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Cluster Headache Help and Support >> Cluster Headache Specific >> Finally some relief after 13 years chronic http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1476513528 Message started by Raider on Oct 15th, 2016 at 2:38am |
Title: Finally some relief after 13 years chronic Post by Raider on Oct 15th, 2016 at 2:38am
I've added 10 -20 mg of prednisone daily to my 240 mg verapamil, had been on up to 960 mg per day of Verapamil and oxygen
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Title: Re: Finally some relief after 13 years chronic Post by maz on Oct 15th, 2016 at 5:22pm
Prednisone should only be used as a stopgap when you first start taking verapamil, while you wait for the verapamil to become effective. It's far too dangerous to take long term.
Have you tried sumatriptan auto injections, and the vitamin D3 regime that has helped so many of us. |
Title: Re: Finally some relief after 13 years chronic Post by Treelove2 on Oct 18th, 2016 at 11:39am
Predosine is FANTASTIC for me as well, no headaches at all, I was up to 60 mg a day and I can tell you the side effects if you get them are AWFUL. I gained about 20 lbs, felt like I was falling asleep all day. Was so cranky, I would snap at anyone and if I ran low on them, I was like a drug dealer begging my doctor for me. I share that to say be very careful! I came off it and the headaches have come back but at least I am myself again. I hope that does not happen to you. Good luck!
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Title: Re: Finally some relief after 13 years chronic Post by LasVegas on Oct 18th, 2016 at 3:46pm
Pred is tough, but it does work for most, to each their own, risk vs reward, my knees are now bad, coincidence?, I would rather inability to walk and be stuck in a wheelchair than CH's. Short term for sure, taper down, start very high, keep that preventative in check and have O2 ready. Pred at tapered down dosage/end usually results in vengeance attacks to make up for lost torture time. When in full blown attack mode, anything is better, right? Take care ;)
-Gregg in Las Vegas |
Title: Re: Finally some relief after 13 years chronic Post by japanzaman on Nov 11th, 2016 at 11:42pm
Prednisone is nice, but it can't be your long-term solution. Too many dangerous side effects if used too long.
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