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Cluster Headache Help and Support >> Cluster Headache Specific >> newbie question
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Message started by Dre on Nov 3rd, 2013 at 3:22pm

Title: newbie question
Post by Dre on Nov 3rd, 2013 at 3:22pm
Hi group I also like most of you suffer from CH. Has there been any findings of any correlation between injections of corticosteroids and CH? My CH started a little more than a year after receiving multiple injections in my head for a hair loss condition called Alopecia. Any info will be appreciated, thanks in advance.

Title: Re: newbie question
Post by Bob Johnson on Nov 3rd, 2013 at 3:45pm
Steroids should never be used as the sole treatment or for long peiods. Any doc who does so is decades out of touch.

Print the PDF file, below.

The first line approach: steriod, 80-100mg/day, tapering off 10mg/day about every 2nd day; at the same time, starting a long term preventive (the PDF article) which reduces/prevents attacks for the long haul; and using an abortive for any attacks which sneak thru.

If you don't have a skilled doc, we urge finding a headache specialist, if at all possib.
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LOCATING HEADACHE SPECIALIST

1. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

2.  Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

3. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE; On-line screen to find a physician.

4. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE Look for "Physician Finder" search box. They will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

5. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE NEW certification program for "Headache Medicine" by the United Council for Neurologic Subspecialties, an independent, non-profit, professional medical organization.
        Since this is a new program, the initial listing is limited and so it should be checked each time you have an interest in locating a headache doctor.
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http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=downloadfile;file=THERAPIES-_Headache_2011.pdf (96 KB | 16 )

Title: Re: newbie question
Post by Dre on Nov 3rd, 2013 at 5:09pm
Thx Bob. Your reply is very informative. I have a very good specialist by the name of Dr.Vogler of the UPMC Headache Ctr of Pgh, although presently im uninsured. Thank God I havent had a cycle since my insurance lapsed.
I was curious about the correlation I mentioned in the post. Im thinking maybe those injections could've caused my CH.

Title: Re: newbie question
Post by Guiseppi on Nov 3rd, 2013 at 6:34pm
I've never seen a post linking the two, but as I've learned with the beast, anything is possible! Steroids are a VERY popular transition med, and for a very small minority, even a way to abort the cycles. My guess would be it's coincidence and not causation, but strictly a guess!

Joe

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