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Cluster Headache Help and Support >> Cluster Headache Specific >> illness after cluster ends
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Message started by Sconley50 on Jul 10th, 2014 at 7:07pm

Title: illness after cluster ends
Post by Sconley50 on Jul 10th, 2014 at 7:07pm
My son has CH's most days.  But I have noticed that the few times that he has had a CH-less set of days,  2-3 days into this CH-less set he becomes ill with some infection--stomach virus, shoulder infection, sore throat, etc.  Has anyone else noticed a similar situation?  The pattern with him is that as soon as his CH's stop, he gets sick with something else.  He doesn't have the CH's during these other illnesses.  Is anyone else having this sort of experience?  I am trying to research this to see if I can find some sort of cause or link to the cause.  Thanks! 

Title: Re: illness after cluster ends
Post by BobG on Jul 10th, 2014 at 11:35pm
Has your son been diagnosed with cluster headaches by a qualified doctor, hopefully a neurologist with experience and training in headaches? Going from headaches to illness to headaches to illness, repeat, doesn't sound to me like cluster headache symptoms. Possible something else going on?

Title: Re: illness after cluster ends
Post by Sconley50 on Jul 11th, 2014 at 12:28am
Yes, he has been diagnosed by a neurologist.  He doesn't always get sick when he isn't having CH's.  I just thought that maybe the "signal" that his brain gets was something like, "You're coming down with something."  And maybe that signal was what caused the CH to stop for a few days. 

Title: Re: illness after cluster ends
Post by maz on Jul 11th, 2014 at 1:34am
Perhaps he's having a reaction to the CH meds. What does he take?
Maz

Title: Re: illness after cluster ends
Post by Hoppy on Jul 11th, 2014 at 2:03am
Could be his imune system is low, maybe try some vitamin
C tabs, and a daily multi vitamin.

Hoppy.

Title: Re: illness after cluster ends
Post by Mike NZ on Jul 11th, 2014 at 3:36am
Or it could be unrelated. Not everything is directly linked to CH.

Title: Re: illness after cluster ends
Post by Firemedic82 on Oct 1st, 2014 at 12:27pm
9 years into my headaches and I'm still learning the oddities of it, so I can't give much help with the a possible connection between the two. What I am experienced in is not getting much sleep. If he is not resting well along with having headaches that are stressing him, his immune system COULD be suffering from the combination. Just a thought.

Title: Re: illness after cluster ends
Post by Batch on Oct 1st, 2014 at 5:19pm
Sconley,

The non-specific description of your son's illness are not much help.  Does your son have a temperature during these bouts of illness? Nausea? Any visual distortions? Has he seen his PCP to have any of these illness diagnosed and treated?

Regarding his CH diagnosis...  What did the neurologist prescribe as an abortive?  What did he prescribe as a preventative?

Suggest you tell your son to see his PCP and ask for lab tests of his serum 25(OH)D, vitamin B12 and magnesium.  Make sure he gets the actual 25(OH)D serum concentration and not the diagnostic lab's or his PCP's assessment of "normal."

You son is likely vitamin D3 and magnesium deficient.  Both deficiencies can and will increase the frequency, severity and duration of his cluster headaches.

Take care and please keep us posted.

V/R, Batch

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