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Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Indomethacin http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1376666701 Message started by FrankF on Aug 16th, 2013 at 11:25am |
Title: Indomethacin Post by FrankF on Aug 16th, 2013 at 11:25am
I saw a new Neurologist yesterday who prescribed Indomethacin as a preventative, in addition to the verapamil I already have and D3 regimen I am trying.
I told him I had only heard of Indomethacin prescribed for CPH, but not clusters. He tried to re-assure me it would help for clusters too, but I am not so sure. Should I get the prescription filled or save my $10? |
Title: Re: Indomethacin Post by maz on Aug 16th, 2013 at 4:22pm
My neuro told me this:
Apart from cluster headache, there is a condition called paroxysmal hemicrania. They are VERY similar and the only way to tell which you have is by process of elimination. Indometicin will work like magic for PH, but won't touch CH. That's how I knew mine was CH. Sumatriptan auto injections, among other things, are for CH, and they work for me every time. Completely pain free in 5 - 7 mins. There are many other treatments that work for a lot of people. You already have the D3 regimen, so check out threads on oxygen (link on the left of your screen), energy drinks and many more. Read all you can on these boards. We know more about headaches than most doctors and above all, we listen and we care. Try the indometicin and if it doesn't work at least you can cross it off your list of possibilities. Let us know how you get on. Good luck. maz. |
Title: Re: Indomethacin Post by FrankF on Aug 16th, 2013 at 8:35pm
That is what I thought about Indomethacin. Many discussions on this board and the old one over years, only I seem to recall the discussion was mostly about it used as an abortive rather than a preventative. Will try it since it was only $5.
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Title: Re: Indomethacin Post by maz on Aug 16th, 2013 at 9:44pm
Yes sorry, I should have said it was given to me as an abortive. I was only ever offered one preventative (can't remember what it was called)and the side effects were so horrific that I didn't take it. My CH is episodic and it seemed wrong to take something so bad, all the time, when I could take an abortive that worked quickly just when needed. However, indomethacin may work as a preventative too so it's worth a try. I was told it's very hard on the stomach though so I was given omeprozol to take with it.
maz |
Title: Re: Indomethacin Post by Bob Johnson on Aug 17th, 2013 at 9:50pm
You are using three meds or plans to prevent/treat what may be Cluser. If you get relief, how will you know whether it's #1, or #2, or #3 which is responsible?
This shotgun approach only leads to confusion. Plus your're pay a doc to treat you and he won't know whether his approach is responsible or not. Get with our doc and make a joint decision on how to sysstematically runs some trials of each approach so that the results are knowable. |
Title: Re: Indomethacin Post by FrankF on Aug 18th, 2013 at 9:30am
I haven't used the indomethacin yet, so I won't... I have doubts about it anyway for CH.
You are right about not knowing which of the other two works if they do. I started verapamil and D3 at the same time two weeks ago, and am starting to see results so I will talk with my doctor about what is next. |
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