Hello all,

I have suffered from Tinnitus for years. I have been meaning to put this question out there for quite a while.

When a CH attack starts the Tinnitus gets much louder than usual. I suspect it's due to increased blood flow, but I have no evidence to support that theory.

Do any of you also suffer from Tinnitus and if so, do you experience an increase in noise at the onset of an attack?

Peter.

Hi Peter,

Years of tinnitus here too...genetics and poor hearing protection due to youthful indifference, ignorance, and lack of employer instruction. It worsens as I grow older...and tho same approximate
timing as ch (30+yrs ago)... have noticed nary a bit of connection. Others here have reported same....

Best

Jon

Tlinnitus is caused by so many unrelated processes in our body that I doubt that there is anything distinctive betwen it and Cluster.

My first thought was: with a Cluster attack our attention is so strongly focused on our head that tinnitus, which we can often "turn out" or "tune down" (re. degree of awarenenss) becomes a focus of attention.

I've had chronic tinitus for decades but I'm seldom aware of it unless I choose to focus on the "noise".

Only on my right side for years, the same
side as my CH's. I've always put it down to the years
I spent in clubs and pubs as a DJ. I find that audiclean
helps mine a bit.

Hoppy.

Thanks all for your comments.

Hoppy, what's Audiclean?

I get my ears syringed twice yearly, but it makes no difference to my Tinnitus.

The Tinnitus is no big problem. I was just wondering if anyone else experienced the same at the onset of an attack.

Thanks again,

Peter.

Its an ear cleansing wash that keeps ears refreshingly
clean & clear, saves you from going too the doctors.   
You can buy it from supermarkets or your local pharmacy.

Hoppy. 

Thanks Hoppy,

I'll give it a try.

Peter.

Tinnitus has nothing to do with the outer ear--that portion which you can clean out, with anything.

Tinnitus arises from changs in the middle ear, quite sealed off from the big world.

Hobby points to one of the major causes of tinnitus--exposre to loud noise levels for years or to one time exposure to, e.g., an explosion. People work in a high noise factory, for example, and don't use ear protection have a high risk or developing both tinnitus and hearing loss in mid-life.

A number of medicines can cause it, also. Normal aging is a common source due to deterioration of the nerves in the middle ear which responsible for changing sound waves into nerve signals whichh are sent to our brain for processin into hearing.

Hi Bob,
The hissing in my right ear is with me all the time, but by
using Audiclean makes it less annoying. So, maybe I have
both wax build up, and Tinnitus.

Hoppy.

Hobby, #8: yes, wax build-up can muffle your hearing and, in extreme cases, almost make you deaf.

Tinnitus is entirely a nerve generated issue. With age, the middle ear's nerve capacity to respond to sound tends to degenerate, changing our hearing capacity. In response, the brain  cells which turn sound waves into hearing actually create tinnitus (think of it as static on your radio) in an effort to replace the lost sound waves. (There are other sources of  this loss, as I mentioned earlier, but this is the most common origin of tinnitus.)

I,ve had it all my adult life.

I put the cause down to the Irish Christian Brothers clipping me around the ears and head all through my school years.

But then, I was a bit of a tear away most of the time, so maybe that counts as "self-inflicted" ?????

Peter.

Yes, the number of people in their 30s who have lost some hearing can be traced to long exposure to the volume at rock concerts, etc.

Potential for loss is a combination of intensity and duration. And that makes the problem wide spread: working conditions, noisy machnes, gardnes who spend years on riding mowers, etc. High rates of loss from military folks exposured to battle field conditons, etc.

Wha makes the hearing loss more a problem is that about 60% of adults with diagnosed hearing loss refuse to use hearing aids. I suspect that figure is higher with younger adults with early onset tinnitus/hearing loss.

Bob Johnson wrote on Mar 15^th, 2015 at 12:53pm:

Wha makes the hearing loss more a problem is that about 60% of adults with diagnosed hearing loss refuse to use hearing aids. I suspect that figure is higher with younger adults with early onset tinnitus/hearing loss.

It always amazes me how people won't use a hearing aid but yet have no issue about wearing glasses.

I have it occasionally, whether I'm in cycle or not, and when I do notice, it doesn't really bother me.

But during my last cycle (four years ago) there were times when a CH would wake me and I could hear inside my head a very audible "dink" on the same side as I get the headache. This would be followed by a high pitched "whine" that over some five to ten seconds kept increasing in pitch until it dropped out of hearing at the high end of my perception. At the same time the pain of the CH would ramp up to full steam.

This was nothing my wife ever heard while sleeping right next to me and she's a light sleeper, so it probably was all "in my head."
Gary

Hi Gary,

I have experienced that too on a number of occasions. I have given up trying to figure it out.

Peter.

Mike NZ wrote, It always amazes me how people won't use a hearing aid but yet have no issue about wearing glasses.

Wearing glasses is all part and parcel of life, from the
very young, middle age, and the elderly, including sun
glasses, making a fashion statement, the same can't
be said about hearing aids! I for one would feel
uncomfortable having to were a hearing aid when
out and about. I also think vanity plays a part in this.

Hoppy.

Peter!
No Kidding?! 
I figured it was something weird just to me.  Believe it or not it comes as some comfort to know that someone else has had that experience, at times I was concerned WTF was going on.
This message board is great for letting us all know we're not crazy or alone in this.
...which I guess means, it's all in your head too!
:D
Gary
P.S. I haven't experienced that this current cycle...I wonder if the anti-inflammatory regimen has helped...

Gary,

That's an interesting question. I wonder what views Batch might have on whether D3 can effect Tinnitus noise patterns.

How is the D3 going for you generally?

Keep well.

Peter.