Hello
I have suffered with ch for 29 years but have been pain free  for 7 years. Unfortunately they came back and I have to start all over with a new doctor and for the last 4 weeks I have been given a whole chemistry set of meds. I even tried the water and organic sea salt regime. No luck then I read the article about batch and the D3 regime.  I know have renewed hope. This site is a god send  and I want to thank all of you who post information to help all of us.

You're very welcome, Brode, just sorry you had to come looking for us. Good news is that there's been significant advances over the last few years so things can only get better.

That batch of vitamins is helping many, along with O2 used much faster with a friendlier mask. Look at the Oxygen Info button top left of your screen.

But wait, there's more, and that's before we get to the free set of steak knives!

Only good days ahead, mate, so buckle up and enjoy the ride,

Brian down under.

It is wise to not use seveal different treatment plans at the same time (doc's, Vitamin, etc.) for you'll not be able to tell which one is effective.

Hope you are working with a doc who has training/experrience with complex headache disorders. We have too much experience with docs who, lacking the skill, delay getting a good outcome.

If you want to lookfor a headache specialist:

LOCATING HEADACHE SPECIALIST

1. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

2.  Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

3. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE; On-line screen to find a physician.

4. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE Look for "Physician Finder" search box. They will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

5. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE NEW certification program for "Headache Medicine" by the United Council for Neurologic Subspecialties, an independent, non-profit, professional medical organization.
        Since this is a new program, the initial listing is limited and so it should be checked each time you have an interest in locating a headache doctor.
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WHY A HEADACHE SPECIALIST IS RECOMMENDED


Headache. 2012 Jan;52(1):99-113.
Cluster headache in the United States of America: demographics, clinical characteristics, triggers, suicidality, and personal burden.
Rozen TD, Fishman RS.

THERE REMAINS A SIGNIFICANT DIAGNOSTIC DELAY FOR CLUSTER HEADACHE PATIENTS ON AVERAGE 5+ YEARS WITH ONLY 21% RECEIVING A CORRECT DIAGNOSIS AT TIME OF INITIAL PRESENTATION.

Thanks Aussie Brian, I can't wait for the steak knives lol.
Hi Bob, I let 2 days go inbetween changing regimes, as far as doctors go I have seen several, one doctor put me in the emergancy room due to wrong medication and my reaction to it. My daughter has also seen several doctors since she suffers from migranes and CH's. In my area all they seem to want to do is throw a bunch of medication at us and hope that one sticks, forget sitting down and discussing the problem. Unfortunatly I have no health insurance so it is all out of pocket, and of course they all want to run theri own tests so it gets quite expensive. Thank you for your guidenance I greatly appreciate it.

Hi Brode,

I would recommend a vitamin d3 blood test.  Have you figured out how much they cost?  Without it, the vitamin d3 regime can be difficult to figure out if its working.  I would definitely start on the regime ASAP, but also be looking at getting the blood test done, or at an "at home" test kit being ordered off the internet.