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Cluster Headache Help and Support >> Getting to Know Ya >> New Member - 30year sufferer
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Message started by Karen Carrier on Aug 25th, 2013 at 7:43pm

Title: New Member - 30year sufferer
Post by Karen Carrier on Aug 25th, 2013 at 7:43pm
I am a chronic cluster headache sufferer for the past 30 years.  Just learning to navigate around the computer, so please all bare with me. I own a small embroidery business and also do heat press.  I love the new ribbon.  Do I have permission to sew it out.  I will be wearing it on everything from now on.   I also have been working on t-shirts, sweatshirts and hoodies with a lady suffering from a cluster, I have never seen one.  Living with this disease has been the most difficult thing.  My CH used to only come about every 5 years, then every 3 years, now its every year, with about 1 month free and clear  I  am on my 2nd month now.  The imitrex injections works well for, along with steroids and oxygen and verapamil and noryriptyline..My insurance does not cover imitrex but one shot every 23 days.  I realize now that I am not alone.  Everything that I have read on your sight is like these people are writing in my pain for me.  I pray for all of you, please pray for me threw these  head banging times.

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