:-? Was on my 6th day pain free was so happy, Had a k4-5 about one hour ago, took my 02 as directed ,no relief at all. Si took my 6 mg imitrex injection , about maybe 5 minutes after injecting it , my arms and legs feel weak , like very relaxed. Does this happen to you ? Is it normal?

I usually get a little flushed,sometimes nausea,some heart palpatation.
Usually I'm wore out from the headache,the shot seems to compound it.
Can't recall any tingling.
Perhaps you should consult with your doctor.
How is the d3 regimen going?

my D3 regimen is going great ,i am at the reloading part i have 4 days left at 50 000 ui daily then i am back at the 10 000 daily plus all the other supplements. Thank for your reply.

First, taking Imitrex after the attack is well developed produces poor or no relief. Should ake at the first sign of an attack starting.

Seond, ask you doc but I suspect the effect you report is a result of an ineffective dosing.

OK will try  the imitrex at the first sign of a attack, i thought we had to first take the 02 and if no relief then take imitrex, am i wrong? :-?

Hi shadia,
Their are two lines of thought here! Some folk only use oxygen to abort an attack when at home, and keep their auto injectors with them, when their out an about. Then some folk have to use the auto injector, and then jump on the oxygen to abort an attack.

Hoppy

Thank you Hoppy.. the 02 does not do wonders for me, so will take your advice and abort first with imitrex.

I find O2 works well for me, but I have to use it right away when I first feel the onset of a headache.  If I don't, it doesn't work very well for me.

shadia wrote on Sep 23^rd, 2015 at 4:11pm:

OK will try  the imitrex at the first sign of a attack, i thought we had to first take the 02 and if no relief then take imitrex, am i wrong? :-?

Hi Shadia, that's the way I use it. I try the 02 first but 02 won't work if it's a really bad one so then I turn to my injections. Sometimes I have been 20 minutes into the CH, but the injection never fails.

We are all different and what is best for some of us is not so good for others. You need to find a way that suits you best, by trial and error and then stick to it to get max relief.

the imitrex injections work everytime with so i dont know why i bother having 02 at home if it never works... would you keep 02?

Do you have the correct mask because it's vary unusual for 02 not to work. You must have a non - rebreather mask and a flow rate of at least 15 liters per minute. Get either of those wrong and it won't be effective.

Personally I would never part with my 02. It's cut down my use of imitrex injections by 90%.

yes i do have all the right equipment , will try again and see maybbe one day it will work , i know at least imitrex works wonders. Thank you Maz .

shadia wrote on Sep 26^th, 2015 at 6:02am:

yes i do have all the right equipment , will try again and see maybbe one day it will work , i know at least imitrex works wonders. Thank you Maz .

  Pics please.  We loves O2 porn.

            Potter

Funny Mr Potter!!  :D

Potter was only half way being funny, if you can, please post a picture of your oxygen set up, tank, regulator mask etc. Sometimes there's an obvious deficiency we can spot and help you correct! We love a nice 02 set up, thus the term 02 porn! ;)

Joe

oh! ok well i will try to do that soon... i'l try to find a nice neglige for my tank ! I have a repiratory therapist who came to my home and verified that everything was according to ch oxigen info, and she told me i was very well set up. Thanks for the explanation of 02 porn lol. :o

and i have a non rebreather mask, can we send just one picture at a time?

---

non rebreather mask. So am i well set up ? Or do you have other suggestions? Thanks!

---

As you will see your mask has uncovered holes on one side. They all do in case you should fall asleep and the tank runs out, so you can still breath. I've done it several times. It stops you suffocating but also allows ordinary air in.

The best mask you can get is the one you can buy from the store on this site . "CH.com store" - tab on the left of your screen. It has no holes so the 02 stays pure and aborts much quicker, and a bigger bag so you can breathe deeper. It also has no elastic head band so you have to hold it all the time. If you fell asleep you would drop it, so you wouldn't suffocate.

I bought one a few weeks ago and its brilliant, and very reasonably priced. It arrived quickly too all the way to england. Be aware you may have to pay customs charges - I didn't, but I don't know about your country.

