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Cluster Headache Help and Support >> Cluster Headache Specific >> Maintance
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Message started by DaronH on Dec 19th, 2014 at 9:11pm

Title: Maintance
Post by DaronH on Dec 19th, 2014 at 9:11pm
I have suffering with these CH for 3 years now. As of late the pain has been unbearable. Earlier this year my PCP prescribed me Tramadol. Honestly it works great while I'm taking it. But two or three days after I run out they come back like they never left. I've been given furiocet, imetrex and all the other standard ones that they give. All though the Tramadol works, it just became a controlled substance in August. Therefore, leaving me concerned with possible dependence. Is there anything someone can tell me to help prevent these headaches. I really dont get remission periods. The only remission I get is when I'm taking Tramadol.   

Title: Re: Maintance
Post by tangerinearmy on Dec 20th, 2014 at 5:47am
tramadol DOES NOTHING for cluster headaches.

who diagnosed you
who prescribed tramadol

Title: Re: Maintance
Post by Bob Johnson on Dec 20th, 2014 at 10:10am
Pain meds don't work with Cluster. That you do get relief form Tramdol and NOT from the standard meds used for Cluster strongly suggests that you do no thave Cluster.

This is not a simple medical problem and it's likely that you doc has training/experience in this area. If at all possible, look for a headache specialist.
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LOCATING HEADACHE SPECIALIST

1. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

2.  Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

3. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE; On-line screen to find a physician.

4. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE Look for "Physician Finder" search box. They will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

5. START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE NEW certification program for "Headache Medicine" by the United Council for Neurologic Subspecialties, an independent, non-profit, professional medical organization.
        Since this is a new program, the initial listing is limited and so it should be checked each time you have an interest in locating a headache doctor.
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WHY A HEADACHE SPECIALIST IS RECOMMENDED


Headache. 2012 Jan;52(1):99-113.
Cluster headache in the United States of America: demographics, clinical characteristics, triggers, suicidality, and personal burden.
Rozen TD, Fishman RS.

THERE REMAINS A SIGNIFICANT DIAGNOSTIC DELAY FOR CLUSTER HEADACHE PATIENTS ON AVERAGE 5+ YEARS WITH ONLY 21% RECEIVING A CORRECT DIAGNOSIS AT TIME OF INITIAL PRESENTATION.
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There are a number of disorders, some rather serious, which mimic Cluster but which are not headache disorders. See:   
Link to: cluster-LIKE headache:

IN: "Medications, Treatments, Therapies --> "Important Topics" --> "Cluster-LIKE headache"

Consider printing and giving to you doc if you don't want to seek a specialist.

For your benefit, print the PDF article below....
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=downloadfile;file=THERAPIES-_Headache_2011.pdf (96 KB | 16 )

Title: Re: Maintance
Post by maz on Dec 20th, 2014 at 3:12pm
Tramadol does not work for CH, and imitrex does, so I think you must have one of the other headache types, of which there are quite a few. You really need to get a diagnosis from a headache specialist neuro in order to find the right treatment. Very similar to CH is paroxismal hemicrania. Treatment is indomethicin.
Maz.

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