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Message started by Ron B on Mar 31st, 2015 at 2:53am

Title: New member
Post by Ron B on Mar 31st, 2015 at 2:53am
Hi y'all. I'm new here. Diagnosed with CH in February of this year. No idea how long I've had them though. I've dealt with migraines since I was 15 (I'm 24 now). Also have bilateral Trigeminal Neuralgia and acute intermittent porphyria. Just got my oxygen dose put at the correct level by a neurologist (hospital doc did it originally). That's about it.....

Title: Re: New member
Post by AussieBrian on Mar 31st, 2015 at 3:05am
G'day Ron, and welcome. It's good news you've already got your oxygen happening and there's the Oxygen Info button on the left of your screen that may let you get an even better result.

Having any luck with the other therapies available? There's plenty to choose from and we're only too happy to talk about them.

The best of times are ahead,

Brian down under.

Title: Re: New member
Post by Mike NZ on Apr 1st, 2015 at 12:07am
What is your "oxygen dose"?

Most people use 15lpm to abort CH with many finding 25lpm works even better.

It is important to use a non-rebreather mask, not nasal cannula as they are not effective.

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