As much as I LOATHE facebook and refuse to submit myself personally to it I often find people asking me why not...but fellow cluster heads. Or if there is a good article on CH I can not read it as its posted on FB,
So yesterday I started a FB page on Cluster Headaches
Its for people feeling down ,needing some uplifting support not a medical help support. There is many of those.
There is no personal information to me and I did not make it to find old friends(high school etc).
Its soley for us cluster heads,migrainers, and DBS recipents.

I do not offer nor accept medical advice on medication only warm friendly hellos.
I applaud those that are doing the med help and I didnt make a FB to steel their thunder.

Feel free to check it out
I am very very very new and still confused how it works.
It make take me some time to finese it.

search
ClusterHead Survivor ( space in between last word)
or clusterheadsurvivor@rogers.com
I know you can search by email

thanks very much.
have a PFD

Batch, if this is in the wrong forum,please by all means move to the appropriate forum. Thank you

Hello ClusterHeadSurvivor,

There is a support group on FB called "Clusterheads", with over 400 members. You can request to join as it is a closed group.

As for the post being in the correct forum, this one is appropriate.

~Melissa :)

I guess I'm the only one that sees the irony in this......

Racer1_NC wrote on Jan 31^st, 2014 at 1:07pm:

I guess I'm the only one that sees the irony in this......

You are not alone.

is there a problem here?

There's already a boatload of support groups on FB.

              Potter

Im fine right here thanks.

I use face book to play poker not to remind me that Im a cluster head.

C.s.
Don't mean to rain on your parade and I'm sure you mean well, but personally, I've been finding all the support I need right here since '98 and will probably continue to do so.

I go on FB to check on my grandkids and see what new jokes have been posted, but I come here for support.

the guys here know me and I know them and don't have to break in a new bunch. But now that's just my opinion.  :-*

Hi ClusterHeadSurvivor,
If your goal is to find qualified CH treatment in the Ontario area, please PM me and I will provide you with a recently compiled list of 10 highly recommended Ontario doctors from fellow CH'ers who reside in Ontario, Canada.

However, if your goal is to just chit chat with others sharing advice/opinions/venting/education/experiences/etc about CH's...well then with all due respect, you are missing what this website is all about.

This website (ch.com) is the most comprehensive, educational and supportive resource available worldwide.  It doesn't get better than this!  Obviously do what you want, but honestly there really is no need for another CH website, nor another online CH resource.  Ch.com is where it all begins and ends; CH.com offers everything and more!

-Gregg in Las Vegas

Racer1_NC wrote on Jan 31^st, 2014 at 1:07pm:

I guess I'm the only one that sees the irony in this......

Oh no, I saw it. I was just answering specifically...

Surely getting the information out there for CHeads and Supporters is a good thing, be it on Facebook, Twitter or towing a banner behind an aeroplane.

I agree with Brian. If the info is good the more places the info can be found the better. I help moderate this one but I belong to 3 more and they all put out good information. Back in the day this was the only game in town and I am still partial to it as is apparent but fortunetly we have grown and spread out to other venues and I see that as a good thing. :)