Hello everyone, sorry if my English is not good but is not my first language. I have been a reader of the board for a long time but haven't write.
I have been suffer for episodic CH since I was 19 years old, so 15 years has pass since my first cycle, usually I get one every two years, my last cycle ended a year ago but since then i have sometimes experience a very light shadow from time to time, and another weird thing is that if i touch my skull in the back of my head somehow feel a little pain on my nerve, sometimes sleeping in my right side get me this nerve pain that usually get to my eye is like a very light shadow. Well just one to know if anyone have experience something like this, as I'm writing this i have the feeling of this light shadow hopefully i won't enter in to cycle.
Thank you for all the information that everybody post in the board it really have help me a lot.
Regards from Los Cabos Mexico
Jose Ramon

If you are not using a preventive medicine now, it would be wise to ask your doctor about starting one. (print the PDF file, below, and take it to the doctor.)

If you are using a preventive now, an increase in the dose may help.

We have had discussions, from time to time, about how Cluster can be triggered when presssure is applied to very specific points on our body. This might be something happening to you. All you can do is try and avoid putting pressure on areas of your body which seem to lead to your shadows.

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Hola Jose Ramon,

Welcome to CH.com.  Your English is fine and much better than my Spanish...

The pain you feel when touching your scalp or pressure on your head and face on the hit side while sleeping is likely cutaneous allodynia - pain as a result of touch or pressure to the face or scalp that shouldn't ordinarily result in discomfort or pain.

Allodynia is one of the less prevalent symptoms of the cluster headache syndrome.  It's annoying, but shouldn't be a real worry.

You might want to see your doctor for the lab test for 25(OH)D.  This is the serum level metabolite of vitamin D3 that's used to measure its status.  The normal reference range for this lab test is 30 to 100 ng/mL, (75 to 250 nmol/L). 

So far, nearly every cluster headache sufferer (CH'er) who has gone in for this lab test while experiencing active CH attacks has had their results come back indicating a vitmain D3 deficiency, i.e., ≤ 30 ng/mL, (75 nmol/L).

Vitamin D3 is the sunshine vitamin and your skin can make 15,000 IU of vitamin D3 in as little as 10 minutes if exposed to the UVB in mid day sunlight clad in a bathing suit without sun block... 

I've been to Los Cabos so know you have pleanty of sunlight there...  Do you spend much time in a bathing suit without sun block?

83% of CH'ers who have started the anti-inflammatory regimen with at least 10,000 IU/day vitamin D3 and stayed on it have experienced a significant reduction in the frequency, severity and duration of their CH.  75% experienced several pain free days a week and 57% remained completley pain free. 

Most CH'ers respond in the first two weeks after starting this regimen.  Some respond within the first 24 hours while others have taken up to a month and longer. 

This regimen appears equally effective for episodic and chronic CH'ers and there are many who have remained pain free for more than three years on this regimen... I'm one of them and I'm chronic.

I take the following over the counter supplements illustrated in the photo below.

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGESTART PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

These supplements may not be available in Los Cabos by the brands above so you can use the following table to find the best supplements available at the local chemist/farmacia there.

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGESTART PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

You can read more about this regimen at the following link:

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

Take care, adios, and please keep us posted if you give this regimen a try.

V/R, Batch

Welcome to the board, great advice from Bob and Batch, do give the D-3 regimen a shot, I'm 4 years pain free on it!

Joe

Tote, I know exactly what you are describing. It is not uncommon and I have to avoid things like lying down with my head touching a pillow on the affected side, and sometimes just wearing a hat will set off an attack. For me at least if I am paying attention I can feel a pressure building and either take off my hat or shift my head before the attack comes. blessings. lance

Thank you very much for your response, I  started with Batch d3 vitamin regime like five months ago, haven't started a cycle yet, and hopefully won't although at the end of this year  I supposed to get one, so finger cross this is the time were I brake my 2 year record.
Still have this light shadows but I'm avoiding pressure on my cluster side.
Gracias
Jose Ramon