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http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Cluster Headache Help and Support >> Cluster Headache Specific >> Paper handout for friends and family http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1394156873 Message started by bradintoronto on Mar 6^th, 2014 at 8:47pm

Title: Paper handout for friends and family
Post by bradintoronto on Mar 6^th, 2014 at 8:47pm

Hi, hoping someone can help me.
I suffer from CH's very seldom, and haven't had a series for over 5 years, but I'm afraid one is coming in next few days. (Mine somewhat build up for a few days until the full series starts).
Someone years ago sent me an attachment that I could hand out to people, explaining what they are, how I will act, what they should do etc.
Does anyone have a copy they could share? It was so great to be able to give one to my boss, explaining why I need to be alone for 45 minutes everyday at 11:30 for 2 months (waiting for the zomig to kick in.

If anyone could help out, that would be awesome. I got it originally from someone on this board.

Take care everyone, I so feel for those that suffer worse than I do (which is pretty much everyone on here).
Bless you all.

Title: Re: Paper handout for friends and family
Post by wimsey1 on Mar 7^th, 2014 at 8:18am

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

END PRINTPAGE

See if this is what you're lookin' fer. Blessings. lance

Title: Re: Paper handout for friends and family
Post by Mike NZ on Mar 7^th, 2014 at 1:54pm

I suspect that the handout is the colleague letter that was on the OUCH site, however it is now just blank pages.

The cached version of the page is:

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

END PRINTPAGE

But the letter itself is not available from Google. Does anyone have a copy?

Title: Re: Paper handout for friends and family
Post by Mike NZ on Mar 7^th, 2014 at 11:48pm

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

END PRINTPAGE

That is an HTML version of the letter.

Title: Re: Paper handout for friends and family
Post by bradintoronto on Mar 8^th, 2014 at 1:19pm

Thank you very much - this helps a ton.

Title: Re: Paper handout for friends and family
Post by Callico on Mar 17^th, 2014 at 7:17pm

Brad, there is no reason you should have to wait 45 mins for Zomig to kick in. Are you using tablets? O2 at 25 lpm through a O2ptimask (see CH.com store on the left) will kill a hit for me within 5-8 mins. Read the "oxygen info" button also on the left.

Look into the Vit D3 regimen that has given relief to about 80% of us. It's good for you anyway!

Jerry