If this didn't have Goadsby's name attached I wonder what abuse it would attract?

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Yep I know Migraine isn't CH but I know from experience the same single problem can lead to both HA's however the differing identification of the HA type leads to two different treatment approaches.

Same cause, two differing diagnoses, two different drug regimes.

That's HA experts for you!

I've used menthol (essential oils) in a hot bath for years .. it didn't stop either headache but made it easier for a while.

The D3 has me in "remission" from CH, but I'm still suffering from migraines so think I may try this .. Probably won't hurt me and at least I'll breathe better for a while.

I do put Vicks up my nose when I get real bad as well as rubbing it on my head. That's got a lot of menthol in it too.

Whatever works ..  :-*

Whatever Works, absolutely.

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Our individual Chemistry Sets (our bodies) are extremely complex and so are the plants that grow around us.

Its bad when we have a bad reaction to something but great when we find something that works.

I have used tiger balm, peppermint oil and cinnamon oil for a long time. They all seem to lighten the strength of the HA and sometimes seem to shorten them.

I use them on the nostril opening and on the eyelid...

Another old favourite for migraines is Lavender Oil! A few drops in the bath, or rub some on your forehead, and a few drops on your pillar works wonders, or so they say.

Cheers Hoppy

Hoppy,

A few drops on your pillar works wonders.  ??????????????

Hey Peter510....
I thought the same thing. Great minds think alike.

CDog wrote on Mar 11^th, 2016 at 7:33pm:

I have used tiger balm, peppermint oil and cinnamon oil for a long time. They all seem to lighten the strength of the HA and sometimes seem to shorten them. I use them on the nostril opening and on the eyelid...

Yep that should fix that pesky headache.

            Potter

Please keep in mind if you are going to try this, that smells of any kind is a huge trigger to many of us. Perfume, candles, air fresheners, kerosene, citronella, etc.

Thank you Potter

For your lack of wit, understanding of science or what causes a HA (nor of what will assist a HA)

Perhaps you have grasped that smells / odours / fragrances can create a headache but you must have been missing in school when they did their curative properties.

A few years ago you might have been press ganged into the book burners, the Luddites or the Flat Earthers. You missed your time!

Someone as vociferous as you who can spot the stupidity in people and know from instinct (not knowledge) that someone is talking bollocks might also have missed the week when your school underlings were learning about irony.

Potter you are a non entity, your abuse delights you but harms no one else other that you. You are not interested in facts you are driven by a very warped ego.

You could take a different tack and start enjoying life for the reasons of helping, supporting or giving. Or you can wallow in your own self satisfied dissatisfaction. Your choice, your life!

Peter510 wrote, A few drops on your pillar works wonders.  ??????????????

For migraines  [smiley=sleep.gif]

Hoppy

lancashire Lad wrote on Mar 12^th, 2016 at 1:43pm:

Thank you Potter For your lack of wit, understanding of science or what causes a HA (nor of what will assist a HA) Perhaps you have grasped that smells / odours / fragrances can create a headache but you must have been missing in school when they did their curative properties. A few years ago you might have been press ganged into the book burners, the Luddites or the Flat Earthers. You missed your time! Someone as vociferous as you who can spot the stupidity in people and know from instinct (not knowledge) that someone is talking bollocks might also have missed the week when your school underlings were learning about irony. Potter you are a non entity, your abuse delights you but harms no one else other that you. You are not interested in facts you are driven by a very warped ego. You could take a different tack and start enjoying life for the reasons of helping, supporting or giving. Or you can wallow in your own self satisfied dissatisfaction. Your choice, your life!

  I just knew you or one of the unwashed would jump right on in.

       Potter

Potter

You are not funny

You are thick

I'm writing in short sentences

to help you understand

When I came here

I was frightened

I fear no man

Nor animal

You got off

scaring people like me away

Now

Its pay back time!

lancashire Lad wrote on Mar 12^th, 2016 at 2:27pm:

Potter You are not funny You are thick I'm writing in short sentences to help you understand When I came here I was frightened I fear no man Nor animal You got off scaring people like me away Now Its pay back time!

Begin the beguile.

           Potter

Benign Infantile?

We'll see!

lancashire Lad wrote on Mar 12^th, 2016 at 3:00pm:

Benign Infantile? We'll see!

Seems to be yer pissin match.

            Potter

CDog wrote on Mar 11^th, 2016 at 7:33pm:

I have used tiger balm, peppermint oil and cinnamon oil for a long time. They all seem to lighten the strength of the HA and sometimes seem to shorten them. I use them on the nostril opening and on the eyelid...

