So I will start off by saying I've suffered for years. I'm episodic (so at least I have that going for me). A few days ago I came across a poem a woman wrote during an attack. She expressed feelings in a way only another clusterhead could understand. It was inspiring...if that's the right word. Last night while going through an attack I picked up a pen. I shared what I wrote on a FB support site I'm in and a few asked to share with their friends and family. They've said its a good explanation of how we feel during an attack (although no words could ever do the pain justice). My personal friends were shocked that this is the pain and feeling I have been talking about for so many years. I'd also like to add that re-reading my scribbles after my head had cleared was a feeling I can't describe. A sort of therapy if you will. I plan to continue to write during the more mild of my attacks...you know...the ones where I can still remember how to hold a pen and make coherent thoughts. PF wishes to you all

I feel I'm alone, locked in a cell
Forced to live in my own personal hell.
The shadows, I feel them. It fills me with dread...
Knowing the beast will soon be loose in my head.
Nothing to do but sit here and wait
Wondering "will this forever be my fate?"
The beast - He's here! Breaking in now
He says "welcome to the show" and takes a grand bow.
He laughs at me winks, and smiles in gest.
Wreaking havoc and pain is what he does best. 
"I've got you now" he says with a sneer
And instantly fills me with the greatest of fear. 
With a red hot poker he jabs at my eye
I can't get away no matter how I try.
Squeezing my temple with his vise like grip
I bite down hard and bloody my own lip.
I cry and I rock, pull at my own hair
As I sink ever further into the beasts evil lair. 
He continues this torture for what seems like forever
Until it's my own head I wish I could sever.
As quick as he comes, he tires of his game
And leaves me exhausted lying in shame.
As he parts he gives me a look, maybe of sorrow?
But then smiles and says "see you again, the same time tomorrow."

G'day Darci, and welcome to our humble abode. Love the poem and reckon every CHead could relate to it.

Can we hope for more?

Thanks for the welcome. I just recently started writing as a sort of CH therapy....I'm sure there will be more here and there. ;)

You've an audience of many, many people here who know exactly what you're experiencing and will be able to relate to whatever you write.