Just a quick reminder to call your representatives and make a difference. Tell them you support the goals of the alliance. Inclusion of headache disorders in the SSDI blue book (list of disabling conditions), NIH approriation of funds for headache research, DOD funding for PTSD and chronic migraine programs for active duty soldiers and vets. Sign the petition for congressional hearings. This organization is doing so many things for us they deserve our support. Those that attended this event have opened a door we should all go through. The door is open Call your Senators and representatives. It will be the best thing you ever do for your condition. Thanks to all those headbangers out there, for all you do.
The american association of neurologists will be on capital hill this coming week so the timing is right. Time to take off the gloves. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE
A special thanks from me to DJ and all the others who got this big ball rollin. Headbangerz rule
signed
thebbz
blueballs
tachead
John Bebee ;)

Or send them something like this.
Dear Senator/Representative ____________,

I'm a chronic/episodic cluster headache patient who lives within your district. Recently, a team of neurologists, advocates and patients visited the capitol in an event called "Headache on the Hill" . I wholly support the message they brought to congress! There is a critical need for more research in the area of primary headaches, which are prevalent, disabling, costly and neglected. This group, known as The Alliance for Headache Disorders Advocacy, presented 3 requests to their representatives and it's important to me that you support the requests also. We anticipate a colleague letter circulating soon. When this reaches your office, please sign in support!

I would be glad to send you the "3 requests" in a digital format and provide you with further details.

Fill in our own personal sign off here,

Thank you,
START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

The Lord helps those who help themselves.
bb :)

We have movement on the hill. Senator Baucus is supporting the AHDA language presented for inclusion of headache disorders in the BlueBook. They are writing a letter to the SSA commisioner to support us. This is huge. It will help so many. Call, email, write, your representatives. More as the story develops. ...yea!
bb ;)

Bump