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http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Supporter's Corner >> Supporter's Corner >> The cries in the night ! http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1210716633 Message started by Annette on May 13^th, 2008 at 6:10pm

Title: The cries in the night !
Post by Annette on May 13^th, 2008 at 6:10pm

$@(*$&@(*W*YE@(*$^@($*@ !

It looks like Daniel is starting another cycle ! :'(

For the last 5 nights he has had 2 hits per night at 12 am and 6 am like clock work and now he is starting the day hits too. Although we are more experienced this time around and got on meds quickly so the hits arent as bad as 2 years ago, they can be killed fairly quickly within 10 mins with oxygen and imigran nasal sprays, and the kip levels arent bad but still I so much hate waking up to those muffled cries in the night !

:'(

Title: Re: The cries in the night !
Post by George_J on May 13^th, 2008 at 11:01pm

Dammit. >:(

I hate this stuff.

You all hang tough--really glad to know that you're better-armed this time around, Annette.

All the best,

George

Title: Re: The cries in the night !
Post by Guiseppi on May 14^th, 2008 at 2:08pm

Damn sorry to hear he found your address again. Incredibly efficient that way the beast is. :'(

Guiseppi

Title: Re: The cries in the night !
Post by Garys_Girl on May 16^th, 2008 at 12:09pm

I am so, so, so sorry!!!!!!!!!!!!!!!!!!!!!

I'm glad to hear the current aresenal is working pretty well and quickly. Hope it stays that way and that this cycle passes quickly.

Laurie

Title: Re: The cries in the night !
Post by Annette on May 16^th, 2008 at 11:12pm

Thank you George, Joe and Laurie for your support.

This cycle rammed up quite quickly for Daniel, within a few days he went to 2 hits at night to 2 more in a day then 6 hits in 24 hrs ( every 4 hrs like clock work ). He got on prednisone, epilim and neurontin straight away and he was already on verapamil. The hits are mostly around Kip5-6 and lasted only around 10-20 mins with oxygen or spray. He had 1 kip 10 the other night, woken up from a deep sleep so it was already raging. It was too late then as nothing seemed to work. Fortunately it only lasted 40 mins.

Overall, its nowhere as bad as last cycle and we are praying that it stays that way for the length of the cycle and that the cycle itself will only be a short one.

God, I hate this stuff !! :'(

Title: Re: The cries in the night !
Post by cash5542 on May 17^th, 2008 at 10:58pm

((((HUGS))))) I still can't get used to how this just creeps up and makes life a living hell for the sufferer and anyone close by. Hang in there!

Charlotte

Title: Re: The cries in the night !
Post by Angie on May 21^st, 2008 at 11:58am

So Sorry Annette. Keep Daniel Strong

[smiley=hug.gif] [smiley=hug.gif]

Title: Re: The cries in the night !
Post by coach_bill on May 26^th, 2008 at 7:13pm

Thank god he has someone like you in his life. As bad as this stuff is for me, i could'nt even think how a child could deal with it. coach bill

Title: Re: The cries in the night !
Post by DennisM1045 on May 26^th, 2008 at 7:46pm

Just saw this Annette. Sorry to hear you are back in the trenches. But I'm so happy to see you sticking by Daniel. Supporters like you are the rocks we cling to in the storm.

Good luck...

-Dennis-

Title: Re: The cries in the night !
Post by Mrs Deej on May 26^th, 2008 at 7:53pm

Lotsa hugs! [smiley=hug.gif] [smiley=hug.gif]

Title: Re: The cries in the night !
Post by Mosaicwench on May 26^th, 2008 at 9:28pm

Oh Annette, I'm so very sorry that beast found you again.

We're here when you need to vent and just keep fighting the good fight for your man.

Big hugs START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

END PRINTPAGE

Title: Re: The cries in the night !
Post by Annette on May 27^th, 2008 at 5:45pm

Thank you so much everyone for your kind support and wishes. It was very uplifting to come here and find so many friends are thinking of us.

This cycle has been easier for both of us to cope with as we had learnt so much from here. Thank you DJ, thank you guys ! :-*

Daniel is going to try suboccipital injection, like Micheal Wildhaus and see how well it works for him. Fingers crossed !

Title: Re: The cries in the night !
Post by George_J on May 27^th, 2008 at 6:06pm

Please keep us posted on how the suboccipital injection works out, Annette. I'll be interested to see whether Daniel's experience with it will be better, worse, or the same as Michael's.

All the best to you folks,

George

Title: Re: The cries in the night !
Post by debOUCH on May 27^th, 2008 at 11:33pm

just saw this post annette.................i am sending lots of prayers & hugs to you and yours..........................my daughter is on her way tonite to your part of the world ................................keep being the great supporter u r...........................................
deb
[smiley=hug.gif]

Title: Re: The cries in the night !
Post by BarbaraD on May 28^th, 2008 at 8:29am

((*&*^%%$$$!!!!!

Ok, got that out!!!! So sorry Annette.... thought we got that out of the way months ago...

Is he taking melatonin at night -- if not get him on it... (Dr. Granny's advice :) ) Might help those night hits some.

Big Texas vibes coming your way from Granny and Caleb... for a really short cycle...

Hugs BD

Title: Re: The cries in the night !
Post by Kevin_M on Jun 1^st, 2008 at 9:45am

Quote:

The cries in the night

wrote on May 27^th, 2008 at 5:45pm:

This cycle has been easier for both of us to cope with as we had learnt so much from here. Thank you DJ, thank you guys ! :-*

Our founding father building Clusterville adjacent to hell allows many hands to reach out. ;)