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http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Daily Chat >> General Posts >> 24hours HF - feels like I've hit the Lottery! http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1414786635 Message started by Kevin-58 on Oct 31^st, 2014 at 4:17pm

Title: 24hours HF - feels like I've hit the Lottery!
Post by Kevin-58 on Oct 31^st, 2014 at 4:17pm

I have been in a chronic cycle since June 3rd - 3 to 5 a day. Dreading to fall asleep knowing whats to come, double checking my O2 bottles before leaving for work, refilling the relpax and wondering how much longer will this go on for. - Then, when I drove home last night from work, I realized that i had not used my O2 all day and the 2 relpax I left home with in the morning were still in my pill case... OMG a whole day and then last night I slept HF for 6 hours straight!
I don't want to set myself up for a disapointment, but - IT FEELS Like I hit the lottery! I don't know how else to describe this feeling - But I love it!
What is Ironic too - is, my 25 lpm regulator arrived from Amazon last night and i was actually looking forward to using the high volume O2 and no relpax to take the devil down...
Did we ever imagine being so excited about a HF day?
This is my and your life - I guess
Just wanted to Share this with everyone - Happy Halloween! ;D
Kevin

Title: Re: 24hours HF - feels like I've hit the Lottery!
Post by Mark Olson on Oct 31^st, 2014 at 4:37pm

Happy for you. Hope it holds.

Mine seem to start around the time changes, so I am just waiting to see if I get hit again this fall...

Title: Re: 24hours HF - feels like I've hit the Lottery!
Post by maz on Oct 31^st, 2014 at 5:05pm

I know only too well how it feels to get excited about what every one around me takes for granted. [smiley=clap2.gif] [smiley=clap2.gif]

Sounds like your cycle is coming to an end. I hope you get a really long break, and it's reassuring to know your regulator is ready and waiting. The max we get here in England is 15 lts per minute but it works fine for me.
Maz.

Title: Re: 24hours HF - feels like I've hit the Lottery!
Post by Don B on Oct 31^st, 2014 at 5:37pm

That's great Kevin.... the whole thing is so draining and life changing. I'm getting better at it for sure, but I also know there are PF days ahead at which point I am sure I will feel like a million bucks !! stay pf and enjoy !! [smiley=applause.gif] [smiley=applause.gif]

Title: Re: 24hours HF - feels like I've hit the Lottery!
Post by Mike NZ on Oct 31^st, 2014 at 7:39pm

Wonderful news. I hope the 24 hours becomes 48, 72, 96.... And it keeps going on.

Most people just have no idea how amazing it is for your head to just work normally.

Title: Re: 24hours HF - feels like I've hit the Lottery!
Post by BarbaraD on Nov 1^st, 2014 at 7:55am

Hope it lasts forever... :-*