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Message started by dougW on Aug 31st, 2013 at 11:18am

Title: 2013 conference - new additions
Post by dougW on Aug 31st, 2013 at 11:18am
The 2013 cluster headache conference will soon be here, it's not too late to register.  All registration information and speaker lists can be found here:   START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

There may still be a few rooms left at $99, check online with the hotel here:   START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

The final agenda and syllabus can be now downloaded:  START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE   START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

We have 3 new presentations added to an already exciting and packed agenda:

First, Mr. Vernon Robinson, a fellow clusterhead  who hasbeen experiencing clusters for 21 years (the first 15 as episodic and chronic since) will relate his history of treating cluster headache ineffectively for many years and his current regimen of ketamine nasal spray, sumatriptan and DHE infusions under the care of Dr. Brian McGeeney (Boston Medical Center and Boston University School of Medicine).  His presentation is "Battles With The Monster In His Head".

Secondly, in addition to his presentation on Saturday, Dr. Larry Schor, PhD, a licensed psychotherapist and Cluster Headache patient, will be facilitating a therapeutic group for patients and their supporters Friday evening from 7:30-9:00:        The safest room on earth? A therapeutic group for Cluster Headache patients (and their supporters)

Beyond the physical pain of Cluster Headache, described by experts as among the most painful conditions humans experience, lies the often overlooked emotional, mental, and relational problems. CH patients are frequently misdiagnosed, misunderstood, and face a pervasive lack of understanding among even well-intentioned people. In short, no one who has not had a CH attack really can know what one feels like. Given the dramatically elevated suicidality among CH patients, addressing the psychological aspects of persons living with this condition is crucial. This group will offer participants the opportunity to truly be heard among people who can truly understand.

Lastly, Clusterbusters is pleased too announce the participation of ElectroCore Medical, the manufacturers of GammaCore.
GammaCore is a non-invasive treatment therapy of vagus nerve stimulation.  This treatment shows considerable promise for those with primary headaches such migraines or CH.  Trials are currently underway in other countries and will be starting in the USA shortly.  Mr. Eric Liebler and Ms. Jennifer Berman of ElectroCore Medical will make a presentation at the conference. 
Their web site is START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

Our conferences present a very diverse and complete picture of the treatment of CH.  The mission statement of Clusterbusters states:  Clusterbusters is an IRS-approved 501 (c) (3) non-profit research and educational organization dedicated to researching treatments that show promise for reliable, effective and long term relief from cluster and related headaches.

This year's conference will be amazing.
For more information or questions, please email info@clusterbusters.com

Title: Re: 2013 conference - new additions
Post by Linda_Howell on Sep 4th, 2013 at 1:36pm
A month or so ago I read somewhere that for those of us driving..there is free parking somewhere near the double-Tree.  I can't find the post now, anywhere.  Does anyone know where we can park for free because I sure am not going to pay 22.00 per day just to park  like I had to last time the conference was in in Chicago.

Title: Re: 2013 conference - new additions
Post by dougW on Sep 5th, 2013 at 9:47am
Good memory Linda.  Yes, the hotel contract said that "Parking will be complimentary in the Embassy Suites parking garage."

The ES is next door or across the street. 
I forget which.    :)

Edit:  I have to assume the mean free parking for those staying at the hotel (fair enough I guess?).  If you are not staying at the Doubletree they may give you some grief. 
But I won't be using my parking pass.   ;-) 

Title: Re: 2013 conference - new additions
Post by Melissa on Sep 5th, 2013 at 10:05am
To anyone attending the conference, in my opinion, you will benefit GREATLY from attending Dr. Schor's therapeutic group session.  Just sayin. :)

Title: Re: 2013 conference - new additions
Post by Racer1_NC on Sep 5th, 2013 at 11:34am
Map shows the Embassy Suites is across a side street from the convention hotel.
START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

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