I am 3 weeks into my first ever cycle, I was prescribed a pred taper 60 mg. I am just about done. I was feeling pretty good the last 2 days, just a dull headache all day but no hits. I still cannot sleep. I started the d3 yesterday with 100000 mg to start and today took 500000 loading does along with the other supplements. I don't get the symptoms ever for ch like runny eye Just the aches. After the supplements today I felt a slight hit coming back on. I know it's only been 2 days but I'm not sure if the d3 is having a weird effect on me, my throat feels a little closed up and I had a stomach ache which went away quickly. Any advice on. Continuing the d3?

Brian,

Are your doses correct???? 100k and 500k mg????

Peter

Whoops! I added an extra 0. I'm doing 50,000 iu d3. I noticed my magnesium says it is magnesium oxide on the back, which is not what batch suggested if I'm correct. I need to go get magnesium citrate or Malate. I'm hoping to see some results in a few days, at least a good night of sleep.

Hey Brian,

You're off to a good start, but I would watch for any indication of an allergic reaction like tightness of the throat or difficulty swallowing.  Reactions to vitamin D3 like this are rare and we've not had any confirmed cases of a reaction to vitamin D3 in the five years of this regimen's use here at CH.com... 

That said, there's always a first...  If these symptoms continue or get worse, stop taking the vitamin D3 and call your PCP asap or head for the ER!

I think the 2-Week vitamin D3 loading schedule is the way to go based on recent feedback from several CHers starting this regimen.  They all reported an average 25(OH)D gain of 60 ng/mL on top of their starting serum concentration.  They also reported a complete cessation of their CH.

As far as the magnesium supplements go, I take the Nature Made 400 mg liquid softgels.  They are magnesium oxide and I've had no GI tract problems.  I wouldn't worry about switching to the other magnesium salts unless you start experiencing osmotic diarrhea.

We're all a little different when it comes to a favorable response to this regimen.  Some CHers experience a drop in the frequency of their CH within the first 24 hours of the first vitamin D3 dose...  The majority of CHers respond within the first week to ten days and a few take up to a month.

A lot depends on other comorbid conditions that suck up available vitamin D3 and its metabolites.  Our immune systems are the largest consumer of vitamin D3... and this is as it should be.  Once it's satisfied with sufficient vitamin D3, there will be plenty left to prevent CH. 

Accordingly, if you stick with the 2-Week vitamin D3 loading schedule at 50,000 IU/day for the first week and 40,000 IU/day for the following six days, I'm confident you'll start responding within the first week and be completely pain free by the end of the second week.

Were you able to get a lab test of your serum 25(OH)D before starting the anti-inflammatory regimen?  If not, no biggie at this point.  You should see your PCP for lab tests of your serum 25(OH)D, calcium and PTH (parathyroid hormone) after you've been on the maintenance dose of 10,000 IU/day for at least a month.

Take care, hang in there and please keep us posted.

V/R, Batch

When coming off a Pred taper it is very common the attacks return. For me this starts at 20mgs./a day. Also Pred affects my sleep.

The D3 is working for me (2 yrs). My first try didn't work. Batch adivised me to up my dose. This still took 5 weeks to quiet my attacks. After 28 yrs. of CH this is my miracle.

Don

Thanks you guys. this will be my third day. I am trying just the vitamin D and then the fish oil and adding more accordingly to see what gave me a stomach ache.

Also, to others, people have found it weird I have no typical symptoms in my eye or sinus such as puffy pink eyelid or any of that. My neuro who is very experienced said he thinks it is ch due to the nature of my attacks I had, like waking up everyday at 230 with the pain behind me left eyebrow and eye. I'm just wondering if anyone else doesn't have the puffy eye symptom??

I normally feel best In the mornings. I haven't had a real attack in a few days. But do have a dull achy headache with some pain behind my eye still. I'll let y'all know how this d3 works for me!

I have never had puffy eye symptom.

Peter.

Thanks Peter.

Batch, what do you think is the best way to take the supplements and find out what may be giving me me the stomach ache?? Should I go just 50,000 d3 and 2400 mg fish oil just for today?

Brian,

Good questions...  I'd start the 2-Week vitamin D3 loading schedule taking 50,000 IU/day, but would try to add the magnesium first... then the Omega-3 fish oil. 

The enzymatic process of hydroxylating vitamin D3 to 25(OH)D and on to 1,25(OH)2D3, the active hormonal metabolite, consumes magnesium rapidly.  Without magnesium supplements, taking this much vitamin D3 will result in a magnesium deficiency...

Be sure to take everything right after eating the largest meal of the day.  This will help with vitamin D3 absorption and reduce the likelihood of GI tract disturbances.

Take care and please keep us posted.

V/R, Batch

Thanks batch, going to take the supplements with a big lunch today.

Is it typical to have a headache just about all day, and not have attacks?? It seems to be in and out behind my left eye? This is my first cycle ever I'm very confused as to what is happeneing. I do not have the normal attacks at 230 am like I did which makes me think the pred taper did some help. But is a dull headache with some eye pain normal, I'm not having the bad attacks I did the first week or two??

Appreciate all of your help, maybe I just need to play the waiting game. But being an artist and designer this pain on my left side is no fun.

Also batch, just noticed I am missing the vitamin k2. How soon should I add this to the regiment? My multi vitamin has the vitamin A in there at your suggested amount.

Brian,

No rush, but I'd start vitamin K2 as soon as I could order it over the Internet.

The vitamin K2 complex helps keep excess serum calcium out of soft tissues and arteries where it doesn't belong and sends it instead to build bone mineral density. 

I take the Super K with Advanced K2 Complex from LEF, the Life Extension Foundation and buy it from iherb.com or amazon.com whichever has the best deal.  LEF has a great website with lots of important information on vitamin K2.

There is even a section on the Super K for people taking blood thinners.  Look up this website and you'll be an expert on the topic.

Take care and please keep us posted.

V/R, Batch

Hey BrianD,
here's the superk

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All the best

Hey batch, just took the supplements a little while ago an I'm having another stomach ache. I took the 50,000 d3 250 mg magnesium one calcium citrate and one 1200 mg fish oil. Would it be effective to maybe space out the pills throughout the day to see if that helps the stomach ache?

Brian, maybe stop taking the calcium citrate and see how you go, also, have your calcium levels checked out.

Hoppy

Thanks hoppy, how should I go about getting my vitamin d checked? Can I get my 25 serum as well as my calcium level checked all in the same test? I'll need to call and ask my primary. What's the best way to ask for a test? I remember telling them I wanted a blood test but didn't really know what I needed.

Brian, you need to ask for a 25 (OH) D blood test and at the same time to check your calcium level.

Hoppy

Ok thanks for the timely response hoppy! For the 25 Oh D what is the Range I am looking to get into? Calling my primary tomorrow.

Your looking at around the 60-80ng/mL mark, 80ng/mL seems to be the sweet spot for most folk, but I'm fine sitting on 60-67ng/mL.

Hoppy