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Cluster Headache Help and Support >> Medications,  Treatments,  Therapies >> Surgery ??????????
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Message started by Marius on Oct 25th, 2013 at 3:13am

Title: Surgery ??????????
Post by Marius on Oct 25th, 2013 at 3:13am
I'm from South Africa and I went the headache clinic where they did test and told me they can do a presegire where they cut into your scalp and kill of some of the blood vessels witch will give you a pain free life. Sorry but I don't know all the medical term for the presegire.
My question is has anyone had this done and does it work?

Go to these two links and watch the clip it's very interesting I went to the same doctor
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Title: Re: Surgery ??????????
Post by Hoppy on Oct 25th, 2013 at 3:32am
Hi Mauris,
Sounds a bit like this to me.


Stone age man's cure for headache.


Headaches are bothersome things, people have been annoyed
by them for a long time, seven thousand years at least, and
probably longer. We are all quite willing, when afflicted with a
headache, to agree with the people of the old stone age that
a headache is a demon and we would be willing to do most
anything to get rid of it. The pain whether due to a blow on
the head, indigestion, nervousness or other causes certainly
reminds one of a demon and it is readily understood how
ancient man should have conceived the idea of releasing
this demon which was bothering him. He devised a remedy
which certainly was an effective cure for headache wether
the pain was due to eye strain, or brain tumor, skull fracture
or nervousness, although it must be admitted that his-cure
was worse than the pain. primitive man devised his curative
measures as a phase of his religious beliefs ,hence the cure
adopted for headaches was a religious rite. The operation
was performed by a Shaman or Medicine man in some remote
fastness of his region and have the patient remained until
completely recovered. This treatment consisted in opening the
skull in a variety of ways to relieve the pain, or as the stone
age men thought, to let out the demon. men in the stone age
phase of their culture whether in Peru, Mexico, France, Karylia
or the South Sea Islands practiced this method of relief and it
is said to be still employed in the highlands of Peru and Bolivia
and in northern Africa.This ancient surgical art, which forms
the very beginnings of prehistoric surgury, seems to have been
developed first in the region just north of Paris near the Seine
and Oise rivers some seven or eight thousand years ago,
in the Dolmens, or burial mounds, scientists have found the
ancient skull of people who had suffered headache and who
had their skulls trepanned or opened to release the headache
demon. No special class of individuals seems to have been
favored since the operation was performed on man,woman,
and child, apparently without respect to either age or sex.
It's frequency is attested by the great number of skulls
exhibiting the surgical openings. In one burial mound in France
yielding the bones of 120 individuals more than 40 showed
the effects of trepannation. 

I would seek a headache specialist.

Hoppy.
 

Title: Re: Surgery ??????????
Post by ttnolan on Oct 25th, 2013 at 3:49am
There are so many treatments you have not tried. So far you describe being treated with Migril, which while makes a little sense, it is not considered a preferred CH treatment. You need oxygen first, read the Oxygen Info tab on the left menu. Then re-read the post from Guiseppi (Joe) in reply to your introduction post. He describes a 3 step approach to treatment using the most widely accepted medications for this condition... START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE
A vascular surgery to treat CH... just seems to confirm that the doctors you are seeing do not really understand CH. So for me that would be a big NO!

Title: Re: Surgery ??????????
Post by Marius on Oct 25th, 2013 at 3:56am
I have so many questions that I need answers for so I just throw then out there   

The Migril tablet I take really works for me. This time round I usually have about 3-5 attacks per day now I have about one or two a week but the intensity is much worse 

Title: Re: Surgery ??????????
Post by ttnolan on Oct 25th, 2013 at 4:07am
Here is some good material on treatment for CH...
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Title: Re: Surgery ??????????
Post by Hoppy on Oct 25th, 2013 at 4:11am
Hi Mauris,
First i would seek a new doctor preferring a headache
specialist to get you on the right track. Then start firing
as many  :question you like.

Hoppy.

Title: Re: Surgery ??????????
Post by Marius on Oct 25th, 2013 at 4:53am
I tried to post a link to Dr Shevel from The Headache Clinic there is a couple of people that had this done on YouTube

Title: Re: Surgery ??????????
Post by Hoppy on Oct 25th, 2013 at 5:31am
Hi Marius,
I'm not to famillar with YouTube. I'm sure someone Here
will get back to you on this one.

Hoppy.

Title: Re: Surgery ??????????
Post by Marius on Oct 25th, 2013 at 6:33am
Go to these two links and watch the clip it's very interesting I went to the same doctor
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Title: Re: Surgery ??????????
Post by Hoppy on Oct 25th, 2013 at 7:09am
Hi Marius,
Thanks for posting those links. I watched with much interest
but not convinced it would help in treating CH's. I think more
for sinus or maybe migrains. Give the vitamin D-3 Regime a
go first. I'ts working for me CH free.

Hoppy.

Title: Re: Surgery ??????????
Post by Marius on Oct 25th, 2013 at 7:27am
I will first try every thing I can before I go under the knife and yes I'm staring the d3 regime

Title: Re: Surgery ??????????
Post by Bob Johnson on Oct 25th, 2013 at 10:43am
At this point, you don't know enough about Custer and its treatment to make ANY decisions about how to treat yourself. This is especially true with any surgical procedures for almost all of thelm don't have a clear record of success and/or safety.

This is most true with the idea of cutting blood vessels for they are not the source of Clusters. The most current understanding is that Cluster arises from a small part of our brain, i.e., it's a neurological disorder.

IF you are getting very good relief by using pain medications, it strongly suggests that you don't have Cluster. Pain meds, except in the most extreme cases, are not effective for Cluster. This is another reason why you work hard to find a skilled doctor and not try to either diagnose yourself OR treat youself without guidance.

We are not physicians. Keep this statement in mind:

Keep in mind--this is the legal way of saying: What you read here is not a substitute for sound medical guidance!
------------------
"DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!"

Title: Re: Surgery ??????????
Post by Potter on Oct 25th, 2013 at 12:30pm

Bob Johnson wrote on Oct 25th, 2013 at 10:43am:
At this point, you don't know enough about Custer and its treatment to make ANY decisions about how to treat yourself. This is especially true with any surgical procedures for almost all of thelm don't have a clear record of success and/or safety.

This is most true with the idea of cutting blood vessels for they are not the source of Clusters. The most current understanding is that Cluster arises from a small part of our brain, i.e., it's a neurological disorder.

IF you are getting very good relief by using pain medications, it strongly suggests that you don't have Cluster. Pain meds, except in the most extreme cases, are not effective for Cluster. This is another reason why you work hard to find a skilled doctor and not try to either diagnose yourself OR treat youself without guidance.

We are not physicians. Keep this statement in mind:

Keep in mind--this is the legal way of saying: What you read here is not a substitute for sound medical guidance!
------------------
"DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!"


  I agree with Mr.Johnson.  Just for the record Dr.Shevel has as much chance at curing clusters as Custer had at civilizing the Sioux.

                  Potter

Title: Re: Surgery ??????????
Post by ttnolan on Oct 26th, 2013 at 4:04am
Migril is not a pain med... it is ergotamine, something to help with nausea, and caffeine, Sounds old school Migraine med that could be offered for CH if nothing else is available. That said, that path you would not even go down unless the newer, more successful treatments have been exhausted... and then in a more appropriate  DHE inhaler or such.

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