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Cluster Headache Help and Support >> Medications,  Treatments,  Therapies >> D3 ?
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Message started by MichaelL on Jun 5th, 2013 at 8:28pm

Title: D3 ?
Post by MichaelL on Jun 5th, 2013 at 8:28pm
Greetings from Cody,wy.

My first post, but I have been lurking over the past few years.  I'm episotic, last cycle was 2years ago.  This new cycle started about 4 weeks ago.  About 3 weeks ago I started the D3 regimen.  It took about 5 days to become effective.  I enjoyed 7 PF days & nights.  The BEAST returned last night. CH at Kip 3-4 aborted quickly with O2. 
shadows all day long, just finished another CH again at Kip 3-4.  Anyone else experience this return of CH's while on the D3 regimen?  Any suggestions ?  I read that some of us get relief by taking a single 50K dose of D3 then return to the daily dose of 10-15K.  Again any thoughts on this.  Thanks Mike

Title: Re: D3 ?
Post by erk on Jun 5th, 2013 at 9:44pm
Michael,

The return of the Beast I have not experienced. I went pf at about a month after starting regimen and havent gotten hit since.

You do not mention having a vit d level test??? I would get the test results and then adjust doseage accordingly.The week before I went pf I was at 54 ng/ml. so I was probably at approx. 60 ng/ml when went pf.

Another idea.You could have a low artieal ph promoting vasodilation triggering ha. Also this may prevent your body's ability to use your elevated d3 levels. I added to regimen, 1/2 tsp. baking soda in water 3 or 4 times a day (per Batch ) to raise ph. Immediate lowering in number/intensity of ha's, then pf a week later.


Title: Re: D3 ?
Post by MichaelL on Jun 5th, 2013 at 10:34pm
erk

Thanks for the quick reply.  I'll call my doc and schedule a Vit D test.  MIght even check on getting a reading on my arterial PH at the same time.  I just drank my first glass of
h2O with the baking soda.  Hopefully it will provide positive results.  Thanksagain Mike

Title: Re: D3 ?
Post by pattik on Jun 6th, 2013 at 8:34am

MichaelL wrote on Jun 5th, 2013 at 8:28pm:
Anyone else experience this return of CH's while on the D3 regimen? 


Michael,
I started the D3 regimen right at the beginning of last year's episode (I'm a once-a-year episodic). I had a similar experience. My episode was greatly altered, but not prevented--far fewer attacks at much lower pain levels.  But the cycle did last around a week longer than usual.  I also did not get my blood tested at the time. I stayed on the regimen after it ended, had myself tested 5 months ago (great levels now), and things are looking very good.  I'll be posting in the "123 Days PF" thread soon to report my results. So if you are having a noticeably altered cycle, hang in there and keep up the regimen.
~pattik

Title: Re: D3 ?
Post by Kevin Z on Jun 8th, 2013 at 3:20pm
Its also important to know where your d3 is coming from as most company's derive it from lanolin in sheeps wool. If you are sensative/allergic to wool, I would look into d3 that is derived from vegitable sources. Also you do need to supplement the d3 with the omega 3 fish oil. I use the omega 3 fish oil and the omega 3 flaxseed oil. And it is also important to take Magnesium along with it. Magnesium aids in d3 absorbtion. Hope this helps.

Title: Re: D3 ?
Post by MichaelL on Jun 8th, 2013 at 11:12pm
Thanks to all that have replied.  Just got off the O2 for the 3rd time today.  As I mentioned in my previous post, I began the D3 regimen about 4 weeks ago and had a PF period after about a week on the regimen.  Since then the Beast has returned, but the CH's are not as intense.  Usually get hit at midnight and again at 4:00 AM.  Hits at 2:00,5:00 and 8:00 PM.  I can usually abort in 5-10 minutes with O2.  I haven't stopped the D3 regimen which includes
15K D3
2400 mg Omega 3 Fish Oil
1 Centrum Silver
1200 mg Calcium Citrate
I take this at supper.  I have also been drinking 4 glasses of
water with 1/2 tsp of baking soda daily.  I intend to stay on this hoping that I'll get some relief.  I'll also get a d3 test then plan accordingly.  No allergies that I'm aware of.  Thanks again Mike


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