Hi folks
been a while since i have been here openly so hope you are all doing well :)
I'm ok still pesky chronic but doing ok have a lovely daughter now too :) nearly 6 where does the time go?
I was wondering if anybody can point me in the direction of the Gammaknife results for surgery as I'm sure there was a fatality of a CH sufferer but can't seem to find my links to the relevant studies
thanks in advance
zany
xxx

Can't begin to answer the question but thought I'd jump in anyway just to say G'day.

Glad everything is going well for you.

Gidday Brian :)
long time no see fella
yes things good here generally :)
hows you doing?

Mate, I'm going quicker than a free keg at wharfies' picnic. Beautiful weather, my brewery bubbling fit to rattle off the shelf and I'm still fulfilling my national duty in keeping barmaids employed.

PF times for all,

Brian down under.

Zany...

Before you EVEN think of anything like that Gammaknife.. start reading.. There are some things that have happened in the last few years that have had GREAT results for a lot of us.

D3 regimen is working for so many of us. After years (since 97) of being chronic, I've been PF since Oct of 2013 since going on it.

Try that before you do anything else... Check with Batch.. :-*

Barbara :) ltns
I'm not considering it at all it was just trying to find the results of the case studies...
I'm being treated by Prof Goadsby in London and possibly doing a few trials with him (Gammacore stimulator ,implants (new ones not onsi or dbs ) or possibly an injection (course of ) of a specific anti body
the Gamma knife was merely research based for records
glad to hear D-3 working well for you
zany

Hi zanychef,

I know nothing about the gammkife, but I did the gammaCore trial with Dr Juana Marin, a couple of years back. I put a few posts on here if you want to look back.

I have one with me all the time for emergencies. Send me a PM if you want more details or to discuss further.

Keep well,

Peter.

Thanks Peter :)
Trials are forging ahead with the Gamma core here with some very good results :)
I'm hoping to get mine if accepted in the next 6-8 weeks
If and when i get one I'll very probably have a chat with you :)
zany

Zany,

Best of luck with the trial.

Have a good look at the D3 programme too. I'm about 8 weeks in and doing very well on it. I've gone from 2 years chronic (every single day) to some shadows and the occasional kip 4-6 and even these are reducing in frequency still. Worth a try I'd say.

Contact me any time at all.

Keep well.

Peter.

Peter
I have looked in to it and at the moment not for me as after 30 yrs of daily meds i cant stomach the thought of popping more pills so have decided at the moment not to try :)
pfdan
zany

zanychef wrote on Mar 24^th, 2015 at 5:58pm:

Peter I have looked in to it and at the moment not for me as after 30 yrs of daily meds i cant stomach the thought of popping more pills so have decided at the moment not to try :)

If that is your only objection I'd strongly suggest that you at least give it a try. I've been CH pain free for over 3 years now and there are some who have gone over 4 years, covering both chronic and episodic.

Do at least keep this as an option.

I did a little looking, but didn't have the time to do much.  If you enter the search terms in the search box just above you will find quite a few posts regarding the gammaknife surgery.  I didn't find a death, but I didn't find much positive about it either.

Glad to see you back!

Jerry

I went 43yrs as an episodic CH, and then I found this
website, and started on the vitamin D3 regiment, been
CH free for two years now, and would recommend you
give it a try before going under the knife which to say
the least doesn't have a good record when it comes
too CH's.

Hoppy.

There has been a death as a result of the surgery for deep brain stimulation:

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE


Quote:

However, one pilot study did report a death due to post-operative intracranial hemorrhaging, an inherent risk for all DBS surgeries

.

Thanks everyone for the input and warm welcome back :)
I will consider D3 after i have worked with Prof goadsby for a while :)
Please understand I am NOT considering Gamma knife ONSI or DBS as an option :):)
I am looking forward to trialling Gammacore device however and possibly the trial for antibodies that is starting soon :)
I want to do these to assist the wider community and the medicos to further our knowledge in the treatment of our condition :)
I hope to be a bit more regular back here as i now have more time to concentrate on matters CH
zany