Hope this helps
Maz.

thank you Maz will go see the store.

What you could do whilst you're waiting is to:

• cut off / remove the elastic band - so if you fall asleep whilst using it and the tank run dries you do not choke / suffocate
  
• block off the holes in the mask with something, e.g. sellotape or similar
  

One of the holes is blocked with a plastic disk and my respiratory therapist will bring me another one, but yes it  is a good idea to block the other one with tape. With it be as effective as the mask sol here at the store?

It will help. I just use a disc off a spare mask to block up the holes.But if I use it at night when I am likely to fall asleep I just take one disc off.

The mask sold here has a much better fit around your face and has cushioned edges so much more comfortable to wear. It also has a 3 litre bag instaed of the 1 litre on your mask,which means you can breathe deeper and faster which will lead to a faster abort.  And because it all works faster you will probably find you use a little less 02, which is important if you have to pay for it.
Maz.

All right will get the mask, thank you so much Maz for taking the time to explain about the mask.

I took the mask off of the tube and just suck the O2 straight from the tube using Batch's hyperventilation technique.  That works the best for me.

Just to add, there is also a mouthpiece which you can use directly if you don't want to use the mask for some reason. Basically it's for men with beards who can't get a good seal round the mask but could be useful to any one for various reasons- including if you should fall asleep.

thanks again for the info, i have been pain cluster free for over one week and having just one episode in the last two weeks, i will wait a bit to buy the mask , but i will for sure if or when the CH come back, I think the vitamin D regimen is really helping.

Bob Johnson wrote on Sep 23^rd, 2015 at 3:03pm:

First, taking Imitrex after the attack is well developed produces poor or no relief. Should ake at the first sign of an attack starting.

While I will not recommend this for anyone, and you may be right about Imitrex not working for most developed attacks, this is not my experience.

Some attacks are not pure evil, and some never develops. I have bad experience with Imitrex causing more attacks, so I'm generally cautious using it. That is why I often wait until the pain is unbearable with the Imitrex injection. It's my last resort.

I have never experienced that it doesn't take the pain away within 5-7 minutes. Perhaps I'm just lucky.

I also have never had a failure with the imitrex injections. I try 02 first - which usually works, but on the odd occasion when it doesn't, I take an injection.

It's the pills which are generally useless once an attack has started. They can take up to an hour to become effective and often by that time the attack is over anyway. However, if I take one at bedtime it's just about started to work by the time the first attack of the night would wake you up. So it helps you get a few hours sleep.

Hi Maz,
           The pill before sleep is a life saver, and has worked 100% of the time for me, especially after having countless interrupted nights sleep thru a cycle, then the reprieve of a full nights un interrupted sleep !  bliss !.
The quickest a pill has worked for me, from the first wee tingle in the head is about 30 minutes !  mine generally last about 40-45 minutes, so not much of an effect really.
I'm so glad the regime has made my cycles so much milder, as my next move would have had to have been injectables, and there's three things I hate in life,  Warm beer, Runny Ice cream and NEEDLES !   I wouldn't have been able to do it !      I truly admire those that are able too.

all the best
colin

Hi Colin
I used to feel like that. I had an absolute fear of ever becoming diabetic and having to have twice or thrice daily injections, and I always said I would never be able to do it.

I was terrified the first time I used one, but believe me - compared to a kip 10 it was a walk in the park. In fact, with that much pain in the head you don't even notice a jab in the leg sometimes. Much preferable to gouging your own eye out with a rusty tea spoon.

Good old D3
Maz.

HaHa,
          Your right maz, anythings better than a kip 9-10 !!
   My local pharmacy holds the injectable imigran, but luckily I haven't needed to go there. In fact, even though my neuro ( which I haven't seen for 18 months)  is good, the injectable was never offered, in fact I learnt about them when I joined the forum here. My local doctor that I've been seeing for the last 18 months and who has seen the results for me on the Vit regime and been doing all the blood tests didn't even know that was an option when I bought it up with her. But, she acknowledged that If I need them she would write up a script, so that's good.
Hope your doing well Maz ?
colin
 
 

The injections were never offered to me either. Nor were the pills or the 02, or in fact any of the meds most commonly used for CH. I was just given pain meds for 5 years.

