Hi,

My name is Gabe Freedman. I am a 24 year old film student at the University of Toronto. Recently, I have been spending much time researching about cluster headaches and am stunned at the lack of awareness and understanding regarding this horrific condition. I am very interested in bringing much-needed exposure to this subject and have found this website and the opinions and insights of its many members incredibly admirable and informative. I would like to start interviewing sufferers of CH, with a view to filming either a short or feature documentary on the illness in the near future. I would be very grateful for the opportunity to speak to any of you about your experiences, and would appreciate any suggestions you have on how best to tackle this project. A documentary may be the most effective way of bringing public attention to this issue. I appreciate your time and assistance and hope to hear from you soon.

Take care and thank you so much.

Gabe

gabefreedman@rogers.com

Hi,
I'm in England so don't suppose I can be much help, but willing to answer questions.

Good luck and thank you.  I am in Boston if you are in the neighborhood watching the Leafs look me up!

G'day Gabe, and a nice place to start might be on the CH Specific board with a thread called Dopiest Responses to CH. It'll give you some idea of what we (and you) have to put up with from doctors and the public.

Sincere good wishes and sing out if I can help,

Brian, who'll work for beer.

If I can be of any assistance, I have been suffering with CH for the past 30 years.  I live in Michigan.  We all suffer day in and day out awareness really needs to get out there


Thanks,
Karen

You'll find people here from all over the world, so there may be some from Toronto for local knowledge.

I'm over here in New Zealand and like Brian will work for beer too!

Just ask away...

Hi Gabe,
If you look to the left side of your computer screen you will see a tab titled "where we live" which will lead you to a tab titled "Non United States" which will lead you to a link titled "Canada."

There are over three dozen CH'ers registered on this site from the Toronto area and a whole bunch more CH'ers listed from the province of Ontario. 

You may consider clicking on each of their names which should provide you with a method to email them individually. 

This simple targeted approach may be a quick direct way for you to organize your documentary among locals within Toronto and Ontario.

Good luck with your documentary ;)

-Gregg in Las Vegas

Hi,

Thank you all so much for your replies and insights. I believe our team will take Gregg's advice and start contacting sufferers who are based in Toronto. If anybody living in Toronto reads this and is interested in being featured in a documentary on CH, please contact us. Thank you so much for your time and we will be in touch if we require any assistance from those who volunteered it!

Hi Gabe,
Since you valued my first advice, here is more...

Contact some of the doctors in your local area that have been recommended by those afflicted by CH's.  The following pdf file link will provide a list of Canadian doctors.  Unfortunately this list has not been updated in 2 & 1/2 years.

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

Good Luck ;)

-Gregg in Las Vegas