hello everybody.. first post here.. cronic 10years.. live in spain.. my englsh is very bad.. so excuse me.
I decided to write here.. after read some post..

What im going to see.. its based on my experience.. it s analityc.. and empiric.. at least in my case..

first of all my cycles.. are easy.. im cronic....
during one year.. i have two bad months.. and the rest of te year.. i have one crisis every 2-3-4 days .. since i eat 240 mg of verapamil a day...

What i have discovered..

I can not separate a crisis more than 4 days..
If i take more than 2 beers.. usually a crisis come in the next 1-2-3 hours ( apply too champagne.. cava )
If i take some that finish in OL .. for example :
- Bisolvon ( in spain its a drug liquid.. for expectorant.. when u are cold and have mucus in troath .. to take out ) it have Propilengicol.
- liquids for candidiasis or other --> ketoconazol
- Gums sugar free --> Sorbitol..
- processed cigarretes... the industry wash the leafs with PolyOLS..
After read a post here.. one friend.. says around the same..
Sugar alcohols detonate crisis for him..

If our body , produce some substance to fight against this quimic form ?? i dont know.. if our body its not tolerant to this particulary quimic form ?? i dont know.
I think.. not necessay must be alcohol.. i have the theory that its something regardind.. quimic estructure...

My theory..
-i dont know what we put inside our bodyes.. eating drinking or smoking.
- our body is a bag that have a reach of 100-100 to detonate a crisis..
- Every component have.. a quantity of posion.. and a time of reaction...
For example..
Beer can have 60-100 and a time of reaction of 2hours
Sugar alcohols can have 40-100 and a time of reaction of 8 hours
Bread.. preprocesed food can have 20-100 and a time of reaction of 8 hours
Smoke can have 10-100 and a time of reaction of 6 hours..
-Our body takes all the posion.. do the quimic.. and makes boom with a freak formulation of everything that we take along the days--weeks..years..

Excuse me again.. because i am not quimic.. doctor.. i am nothing... ( i work in IT ) I need a quimic !! ;)

If our body dont know how to process this substance ?

I will go more away..

I think Oxigen is important..
Brain need Oxigen
CH patients cut crisis with oxigen..

Alcohol .. OL .. POlyols... makes less oxigen to brain..
Inflamation in neck and back makes less oxigen to brain..
Stress can make less oxigen to brain..
Change of pressure can make less oxigen to brain
I hope all of u can understand me.. to generate a discuss.
I think we need study in each particulary case.. how we can make to introduce naturally more oxigen to head.

Slav in other post ( How i abor cluster.. ) Said

I can cut also a cluster headache attack with lots of cafeine..
What cafeine do... You breath faster.. u get more oxygen.. i dont say that.. it is says by the quimic.


Thanks..

To finish :
Since 10 years.. very carefully i do one thing.. one by one.. to see if i can win CH.. "MDB always win".. ;) .. i am finish one bad cicle.. so im decides to test this two things.. this time..

- Go fisioterapyst to test a teory.. to give more circulation to head..
- Try a diet for celiacs.. and free of FODMAP.

Thanks for reading me.. have to be hard... thanks friends..

Hi MBD and welcome,
You wrote, first of all my cycles.. are easy.. im cronic....
during one year.. i have two bad months.. and the rest of te year.. i have one crisis every 2-3-4 days .. since i eat 240 mg of verapamil a day...

240mg/day of Verapamil is a low dosage when it comes to treating CH's! 360-480mg/day seems to be the most effective, with some folk on 900-1000mg/day before they get any relief from the  [smiley=evil.gif]

Hoppy

hi hoppy thanks !

My neurologist.. my specialistic medic.. told me.. that for the moment.. i will continue to eat 3x80 verapamil for day.

I took verapamil since.. 2008 i can remember.. never go up with more..

Two weeks ago i told to my medic.. and told me "NO.. i will no increase verapamil"

Thanks.

I will go more away..

I think Oxigen is important..
Brain need Oxigen
CH patients cut crisis with oxigen..

Alcohol .. OL .. POlyols... makes less oxigen to brain..
Inflamation in neck and back makes less oxigen to brain..
Stress can make less oxigen to brain..
Change of pressure can make less oxigen to brain
I hope all of u can understand me.. to generate a discuss.
I think we need study in each particulary case.. how we can make to introduce naturally more oxigen to head.

Slav in other post ( How i abor cluster.. ) Said

I can cut also a cluster headache attack with lots of cafeine..
What cafeine do... You breath faster.. u get more oxygen.. i dont say that.. it is says by the quimic.


Thanks..

REM PHASE
90% of my crisis come in REM phase at night..

This article is in spanish .. sorry

I have found some articles in spanish that comes to say...

"During phase rem.. oxigen compsution is higher than the rest of the day "

In Phase Rem, we need more oxygen...
Could somebody here find some article in english about oxygen.. brain.. and rem phase ?

Always.. always oxigen comes in place.

.. excuse my spam.

MDB - I agree 100% with your theory.  I suffered attacks every night for 5 years.  Then my neurologist ordered a study for Sleep Apnea (which creates low levels of oxygen due to stopping breathing).  In June I was put on a machine (called a CPAP) to stop Sleep Apena at night. Since then I have had NO HEADACHES at all.  I suggest you talk to your doctor about this.  It worked for me -- it was a miracle.  There are some medical papers about Apnea and CH, but the field is not well-studied.  I only know that it worked for me.  Good luck.  Send  me a PM if you have any questions.

Thanks for share your experience traveller.

Im sleepwalker since i remember 4-5 years.. always i talked in dreams.. always i wake up with terror... i snore a little a little..
Anyway.. i have see the machines for apnea.. it gives you oxygen in a regular way... must see that in next visit to my neuro medic.

oxigen --brain oxigen--brain