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http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Cluster Headache Help and Support >> Cluster Headache Specific >> What did work...decided to retire. http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1407858438 Message started by daxm on Aug 12^th, 2014 at 11:47am

Title: What did work...decided to retire.
Post by daxm on Aug 12^th, 2014 at 11:47am

Hello, so I had this thing beat for a spell with 100 MG of Tropiramate (Tompamax) & 120 MG of Verapamil for the past four months or so. Its started off slow but now I am back to my full on everyday old routine of this lovely gift we all share. My doctor is very helpful and eager to learn but I am her first patient with this affliction. I am hoping to gain as much knowledge as I can before our next visit pertaining to where I should be looking to get a grasp on this thing. I have had all the scans and blood test done years ago when I was seeing a neurologist. It may have been my personal experience with that individual but I did not find many rewards working with her. Now I am looking for a new, "cocktail" that will take the place of the one that worked perfectly for months.... Any suggestions? Or ideas of any kind at all would be greatly appreciated.

-Thank You...Dax

Title: Re: What did work...decided to retire.
Post by Mike NZ on Aug 12^th, 2014 at 4:06pm

It is pretty common with CH for what works to stop working.

What I would do however is to find a neuro with experience and skill in treating CH as otherwise you're likely to experience a whole lot of pain via CH as your neuro learns by practicing (experimenting) on you.

Title: Re: What did work...decided to retire.
Post by dauber on Aug 12^th, 2014 at 6:08pm

Give the D3us ex machina a try! Look for the 123 days pain free and think I know why thread

Title: Re: What did work...decided to retire.
Post by Guiseppi on Aug 12^th, 2014 at 8:05pm

I'm with Dauber, here's the link, it's had me pain free for 4 years.

Follow this link to the medications section of this board and read the post

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Joe

Title: Re: What did work...decided to retire.
Post by feisty on Aug 13^th, 2014 at 7:31pm

I think trying the D3 regime is really worth trying - safe, low cost and DIY. If it works, your body needed it for other reasons anyway.

Also, have you tried O2 as recommended here?:
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When dh is at home it really helps him to abort the attacks. Not a cure but truly a lifesaver to stop the pain when he's at home.

Title: Re: What did work...decided to retire.
Post by BarbaraD on Aug 15^th, 2014 at 6:52am

D3 is working for so many of us. Give it a try..

And the Topamax.. that's a low dose.. I was on 300mg for years and it did help (but I took the whole dose at night to stop the side effects). Too much can cause depression, but the right dose can help.

But the D3 has been my lifesaver.. Have been PF since Oct 21st after so many years of being chronic (since 97). I urge you to try that. :-*

Title: Re: What did work...decided to retire.
Post by thierry on Aug 16^th, 2014 at 3:45pm

D3 all the way Dax
Give it a go, it works for me, it works for 80% of us
:)