copy and PM throws and i will refrain...

I'm not sure I can SPELL it out any better than that! START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

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Falco wrote on Apr 15^th, 2013 at 11:54pm:

So brain_cramps What is it you don`t understand about my post, another one liner like HUH, or is it DUH , or maybe DOGH in the famous words of Homer Simpson ?

"HUH?" implies that I don't understand what you are getting at whereas "DOH!" implies that I somehow did something wrong. (That very rarely happens. [smiley=cool2.gif] )

I hope this further clarifies my earlier post. [smiley=deadhorse4.gif]

wrote on Apr 15^th, 2013 at 11:22pm:

Falco wrote on Apr 15^th, 2013 at 9:54pm:

This post proves the theory of crap in crap out.

Potter

Potter, with all possible respect and consideration of your esteemed intellect, I don't believe all the crap got out.

Jerry

Callico wrote on Apr 16^th, 2013 at 6:57pm:

wrote on Apr 15^th, 2013 at 11:22pm:

Falco wrote on Apr 15^th, 2013 at 9:54pm:

This post proves the theory of crap in crap out.

Potter

Potter, with all possible respect and consideration of your esteemed intellect, I don't believe all the crap got out.

Jerry

[smiley=applause.gif] [smiley=bow.gif]

:) tis all good my friends

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http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Daily Chat >> General Posts >> i cured my headache read on how to http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1365313446 Message started by Falco on Apr 7^th, 2013 at 1:44am