Wouldn't those items be potentially dangerous around mucous membranes or in the eyes? Like blindingly dangerous.

Not so far...

I believe that some of you newer members may not have read DJ's rules of conduct.  Here is a portion that applies to a certain poster on this thread.


Debate is welcome (and encouraged), but attack ideas and opinions; not personalities.  Note that putting an "in my opinion" type of qualifier on a violating statement does not change the fact that the statement violates these standards.

Personal attacks or threats against other board members will NOT be tolerated. Racist, sexist, Anti-Semitic remarks, or hate speech will not be allowed. Calling a member 'troll' or using 'troll' or similar emoticons is considered a personal attack.  Abuse of the Private Message (PM) privileges, harassment, stalking, etc... will not be tolerated.

While Potter was being flippant...he did no name calling.  Please adhere to DJ's rules.

Linda

And so the great unwashed to bed.

Linda_Howell wrote on Mar 12^th, 2016 at 6:31pm:

I believe that some of you newer members may not have read DJ's rules of conduct...

There's some older members would benefit from reading it, too.

I am often puzzled at how people want to mold a place to fit their personal vision of what it should be - as opposed to what it really is.

When DJ says there is a problem, I will most certainly pay attention. When one of his moderators ask for a change....OH YOU BET that I will.

I can only assume that it is an egocentric thing that makes people want to control the dialog of others....... because their opinion must be the correct one? Other views of acceptable conduct just don't matter to them.

Amazing, really - when you think about it.

Marc

Hoppy wrote on Mar 12^th, 2016 at 1:48pm:

Peter510 wrote, A few drops on your pillar works wonders.  ?????????????? For migraines  [smiley=sleep.gif] Hoppy

What? You haven't heard that essential oils and aroma therapy will cure your CH's overnight? Get with it man!

Hey, aspirin works for me - so help me spread the word. Otherwise I will call you names and tell you that you are evil because all cures need to be discussed here.

That way, CH sufferers can endure even more agony while they try BS treatments! If you wonder why I seem intense about this: Been there and done that.

Marc

Sarcasm is one way but by far ridicule is the best.

This is a public place where folks come looking for / to help.

If you want a private blog to rip each other apart that's fine, get to it.

But whilst its public and ridicule is countenanced from one side but not another then what's the point?

Someone comes on and says this works for me and is flamed, that's OK. Then somebody else has a pop at the flamer and that's not OK.

These are your rules not mine although I did miss the bit in DJ's rules that says established members here have the right to be obnoxious and newbies can like it or lump it.

Whilst you have sarcastic / ridiculing behaviour permitted by the Moderators for the old timers you will keep churning out the same old, same old.

Which is a shame because there is a wealth of knowledge and experience that is being squandered by the locals who feel they need to repel all borders.

lancashire Lad wrote on Mar 12^th, 2016 at 1:43pm:

Thank you Potter For your lack of wit, understanding of science or what causes a HA (nor of what will assist a HA) Perhaps you have grasped that smells / odours / fragrances can create a headache but you must have been missing in school when they did their curative properties. A few years ago you might have been press ganged into the book burners, the Luddites or the Flat Earthers. You missed your time! Someone as vociferous as you who can spot the stupidity in people and know from instinct (not knowledge) that someone is talking bollocks might also have missed the week when your school underlings were learning about irony. Potter you are a non entity, your abuse delights you but harms no one else other that you. You are not interested in facts you are driven by a very warped ego. You could take a different tack and start enjoying life for the reasons of helping, supporting or giving. Or you can wallow in your own self satisfied dissatisfaction. Your choice, your life!

Wow - having a bad day?  Posting this does not position you to whine if someone insults your behavior.   

With my perceived potential and propensity to pontificate precipitously, I punctuate with:

Take a deep breath - calm down. It's the internet - not your kitchen.

(For some reason, I have to go pee now!  ;D)

Respectfully,
Marc

No not my kitchen; your cresh!

Come to CH.Com, all abuse welcome!

Sorry, correction

All abuse from old timers.

You present yourself as someone looking for a fight.

I will politely back out of this thread, as I have made my position clear - and do not wish to engage, and certainly not abuse.

Marc wrote,
What? You haven't heard that essential oils and aroma therapy will cure your CH's overnight? Get with it man!

Hey, aspirin works for me - so help me spread the word. Otherwise I will call you names and tell you that you are evil because all cures need to be discussed here.

That way, CH sufferers can endure even more agony while they try BS treatments! If you wonder why I seem intense about this: Been there and done that.

This thread started off as a  [smiley=bath.gif] migraine treatment and my comment on Lavender Oil was just another remedy that is known to help some folk with their migraines! I never once mentioned CH's.