I learned about all the meds here, and had to actually ask for them. It's taken a while but I have 2 doctors in our practice who now have some idea of what's going on, and another who has started to take an interest. I think it helps if you have a K8 right there in thier reception area where it caused a huge fuss. Gets their attention.

Not doing too bad Colin. How about you ? Booked your holiday yet ?
Maz.

Hi Maz,  sorry for the delay, my inlaws arrived from " "aussie brians" neck of the woods, so we've had to acclimatise them to our Melbourne weather and comfort them from the shock !
I'm going o'k at the minute, I've been in a cycle now for about 6-7 weeks, which is the normal time of the year for me, especially though since we had the warmest October here on record and the pollen count has been off the scale. But, apart from 7-8 break thru kip 1-2's, and a lot of aura shadows, that's been the extent of it. Those kip 1-2 hits have decided to come at precisely 1.00 am in the last week, so I've foiled them for the last few nights by popping an imigran pill before bed time. I've tinkered with the Benadryl, which has been really effective, so its just a case of riding this out now.  Basically, this is my third cycle this year and all of them have basically been just a nuisance factor, with the same intensity, so I'm so happy, and so appreciative of the regime and Batches help.
We took the in laws to dinner last nite, a 5 minute walk to our local Thai restaurant, I couldn't resist sneaking a mouth full of my wife's red wine, my first drink of alcohol in probably 3 years, within 5 minutes, I got slammed ! I had to walk outside into the cool air of the night, thinking that I'd have to make a dash home, but it got to kip 2" ish and was gone in 5 minutes !   What a fool I was !  But wow it tasted nice  ;D
As far as our Holiday goes, I had to tell my wife of my so called surprise ! because we want to try and go for 4-5 weeks, so her work is letting her know by xmas, whether it will be April/ may or august/September, so where in limbo at the minute. They generally only like 2-3 week holidays to be taken at one time, but we are not going to travel all that way for just 2 or 3 weeks, we want at least 4-5 weeks.
  We are SO overdue for a decent holiday and I'm so looking forward to next year !  I'll keep you informed when we actually find out from her work.
all the best, hope things are treating you well
talk soon
colin

Mark Olson wrote on Oct 1^st, 2015 at 8:01pm:

I took the mask off of the tube and just suck the O2 straight from the tube using Batch's hyperventilation technique.  That works the best for me.

So what is the difference with a non re-breather mask?

Hi Globi
The typical non rebreather mask as supplied by hospitals has small holes on each side. One side is usually covered with a small disc, so acts as a one way vent, to let air out, but not in. The holes on the other side are not covered. Air can get in, so although you are breatheing a much higher concentration of 02, the air prevents it from being absolutely pure. I guess the holes are in case you should fall asleep and the tank runs out (which I have done a few times). You can block the holes up, but without that extra air getting in I found it was hard to breathe deeply as the bag doesn't really hold enough.

The mask you can buy here has no holes so the 02 stays pure.

Also, if you take the normal non rebreather  mask off and put the tube in your mouth and seal your lips around it, this also prevents the outside air getting in as you inhale, so the 02 stays pure. The purer the 02, the quicker it will take effect.

Hey Globi,

I used a normal non rebreather mask for years. Last month I bought the specifically CH designed one on sale here and it is significantly better.

Well worth the money.

Keep well,

Peter.

Hey Globi,

Long time no see...  Sorry you're back with us... 

Have you been down to Scheveningen lately? It had so many great little restaurants with a view of the North Sea, it was one of my favorite areas to eat around Den Haag.

If you're still looking for a good non-rebreathing oxygen mask, check out the following links for a sure fire procedure and DIY Redneck Oxygen Reservoir Bag Breathing System:

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

Take care and please keep us posted,

V/R, Batch

Good to take note of side effects. When I kill a CH, I usually feel very relaxed.

askapatient.com is an interesting place to check out how people are experiencing medications.