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Cluster Headache Help and Support >> Medications,  Treatments,  Therapies >> Where's the current best deal for demand valve?
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Message started by bejeeber on Jul 5th, 2014 at 2:50am

Title: Where's the current best deal for demand valve?
Post by bejeeber on Jul 5th, 2014 at 2:50am
Howdydoo message board members HEADBANGERS,

A new pal who goes by "brs82 " over at clusterbusters is a chronic CH'er for whom 25 LPM has ceased being effective.

I'm suggesting a demand valve system -  if that route is chosen, who knows where to purchase and get the best bang for the bux?

Title: Re: Where's the current best deal for demand valve?
Post by Racer1_NC on Jul 5th, 2014 at 11:25am
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Skyhawk posted this one a while back...no personal experience with the company....

IF a higher flow is all that is desired there are other, cheaper options available....

Title: Re: Where's the current best deal for demand valve?
Post by Skyhawk5 on Jul 10th, 2014 at 12:22am
Hey Bejeeber,

I have one of these demand valves and they work well. They don't come with a mask, but those are available on that site.

Hope to see you at the CB Conference.

Don

Title: Re: Where's the current best deal for demand valve?
Post by lennycohen on Dec 13th, 2014 at 12:33am
I created an auto search on ebay until it found one for me, got it for $125 (vs over $300 for new). You can also search for oxygen-specific scuba diving regulators, but the connections are trickier, and they're mouth-only.

Title: Re: Where's the current best deal for demand valve?
Post by tangerinearmy on Dec 18th, 2014 at 8:07am


IF a higher flow is all that is desired there are other, cheaper options available....


what are these options please

Title: Re: Where's the current best deal for demand valve?
Post by Marc on Dec 18th, 2014 at 9:28am
A welding regulator will provide as little or as much O2 flow as needed.
Welding regulators fit large medical oxygen tanks. An adapter is needed to attach a welding regulator to a small tank.
Pictures and explanation here:

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The regulator in the picture is this one: START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

More info about adapter types here: START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE



Marc

Title: Re: Where's the current best deal for demand valve?
Post by tangerinearmy on Dec 18th, 2014 at 11:43am
thanks marc

im in the uk and have medical 02 which doesnt look like the one in the states im not sure if i cud get a valve to fit.
are there any UK sufferers out there who have purchased an welding regulator and fitted it correctly.

Title: Re: Where's the current best deal for demand valve?
Post by Marc on Dec 18th, 2014 at 8:44pm
Sorry, I missed that....

Have you checked with OUCH UK? They were a start up after the original OUCH here. (Many years ago, I frequented the site, but they didn't seem to appreciate my approach to things)

Best of luck!

Title: Re: Where's the current best deal for demand valve?
Post by Batch on Dec 18th, 2014 at 9:56pm
Hey Tangerinearmy,

The best oxygen demand valve made comes from right there in the UK.  The OEM was... and possibly still is Carnét, but the product line is now available from BPR at the following link.

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I did a hands-on assessment and evaluation of all the top oxygen demand valves...  The Carnét was the winner by a long shot.  I've had one since 2008... They work far better than any other brand.

These are pricey items, but well worth the expense if you want the top of the line oxygen delivery system to abort CH with the least amount of inhalation resistance.

See the following link for all the options.  If you want to go this route, ask the reps at BPR for the complete system.

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Take care,

V/R, Batch

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