Hoppy

lancashire Lad wrote on Mar 12^th, 2016 at 8:40pm:

Sorry, correction All abuse from old timers.

Ummmmm...I've never been ashamed of being an "old timer"...and I find this statement odd. Ifin ya don't like what I.... or someone says...say so...and say why...opinions are easy and remarkably cheap (I've got some freebies myself)...but insulting an entire group...like I say...odd!

Now then...this may get me in trouble...but whatever. I think folks posting "alternative" cures-treatments-actions-options-et al...on a site with THOUSANDS of patient years of experience...better be willing to defend their position...without being so delicate that a sarcastic-questioning-skeptical-flippant response scares them off like a whipped puppy.

There have indeed been such alternate suggested options that proved to be absolutely invaluable for the ch family...many surviving scathing derision...and that is the KEY phrase..."surviving scathing derision"....happens in the medical community ALL THE TIME. Agreeing with or encouraging an off the wall option WITHOUT serious consideration is IRESPONSIBLE. The  "old timers" know full well what's likely to work...or NOT (we've tried a LOT of 'em)...but opinions change...a oneoff post aint gonna do it. Show us.  What I worry about is the folks who haven't been here for a while and are not experienced enough to be skeptical. The internet is FULL of miracle/instant cures...and folks jump on those. When you are talking ch...that just.aint.right!...and results in a lot of unnecessary suffering by a lot more folks than just the "newbie".


And one more thing...now that I'm pissing myself off....and this has annoyed many... I know not why...but, I think, common courtesy when posting for the first few times on a long running forum....is to read the history of that forum....then disagree or suggest different  if ya want...but see what you are disagreeing with by READING THE HISTORY. Otherwise, you're the rude one.....and I'm tired of hearing that I'm a butthole because YOU are rude and I SAY so. Pat's gone...and dearly missed...her Theorem survives..........

Best

Jon

I'd say "let the bashing begin"...but I got bashed for pointing out that the oneoffer asked to be....
ah well...................................................

Quote:

This is a public place where folks come looking for / to help.

That should read ... where MOST folks ....  Some come here to pedal BS and some have gotten pretty good at sniffin' out that BS.
Besides, we like Potter and you are just you.

The European Parliament are sponsoring a Cluster Headache Awareness Day 21st March 2016

The “Closed Shop” Brigade on here will not be interested but others might be, it sets out to promote public awareness and compassion of the crippling condition.

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For the little sub group of protectionistic bigots (you know who you are) who know what works for them and anything else is BS. When you finish (not going to happen any time soon) flaming with sarcasm, flippancy, abuse, pejorative indignation; you might want to design a poster advertising the sub group's mission, here's some help in getting started.

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Maybe you should write a letter to your mother.

               Potter

That's nice! You have brought my mother into this.

But you have a blessing that I don't

if I wanted to write to my mother and sister

that would be two letters.

Knock it off. 

Any further bickering about this will result in your profiles being locked.

Got it?

Didn't there used to be an "ignore" button or is that only for PM's?

wrote on Mar 12^th, 2016 at 4:47pm:

CDog wrote on Mar 11th, 2016 at 7:33pm: I have used tiger balm, peppermint oil and cinnamon oil for a long time. They all seem to lighten the strength of the HA and sometimes seem to shorten them. I use them on the nostril opening and on the eyelid... Wouldn't those items be potentially dangerous around mucous membranes or in the eyes? Like blindingly dangerous.

Luckily, I am smart enough not to put the oil in my eye... :P

wrote on Mar 12^th, 2016 at 11:44am:

CDog wrote on Mar 11th, 2016 at 7:33pm: I have used tiger balm, peppermint oil and cinnamon oil for a long time. They all seem to lighten the strength of the HA and sometimes seem to shorten them. I use them on the nostril opening and on the eyelid... Yep that should fix that pesky headache.             Potter

Contrary to what you know/believe, it does help ME...

Marc wrote on Mar 12^th, 2016 at 8:04pm:

Hoppy wrote on Mar 12th, 2016 at 1:48pm: Peter510 wrote, A few drops on your pillar works wonders.  ?????????????? For migraines  [smiley=sleep.gif] Hoppy What? You haven't heard that essential oils and aroma therapy will cure your CH's overnight? Get with it man! Hey, aspirin works for me - so help me spread the word. Otherwise I will call you names and tell you that you are evil because all cures need to be discussed here. That way, CH sufferers can endure even more agony while they try BS treatments! If you wonder why I seem intense about this: Been there and done that. Marc

If you are referring to my comment, I never said cured. I said eased and shortened...

