Hi. I do not suffer from this, but my husband does. I feel so helpless watching him. I sit up with him to support him and make sure he is ok and not alone. It is so hard. I just wish I could make it go away. No one seems to fully understand what it is he is really going thru. As a wife who loves her husband dearly, is there any advice you can give me to help him thru this?

Sorry to hear of his troubles.

I'd suggest you ask him how you can best help.  I prefer to be alone, especially with a K8 or higher hit.  I know my wife wants to help, but there's nothing she can do to make it better.  It just has to pass.  I'd rather she not be there to watch and just be frustrated.  But your husband may feel differently.

cjf1988 wrote on Jun 23^rd, 2014 at 8:37pm:

No one seems to fully understand what it is he is really going thru...

We understand only too well what he is going through, and it's truly not nice. We also understand what you are going through and it must truly be a hell worse than our own.

Around this little community we call Clusterville you're what's known as a Supporter and probably more important to your bloke's health and wellbeing than all of the medical sciences combined.

We reckon supporters are pretty cool people, though I've truly no idea how you do it. I wouldn't last moments.

One way you can really help him is to wait until he's perfectly pain free and intelligible, hold hands, and ask how you can best assist when he's getting belted. He may say it's great you're there to bring on the coffee and ice-packs but I beg you not be offended if he says he wants to be entirely alone.

Many, many of us want only solitude and the greatest thing a Supporter can do is to ensure we get it!!!

Sometimes I even remember to say thank you.

Importantly you must take some time for yourself. This madness can't be allowed to rule two lives and you must stay in control. Go and get your hair done, do good works for others, have coffee with friends. You'll likely be able to help him far more by staying sane.

We dinkum love our Supporters so stay strong.

We'll help you, and him, every inch of the way.

AusieBrian, I tip my hat to you Sir !
                 that was in my eyes  "the perfect post"
Im sure it has helped or reassured her the importance of our supporters, and what they mean to us, even though some of us like to endure an attack in the comfort of our own company. 

col
 
   

Aussie Brian put it very well. We're all different in how we handle our CHs. Whilst I like to be alone when I'm doing battle with the beast I like my supporter to be around just to make sure that I'm on my oxygen and doing what I need to do.

I too don't know how supporters handle watching what we go through. Like many I find it impossible to watch videos of someone going through a CH and yet our supporters do it time after time.

Hi and welcome,
My wife totally freaks out when I'm having an attack and
want's to call an ambulance, but I always reassure her and
tell her not worry, I'll be ok and it will end soon.


Hoppy.

Thank you so very much! I am glad I found this site. You don't know how much it means. You guys are the bravest strongest people I know. This has been rough, but no where near as rough as what you guys go thru. Thank you!

There is section, below, "supporter's corner" which you might explore.