Hello CH friends.  It has been quite awhile since I have been through a bout and on here.  I am on the CH facebook page.  Today marked the end of my PF days since 2013.  I had one of the longest remissions I can remember.  I will say that I had one remission close to this length and both times I took mushy's out of cycle for fun.  The only two times in life I had ever done it.  Maybe there is a correlation to the longevity of PF days...maybe not.  Anyone else have the same experience?  A little about me: Started when I was 14, 1991, took 13 years to get diagnosed and I am 38 now, female living in Alaska.  I take imetrex and verapmil during cycle and O2 when it helps (not always).  Anyways...I am not happy to be back, but stoked that I have this support network to help me limp through my dark days.  Much love for you all. 

Hello Baysea,

Sorry you're back, but a big welcome anyway.

If you haven't been in touch for some time, there will have been some developments since you last logged on here.

In particular, I am referring to the D3 Regimen. It's been a life changer for quite a few of us.

You can read up on it in the Medications & Treatments section, under the thread "123 days pain free....".

There is a lot of reading but well worth the effort.

Ask lots of questions and post here anytime. There is always someone to lend a listening ear, good advice and understanding.

Keep well,

Peter.

Hi and welcome

I'll also suggest you look at the vitamin D3 as it has worked wonders for my CH and for a lot of people. Batch will no doubt be sending you info on it soon.

For your use of oxygen, I'd read up the info on our oxygen page (START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE) as it can provide some great advice on how to make using oxygen very effective.

And the support from people here is amazing as everyone either has CH or supports someone with it, so people understand what we're going through in a way that others just don't understand.

Hi & Welcome

  My only abortive was 02, used Verapamil to good effect for several years. 

  My attacks started 1/01, wife found this site 2/02 . . . . eleven years chronic . . .been pain free last 2 1/2 years using the D3 regimen.

   Read, read, read and ask any questions you may have.   You've found your new home among folks who truly know the pain of the beast.

    Be Safe

       PFDANs,

          Richard