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Cluster Headache Help and Support >> Cluster Headache Specific >> CH & epilepsy
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Message started by MichaelB on Nov 8th, 2013 at 1:51pm

Title: CH & epilepsy
Post by MichaelB on Nov 8th, 2013 at 1:51pm
I have had  epilepsy for over 30 years now CH.  Some of the medication I am taking is for epilepsy all so.
I'm afraid I'll od on epileptic medication at this rate.
I take 20 1/2 tablets a day over half for epilepsy.

Do others here have epilepsy and CH?

Title: Re: CH & epilepsy
Post by JHK07 on Nov 8th, 2013 at 2:18pm
Nope.   But med that helped me is an anti seizure medication.  (I think I read that somewhere)   Topomax

Title: Re: CH & epilepsy
Post by wimsey1 on Nov 9th, 2013 at 7:36am
CHs do sometimes respond to anticonvulsives like topomax or Dilantin, and overdose is definitely a concern. Can your doc draw blood levels for you to determine if you are in a safe and therapeutic range? Bring it up sooner rather than later, for your own peace of mind. blessings. lance

Title: Re: CH & epilepsy
Post by Bob Johnson on Nov 9th, 2013 at 9:19am
Could not find a medical citation later than this one which asked the question directly.
==============
Cephalalgia. 1984 Mar;4(1):39-44.
Headache and epilepsy: two autonomous entities?

Savoldi F, Tartara A, Manni R, Maurelli M.

The relationship between headache and epilepsy remains unresolved. We studied 3,600 patients affected by primary headache and 36 epileptic patients with a present or past history of headache. In the first group, no family history of epilepsy nor epileptiform EEG patterns were found. In the second group, there was no chronological relationship between epileptic seizure and headache attack in more than half of the patients; when found (46.1%) the relationship was neither precise nor specific. Taken as a whole, these data suggest the autonomous nature of epilepsy and headache.

PMID: 6713523 [PubMed]

Title: Re: CH & epilepsy
Post by Vikinggirl on Nov 11th, 2013 at 4:11am
In my family we believe in sharing the "blessinns". I have the CH and my son has the epilepsy.......

Title: Re: CH & epilepsy
Post by Jair Crawford on Nov 11th, 2013 at 12:41pm
It's interesting that you bring up a possible relation between CH and Epilepsy, and also in another thread CH and Tics.

I have read that there might be a relation between tics and seizures, and I have also read that there might be a relation between seizures and some types of migraine. (NOT saying migraine is the same as CH. It's not the same /at all/)

I'm wondering if all of these things have a similar cause? Electric storms of some kind in the brain?

Title: Re: CH & epilepsy
Post by midwestbeth on Nov 13th, 2013 at 3:13pm
My hubby has epilepsy (seizure free for the last 15 years, but still takes the meds).  The last time I talked to my Dr, I brought up the subject of epilepsy and ch.  The Dr said the brain activity was  similar during seizures and ch as seen on mri's.  We get the pain and people with epilepsy have seizures.  Hope my kids grow old with no neurological disorders (fingers crossed)

Title: Re: CH & epilepsy
Post by Karla on Nov 14th, 2013 at 5:34pm
I had epilepsy real bad.  Over 30 complex partial siezures a day and some grand mals also.  I was allergic to all the meds on the market except for topamax and neurontin.  However they did nothing to prevent my siezures. I was born with epilepsy and had it until 1993 when they just stopped after being prayed for.  However, in 1998, I started getting chronic cluster headaches real bad.  8 a day.  In level 10 pain for over 16 hours a day.  None of the typical or routine meds for ch worked to prevent them.  I asked the ha specialist and the neurologist if there was any link between the two and I was assured there was not.  Just a freak thing I was told.  Looks like you had better answers than I did.

Title: Re: CH & epilepsy
Post by Ricardo on Nov 18th, 2013 at 10:54am
I had grand mal seizures for a few years.  No symptoms at all until I was 23 then they came out hard.  Stopped eating gluten and dairy, no more seizures...it's been about 6 years.  Never noticed any change in my clusters though, and the epilepsy meds that they gave me (that did nothing for the epilepsy, only cannabis could control the seizures) never seemed to help with my clusters.

Title: Re: CH & epilepsy
Post by Batch on Nov 19th, 2013 at 10:36pm
See VitaminDWiki:

Epilepsy seizures reduced by 40 percent after vitamin D levels normalized – April 2012

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

Lots of other links on the relationship between epilepsy and a vitamin D3 deficiency...

Take care,

V/R, Batch

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