CDog.
I too have used Tiger Balm (white) and peppermint oil for many years to help relieve the symptoms of migraines and CH's. I apply  to my temples and back of the neck.

Thanks for replying. I say whatever works for you, do it!

I'm kinda in the blu cheese in your armpits while taking a vinegar sponge bath crowd.

Hey, I've worn banana peels on my head all day - didn't work (go back to the Archives Landshire - it's all documented there), but gave me something to do that day ..

I've been here a heck of a long time and am not one to bash (I say what I think and some consider that bashing, but it's not meant that way).. but some of these guys you're hitting on (Potter) kinda gets my back up...

See, us OLD TIMERS actually KNOW each other and we kinda consider this our family and take a little offense when someone insults our cousins..

Before you start calling us names, you might want to go to the archives and see what some of us have been thru over the last 15-17 years and get to know us before you post much else..

WE are here for support, but watch it buddy... Potter is family...

Barbara

You have confirmed what I think is pretty much obvious.

There is a closed group on here (a public site offering help to the general public) that consists of bigoted, self appointed experts.

You claim to be charitable in offering unconditional advice, which in actual fact is nonsense.
Nonsense in the sense that it is not conditional (either your prey take your advice as a given or the poor sufferer can go to hell.

Nonsense in the sense that the “perceived wisdom” is based on personal experience and not science,
so if someone gets relief from what works for you they are OK, if they don't then they are an upstart and need to be made unwelcome.

Nonsense in the sense that a small group of a dozen people or so know better than the rest of the world.

There is a wealth of expertise and experience on here, which is squandered by the arrogance of “group think” (a very small group).

Your intolerance makes this an unpleasant place (not to you) but the phrase “happy as pigs in shit” comes to mind.

Get on with you same old same old, enjoy your smug self satisfaction, this place has nothing to offer me any more so I won't be checking in again.

Good luck and enjoy your deluded status.

Lancashire lad,
When i first came here 2 or 3 years ago, it was plain to see that these guys "knew each other" and were friends / a group.  But I never once felt excluded because I was a newby - in fact I have never felt so welcomed. It's hard to infiltrate ready made groups as I have found out on other forums, but here I was instantly accepted.

Science had not yet helped me, and until I came here no one even knew what I was talking about. It was the personal experience of these folks that guided me to the science which would help.Something  6 or 7 doctors had failed to do.
Without the help I found here I would still be floundering in the darkness - or dead. Don't knock the experience of others. Often that's all there is.

.....alas lad...you've fallen into the same self righteous quagmire that murder-suicide knotheads do...
.....they get  the order wrong!!!!


...that is....posting flaming nonsense BEFORE the finger up sign off....and subjecting thousands of clusterheads and their supporters to blatant nonsense.............bad form lad

I KNOW you're reading this...but ya canna reply brother.........  :-?:-X


...and what you don't know...you REALLY don't know......


Best........STILL

Jon

lancashire Lad wrote on Mar 17^th, 2016 at 3:56pm:

Barbara You have confirmed what I think is pretty much obvious. There is a closed group on here (a public site offering help to the general public) that consists of bigoted, self appointed experts. You claim to be charitable in offering unconditional advice, which in actual fact is nonsense. Nonsense in the sense that it is not conditional (either your prey take your advice as a given or the poor sufferer can go to hell. Nonsense in the sense that the “perceived wisdom” is based on personal experience and not science, so if someone gets relief from what works for you they are OK, if they don't then they are an upstart and need to be made unwelcome. Nonsense in the sense that a small group of a dozen people or so know better than the rest of the world. There is a wealth of expertise and experience on here, which is squandered by the arrogance of “group think” (a very small group). Your intolerance makes this an unpleasant place (not to you) but the phrase “happy as pigs in shit” comes to mind. Get on with you same old same old, enjoy your smug self satisfaction, this place has nothing to offer me any more so I won't be checking in again. Good luck and enjoy your deluded status.

I will risk getting banned from here to say this.

This is a sad post. This is a group who can offer more "real" help for CH's than any other place on the net.

Sometimes, ego's get in the way of getting help from us. After so many years, I have come to understand that there are people who simply want it their way - period.

Getting your feelings hurt on the internet should not be a deciding factor in your treatment program. If you let that happen - you are the one suffers - not others.

I do not have access to the files, but I am willing to bet that certain here people have been sending private messages to further fuel this level of misunderstanding and anger.

To quote another person, once again:
Take what you need and leave the rest.

You get to choose. Now how cool is that!?

Marc

Well said Marc...  :-*