New CH.com Forum
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl
Cluster Headache Help and Support >> Cluster Headache Specific >> I's back - but better
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1379874251

Message started by maz on Sep 22nd, 2013 at 2:24pm

Title: I's back - but better
Post by maz on Sep 22nd, 2013 at 2:24pm
Hi all,
I'm on day 54 of the D3 reg, and I think it's working. This is my 3rd cycle this year but this one is definitely not as bad. Got hit yesterday and today, with all my usual symptoms - stuffy nose, runny eye etc, but only kip 4 at the most. Normally on day 2 I would be screaming by now.
I'm waiting for the results of my first blood test so once I have that I will increase the dose of D3 for a while. I'm soooo pleased.
Thank you Batch for the info, and all of you for your support. As I said somewhere in a previous post, If this is as good as it gets I will still be happy. I can live with this, but I'm hopeful the bigger dose of D3 will kill the b****** off for good.
Maz.

Title: Re: I's back - but better
Post by Batch on Sep 22nd, 2013 at 4:47pm
Hey Maz,

Thanks for the kind words...  There's every reason to suspect a higher dose of vitamin D3 will push you past the tipping point for a pain free cluster headache response.

A 25(OH)D serum concentration above 100 ng/mL, (250 nmol/L in the UK), by itself is not an indication of vitamin D3 intoxication...  There are a number of vitamin D3 experts (endocrinologists) who say there's ample evidence 200 ng/mL, (500 nmol/L) is also quite safe.

The only real indication of vitamin D3 intoxication is a total calcium serum concentration above the normal reference range. 

Unless there's another comorbid condition involving the thyroid and/or parathyroid that results in too much parathyroid hormone (PTH), vitamin D3 intoxication is unlikely even at doses as high as 40,000 IU/day.  Our bodies make vitamin D3 so there are several built-in mechanisms in play that can limit its production and metabolism to prevent intoxication.

That said, it's always a good idea to keep your PCP in the loop.  Obtaining the 25(OH)D, PTH and calcium lab tests are also important until you reach a stable 25(OH)D serum concentration around 80 ng/mL, (200 nmol/L).  For most of us, that will require a vitamin D3 maintenance dose  of 10,000 IU/day.

Take care and please keep us posted.

V/R, Batch

Title: Re: I's back - but better
Post by Guiseppi on Sep 22nd, 2013 at 9:40pm
Awesome news Maz, keeping the fingers crossed for ya.

Joe

Title: Re: I's back - but better
Post by Mike NZ on Sep 23rd, 2013 at 2:08am
Great result, now fingers crossed you'll got pain free soon.

New CH.com Forum » Powered by YaBB 2.4!
YaBB © 2000-2009. All Rights Reserved.